thanks for the advice i will take it on board,are you from the US?i know over ther there is a lot more information and studies going on about N? thats what my docs have told me anyway lol.i feel like im educating my docs so its vice versa,half the time i ask for info on N and they tell me 2 luk it up myself or luk at me stupic asthough they dont know how to get it or explain it,your right i know theres little known abou N i just wish there was some way i could help to publisize the condition and make docs think twice about doin more research.Ithink the way forward for the docs is to speak to a range of ppl with N and other symptoms to take on board how it effects your daily life xxx