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feeling better and a medical theory LONG post.
by Scarlet (no login)
It's been 3 days since my last visit to the ER with no explanations of what happened whatsoever. I felt as if I was on the brink of death. Happily today I woke up feeling much better than I have in a week. The abilitiy to rest and sleep as needed and stopping all medication ( except levoxyl) has helped tremendously.
My theory as to what happened to me goes as follows:
Xyrem finally gave me the rest I needed so my body was able to utilize energies more efficiently.As a result I was able to lower my dose of ritalin. As a result of being much more active my body began to require more thyroid hormone and because I don't have one and am reliant on medication my body was unable to recoup thereby shutting down and requiring me to sleep more in an effort to consolidate what energy I had left. Then I continued with the xyrem which further reduced my respiratory drive ( very common in hypo patients) causing my mild UARS to increase to that of severe apneaic episodes further stressing my body.
As a result it further depleted my thyroid hormone because it caused me to use further energy that medically I did not have. I upped the ritalin per the neuro which stressed my body even further basically causing a shut down of unnessecary functions and completely stressing my heart. My first trip to the ER having not had any xyrem or ritalin my FT4 ( primary thyroid hormone) increase 5 tenths of a point( from 0.57 to 0.62) on my second trip to the ER my thyroid hormone practically tripled to 1.76 ( completely normal range). I do believe as my primary does it was causing seizure activity ( complex partial seizures) which created further weakness.
To shorten this up my body basically was shutting down to being undermedicated for thyroid and over medicated for N.
I realize this post is long and many may not be able to understand it but I needed to put this in writing since my brain is functioning this morning and I don't want to forget anything.