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Progression of symptoms ? MS or N ?
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I've landed myself in the Er 2x since my nightime sleep study on friday. I haven't been able to get in to see the neuro as he does not have emergency appts ( i have a scheduled appt. on 2/20), so I've been following up with my primary.
These "spells" are oddly bizaare and a feeling I have not ever had before. They begin with a sudden feeling of passing out , a quick wave of nausea, a quick pounding in my head, then intense weakness of my whole body including numbness and tingling in all 4 extremities. I've never felt so weak before, I felt as if my entire body is going to shut down.I have to hang on to things and move very slowly or i'm going down.
The first ER doc had no clue - they ran a cbc, bmp,and something called an mip. they did an ekg, chest xray, and nothing came up other than my low thyroid levels. The second ER doc yesterday had serious suspicions of MS because of how quickly this "spell" came on and has lasted. A restest of thyroid shows my levels bounced back to normal. A CT scan oif my brain only showed some benign vascular spaces of CFS nothing else. They sent me home again with no answers other than to go for the MRI my primary ordered me to have @ 5pm.
How do they really know the difference? The longer I go on with this the more I question what is N, what is thyroid, what is someting else? I can place N symptoms in my life but how can I really be sure? My ENT said I hould be tested for mysthenia gravis....... what the heck I'm more confused now than I was before being diagnosed!
Maybe I need to seek a counselor who is experienced in chronic conditions? Help!? I'm really confused.
I have plenty of whine if anyone wants to bring the cheese and crackers for a party~