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Re: Sleep Study while on Xyrem and venting!
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Thank you ever so much Pat. I know god MUST be carrying me (1 set of footprints) and this is all in his plan but being here in the flesh makes me weak and have doubts about the purpose and timing of the plan.(I call it the remote control era - everything now!?! Click click the batteries must need changing!)
The last few weeks have me going backwards. When I started Xyrem in October I felt reborn and an image of my former self began to imerge. Then came another strep infection and 2 weeks later another sinus infection I had to stop the Xyrem because it was causing difficulty breathing afterall my sinuses were blocked. I even had to cancel my december appt with the neuro because I was too dizzy and tired to drive there. His office is 45 minutes from home and 1 hr & 20 minutes from work and I won't drive more than 20 minutes when I feel that bad, I even had to take 2days off work. By the time I got to his office last month I was completely sleep deprived again and my symptoms were almost double what they were. I was back to nappping and 60mg of ritalin during the day.
I was falling ever so hard and having to see other doctors who don't understand the dynamics of N and the impact it has is totally unacceptable especially when it's a person who has been a patient of theirs for 2yrs.That's why I went to endo#2 - I figured since the neuro recommended him he'd be more understanding and know that something is up if the neuro thinks my labs are off.But NoOooOOO!
It's 7:30am now and I'm home from the sleep study - the tech would not give me any inkling at all of how it went other than to say you're a good sleeper but very restless. i don't want to wait another 2wks for an answer!