I had my followup with the pain specialist this morning.
She point blank told me that the chances of my injuries ever healing were slim to none.
She's hoping that the biofeedback with the Phycologist will help some and that I will more than likely be on vicodin and the rest of the other junk for the rest of my life. She's hoping that in time the pain will subside a little but said it will never go away. She did take me off the Trazadone at nightime because it doesn't really seem to be helping.
I'm at a loss now, I have no idea what to do, all I know is that I'm sick of tired of hurting and having to pop the stupid vicodin to take the edge off.
Sorry really just having a crappy day. At least I got the truth and not lets try 15 other things. Also she did mention that I may benefit by having a heal lift made to put in my left shoe and that may help some with the SI joint dsyfunction.
Oh Ts! I am so so sorry to hear the bad news. BUT you are right at least you were told the truth and not just want you want to hear. I hope the pain does subside after some time, but that is never going to be soon enough. My neuro pretty much told me the same thing last month too. I will most likely never be the way I was before and I will have to learn to live with the pain and deal with the pain. I cried.
This s--- is SO NOT FAIR. Ticks me off. My blood pressure is starting to rise so I am going to go now. LOL
Hey there I hear you!! That is what I was told last June, Get use to it, this is your life it will never get any better. I upset me so bad to think that a Doctor would say this!! I mean there has to be hope in our lives. If not for hope I do not thing I could keep going!!! There are new things being used everyday and one day it mught be our turn!!!! So do not give up!! Keep the flame of hope burning!!!!!
Hey T. ,,, I truly understand your day and the information you had recieved . It's nothing we want to hear and it truly does a number on our self esteem and our life PERIOD !
I am a bit surprised that the doc stopped medications !
Even though they dont help ... certain drugs .. you must be weined off of before stopping cold turkey .....
as side effects may occur and you would not even know why ...
I hope this medication you stopped is not one of those medications you have to be weened off of.
I wish there was something I could say to make you feel better ..
Hopefully your day gets better ... as the day goes on.
I live with pain daily and it does a number on me like no tomorrow !
Gosh what a sad day What are your "final" injuries if you don't mind going over them. I ask because I have the same old back pain I did right after we got hit - just under a year ago. I am on vicadon and muscle relaxers and when needed, anti inflamatories. My Doctor is out of option and says some times it takes 2 years. He is open to any test or therapies but I don't know if I should take the time and effort to try them as NOTHING seems to help much!
I get 1 hour massages two times a week and while they feel really good I honestly believe they only help for a few wonderful hours. I want to believe I will be 100% again but need to know, what my life will be!
I am so cranky and while my family tries to understand, it really is so sad for them to have to!
I really hope you find something that works for you!
Wow you have a lot -- that is so horrible. You make me sound like a really well person! My main problem is just the continuing pain - I don't really have any names for anything. So I am guessing it is going down as soft tissue? I don't seem to be getting any better and every appointment I have made little or no improvement.
I have done PT, saw the neuro, had a MRI and now my Doctor would like another MRI and visit to a different neuro - the last one was a jerk, and maybe heller therapy. Other than the massages (2 a week)and the pills and ice seem to be about all they can offer. Wouldn't be so bad if I weren't in such constant pain!
I know how you feel. I'm in pain daily. I haven't been out of the house since Saturday when my hip flared up really bad-I've always had the soreness pain but nothing like what I have now. Went to my PCP, he just asked why I was there, refilled all my meds and out he goes. I think I did mention PT but he said he wants to wait til I see the orthopedic injections in the hips. If that doesn't help, he will authorize PT
Ya know, Sky. If you sit back and think (really think) about all you have been thru since your mva, I'll bet you never in a million years thought you would be seeing your PCP, neuros, PT, injections, RF's, etc. It is too maddening for me to keep up with.
My neuro mentioned I try the pain pump a couple years ago, but I wasn't mentally not ready bcz if I do go on the pain pump, I feel like I would be succombing to the pain. I would feel that I am giving up.
It's crazy what we have to go thru just to buy a couple weeks of pain free. My mom thinks I'm nuts. She says why do you have those injections when yOU know they only last a couple weeks. I just tell her the truth--when I'm in excruciating pain that last several days, if I call my pain mgt doc he usually gets me in within 24 for an injection. Even tho that inj only lasts couple weeks-it's worth it to me--I know it sounds crazy but some days, when all I can do is stay in bed and cry with the pain. On those days I would get an injection if they only last a day. But, she will never understand what I'm talking about=no one can unless they've experienced whiplash.
You know, I never even really believed whiplash was real BEFORE the MVA LOL Now, of course, I am a true believer!
I am trying so hard to give my family the "best" of me but gosh, it is so hard! I want to teach my kids that we deal with the cards we are dealt, no matter how unfair. A lesson I never really had to practice until this year!
We are getting killed in this weather and again, another one is coming. They say the winds will be up to 60 mph and up to 8 inches of snow. It is going to get down to 18 on Thursday!!! I don't mind the weather as long as we keep the electricity -- we were out for 4 days then on for 2 then off for the next 2 and then 1 day on and off and here we go again! Just another adventure I guess!
I never have seen so many Doctors in my life and I just want to feel better. I don't have many named problems but I sure do experience a lot of pain
Sky,
Hope that you all set up and ready for the storm. I know that as soon as hear snow I make myself go in to the next town to stock up on milk,eggs,bread, and snacks. Don't mind snow but I do not drive in it and I need my soda and snacks LOL. So when I hear snow I git going. We are to get hit Sat thru Sunday. So come Friday I will be stocking up. I remember when children were still at home and when school would let out because of snow we would have so much fun!! Popping corn, making hot chocolate, cookies, and pizza's. Then we would play games. Gee it was a long time ago. Now if I lost power I would be upset! LOL I could not get on the web. LOL Wow how time changes everything! I will be praying that you keep your power this time.
I am no expert on any of these subjects.but I can say, "I'm so sorry for your pain" and all the other 'crap that comes with it'(sorry for my language, but so so true). I am beginning to believe that these types of injuries never really heal. I was thinking about how it's like a bullet or bomb shattered that whole area; and with all the intricate parts--how the heck are the parts supposed to just heal back in their original places>? I don't see how.
My sister tells me, 'you'll see, you'll be completely healed in a year or so..". I mean, yeah, I hope so but she really has no idea of what the spine is made up of. I think the pain psychologist is to help us come to terms with the reality of all this surreal unbelievable 'crap' we got now.
I tell ya, we feel for ya here...I know for you it's been a lot longer(me at 5mos)....and my pain is not any better. I really feel scared, as I am only 44 and wondering, "will this be my new life? am I pathetic because I can't be my former self. Am I a loser? Am I going down hill now. HOw did this happen? I was a power-walker... : (
Popping pills is scary too huh?
I pray you will find peace and serenity. I pray you find solace. I pray you find grace to bear what you have before you, behind you and ever on.
Blessings, Vee
It's sad that we have to put on our happy face to hide our pain from our family. It's even sadder that they don't understand our pain bcz if they did they would be more empathetic with us.
Went to doctor today (again) and told him I need his undivided attention today and I would make this as brief as possible. I told him about my right leg. I have pain that starts in the hip, moves to the groin and down my leg. I can be sitting, not moving abit and out of nowhere my leg and thigh goes into major spasms. My doc asked where the pain is coming from and I told him honestly I don't know. Its hard to describe-feels like it's everywhere-every time I put pressure on that leg like walking or turning in bed, the pain is excruiating but I can't determine where its coming from.
My doc told me it's probably due to the neuropathy and there's nothing he can do. I looked him in the eye and said "take it off." He asked me what I said and I told him the pain is sooooo severe (worse than my neck and back pain and worse than me recovering from surgery and if there's nothing he can do to take this pain away, I want it off." Ya know what he told me? You need to see a psychiatrist to help you deal with this pain. I told no, actually I need another doctor who won't be scared of the insurance companies. Scared to give me too many meds, scared to order mri's, scared physical therapy-see I always believed doctors get a kickback when they fall back on treatment with their patients and he is going for it cuz he would rather me see a psych doc than try and find out exactly what it is. It could be coming from my hip and if that's the case, I need mri.
He told me to come back in a week and if things weren't better he wants me to have a emg/ncs study and if that doesnt work, an mri. I liked to fell out of my chair, lol. Thank god I didn't bcz the pain in my leg is excruciating enough w/out land on it.
It's been two weeks of pure he.. I can't imagine waiting another week but I will.
Just tee's me off that we, the patient have to direct our medical care. Half these either think we're malingerers or exaggerating our pain. I think my doc got the picture when I told him cut my leg off. I really wouldn't do it, but sometimes he pain won't go away, I wish I could.
I also have a shoe lift hate to burst your bubble but its a joke doesnt help at all.I pray things will get better for you.Its so hard when people are hurting so bad and no one takes us serious or think were just nuts.If only they could walk one day in our shoes.I wish I could do more to help you.I pray better days are coming for you.Good luck.
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I cried.