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Chronic Fatigue Syndrome SSR99-2p

May 5 1999 at 11:40 AM
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Full text at http://frwebgate.access.gpo.gov/cgi-bin/waisgate.cgi?WAISdocID=1801810049+0+0+0&WAISaction=retrieve

[Federal Register: April 30, 1999 (Volume 64, Number 83)]
[Notices]               
[Page 23380-23384]
From the Federal Register Online via GPO Access [wais.access.gpo.gov]
[DOCID:fr30ap99-143]

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SOCIAL SECURITY ADMINISTRATION

 
Social Security Ruling, SSR 99-2p.; Titles II and XVI: Evaluating 
Cases Involving Chronic Fatigue Syndrome (CFS)

AGENCY: Social Security Administration.

ACTION: Notice of Social Security Ruling.

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SUMMARY: In accordance with 20 CFR 402.35(b)(1), the Commissioner of 
Social Security gives notice of Social Security Ruling, SSR 99-2p. This 
Ruling clarifies disability policy for the evaluation and adjudication 
of disability claims invo1ving Chronic Fatigue Syndrome (CFS). This 
Ruling explains that, when it is accompanied by appropriate medical 
signs or laboratory findings, CFS is a medically determinable 
impairment that can be the basis for a finding of ``disability.'' This 
Ruling ensures that all adjudicators will use the same policies and 
procedures in evaluating disability claims involving CFS, and provides 
a consolidated statement of these policies and procedures.

EFFECTIVE DATE: April 30, 1999.

FOR FURTHER INFORMATION CONTACT: Carolyn Kiefer, Office of Disability, 
Division of Medical and Vocational Policy, Social Security 
Administration, 6401 Security Boulevard, Baltimore, MD 21235-6401, 
(410) 965-9104.

SUPPLEMENTARY INFORMATION: Although we are not required to do so 
pursuant to 5 U.S.C. 552(a)(1) and (a)(2), we are publishing this 
Social Security Ruling in accordance with 20 CFR 402.35(b)(1).
    Social Security Rulings make available to the public precedential 
decisions relating to the Federal old-age, survivors, disability, 
supplemental security income, and black lung benefits programs. Social 
Security Rulings may be based on case decisions made at all 
administrative levels of adjudication, Federal court decisions, 
Commissioner's decisions, opinions of the Office of the General 
Counsel, and policy interpretations of the law and regulations.
    Although Social Security Rulings do not have the same force and 
effect as the statute or regulations, they are binding on all 
components of the Social Security Administration, in accordance with 20 
CFR 402.35(b)(1), and are to be relied upon as precedents in 
adjudicating cases.
    If this Social Security Ruling is later superseded, modified, or 
rescinded, we will publish a notice in the Federal Register to that 
effect.

(Catalog of Federal Domestic Assistance, Programs 96.001 Social 
Security--Disability Insurance; 96.006 Supplemental Security Income)

    Dated: April 23, 1999.
Kenneth S. Apfel,
Commissioner of Social Security.

Policy Interpretation Ruling Titles II and XVI: Evaluating Cases 
Involving Chronic Fatigue Syndrome (CFS)

Purpose

    To restate and clarify the policies of the Social Security 
Administration for developing and evaluating title II and title XVI 
claims for disability on the basis of Chronic Fatigue Syndrome (CFS), 
also frequently known as Chronic Fatigue and Immune Dysfunction 
Syndrome.

Citations (Authority)

    Sections 216(i), 223(d), 223(f), 1614(a)(3) and 1614(a)(4) of the 
Social Security Act, as amended; Regulations No. 4, subpart P, sections 
404.1505, 40404.1508-404.1513, 404.1520, 404.1520a, 404.1521, 404.1523, 
404.1526-404.1529, 404.1560-404.1569a and 404.1593-404.1594;

[[Page 23381]]

and Regulations No. 16, subpart I, sections 416.905, 416.906, 416.908-
416.913, 416.920, 416.920a, 416.921, 416.923, 416.924, 416.924b, 
416.924c, 416.926, 416.926a, 416.927-416.929, 416.960-416.969a, 
416.987, 416.993, 416.994, and 416.994a.

Introduction

    CFS is a systemic disorder consisting of a complex of symptoms that 
may vary in incidence, duration, and severity. The current case 
criteria for CFS, developed by an international group convened by the 
Centers for Disease Control and Prevention (CDC) as an identification 
tool and research definition, include a requirement for four or more of 
a specified list of symptoms. These constitute a patient's complaints 
as reported to a provider of treatment.
    However, the Social Security Act (the Act) and our implementing 
regulations require that an individual establish disability based on 
the existence of a medically determinable impairment; i.e., one that 
can be shown by medical evidence, consisting of medical signs, symptoms 
and laboratory findings. Disability may not be established on the basis 
of an individual's statement of symptoms alone.
    This Ruling explains that CFS, when accompanied by appropriate 
medical signs or laboratory findings, is a medically determinable 
impairment that can be the basis for a finding of ``disability.'' It 
also provides guidance for the evaluation of claims involving CFS.

Policy Interpretation

    CFS constitutes a medically determinable impairment when it is 
accompanied by medical signs or laboratory findings, as discussed 
below. CFS may be a disabling impairment.

Definition of CFS

    CFS is a systemic disorder consisting of a complex of symptoms that 
may vary in incidence, duration, and severity. It is characterized in 
part by prolonged fatigue that lasts 6 months or more and that results 
in substantial reduction in previous levels of occupational, 
educational, social, or personal activities. In accordance with 
criteria established by the CDC, a physician should make a diagnosis of 
CFS ``only after alternative medical and psychiatric causes of chronic 
fatiguing illness have been excluded'' (Annals of Internal Medicine, 
121:953-9, 1994). CFS has been diagnosed in children, particularly 
adolescents, as well as in adults.
    Under the CDC definition, the hallmark of CFS is the presence of 
clinically evaluated, persistent or relapsing chronic fatigue that is 
of new or definite onset (i.e., has not been lifelong), cannot be 
explained by another physical or mental disorder, is not the result of 
ongoing exertion, is not substantially alleviated by rest, and results 
in substantial reduction in previous levels of occupational, 
educational, social, or personal activities. Additionally, the current 
CDC definition of CFS requires the concurrence of 4 or more of the 
following symptoms, all of which must have persisted or recurred during 
6 or more consecutive months of illness and must not have pre-dated the 
fatigue:

    <bullet> Self-reported impairment in short-term memory or 
concentration severe enough to cause substantial reduction in 
previous levels of occupational, educational, social, or personal 
activities;
    <bullet> Sore throat;
    <bullet> Tender cervical or axillary lymph nodes;
    <bullet> Muscle pain;
    <bullet> Multi-joint pain without joint swelling or redness;
    <bullet> Headaches of a new type, pattern, or severity;
    <bullet> Unrefreshing sleep; and
    <bullet> Postexertional malaise lasting more than 24 hours.

    Within these parameters, an individual with CFS can also exhibit a 
wide range of other manifestations, such as muscle weakness, swollen 
underarm (axillary) glands, sleep disturbances, visual difficulties 
(trouble focusing or severe photosensitivity), orthostatic intolerance 
(e.g., lightheadedness or increased fatigue with prolonged standing), 
other neurocognitive problems (e.g., difficulty comprehending and 
processing information), fainting, dizziness, and mental problems 
(e.g., depression, irritability, anxiety).
Requirement for a Medically Determinable Impairment
    Sections 216(i) and 1614(a)(3) of the Act define ``disability'' 
<SUP>1</SUP> as the inability to engage in any substantial gainful 
activity (SGA) by reason of any medically determinable physical or 
mental impairment (or combination of impairments) which can be expected 
to result in death or which has lasted or can be expected to last for a 
continuous period of not less than 12 months.<SUP>2</SUP> Sections 
223(d)(3) and 1614(a)(3)(D) of the Act, and 20 CFR 404.1508 and 416.908 
require that an impairment result from anatomical, physiological, or 
psychological abnormalities that can be shown by medically acceptable 
clinical and laboratory diagnostic techniques. The Act and regulations 
further require that an impairment be established by medical evidence 
that consists of signs, symptoms, and laboratory findings, and not only 
by an individual's statement of symptoms.
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Responses

  1. Ralph Wilborn's discussion of 99-2p at SSAS - Link - Severe.net on May 5
    1. Oh Boy, do I have my work cut out for me??? - Lauren on May 8
     
  2. SS Review - Belinda on Dec 19
  3.  
  4. F.M. disability ? - Melinda on Feb 10
    1. fibromyalgia - don christopher on Feb 18
    2. I have the same problems - wayne gerlich on Feb 21
      1. I know where you are coming from? - Kym on Mar 7
        1. Filing for disability Insurance - Sandy on Mar 11
          1. Filing for disability insurance - Marsha on Mar 11
            1. i have been trying for disability for two years now/still cannot get it !!! - carol on Mar 21
              1. Trying for disability for two years now/still cannot get it!!! - Marsha on Mar 22
                1. Effexor xr and Ultram,bad mix - Dan B on Apr 24
                  1. tell me more - Ronald Randall on May 12
                  2. Ultracet and Effexor - Debra on Aug 4
      2. It's not in my head. It's in my body! - Nadine Unger on May 17
        1. fibro disability - tina lynch on Jan 26
        2. I FOUND A DR. THAT SAYS, "IT'S NOT IN YOUR HEAD!!! - Pattie Mitchell on Jul 31
          1. Re: I FOUND A DR. THAT SAYS, "IT'S NOT IN YOUR HEAD!!! - ethel arens on Aug 7
        3. I FOUND A DR. THAT SAYS, "IT'S NOT IN YOUR HEAD!!! - Pattie Mitchell on Jul 31
    3. fm - rose on Apr 12
    4. Want to send a positive story - Deb on Apr 24
      1. FM - Margaret on May 3
      2. Congrats on being approved...tell me, what impairment code was used? - Kim on Jun 17
        1. filing disability - ethel arens on Aug 7
      3. Deb- please e-mail me - Laurie on Aug 21
      4. please e-mail - Sondra B. Kilgo on Feb 27
     
  5. cfs - Juanita Christman on Apr 5
    1. CFS - Nathalene Lee on Aug 20
    2. CFS - Nathalene Lee on Aug 20
     
  6. response to cfs filing - SANDRA on Nov 26
  7.  
  8. response to cfs filing - SANDRA on Nov 26
    1. Untitled - shan on Nov 29
     
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