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Re: re: Stanford
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I talked to a woman over there who is in charge of the narcolepsy center, she has Narcolepsy too and she was really great to talk to. She has a great understandng of what we go though and would like to help me. Although as it turns out I have a pretty "rare" case of N and it has a lot to do with the fact that I am black. The N genes in black people are differnt for some reason. So they would like me to participate in a study. I'm not looking for a miracle I just need some help and I would like to help others if possible. Do you really believe, Pam, that just because they didnt find any really great treatment yet means that they are never going to? Did you know that ten years ago no one even knew WHY it was that we sleep? How could you expect them to come up with any type of cure for something that they hardly understand? It is true though that if it were up to the drug companies no one would ever get 'cures' for anything. But there are a small handful of people that are willing to help and I would like to contribute to that as well. Phil when you went to stanford what was it like? Why do you think it was pointless? I have no clue what to expect and it would help me out a lot if you told me what it was like.