I have a committed interest in what Amy is doing, making a documentary as you know. it seemed it would be easy to "introduce" Amy to some of us here on the forum, who have been my closest narcolepsy contacts for more than 5 years.
it occurs to me that remembering us and what we deal with in this matter... is like being a paraplegic and "just" wanting to get to the post office; I would have to crawl there! my muddled mind and patchy memory are just not doing the job.
anyone who thinks this is way too much info to just post out in the open, not a problem. Amy said from the beginning she would not compromise anyone's privacy, and the purposes of this board are still the same: safe, supportive, informative and a place to just get stuff off our chest.
If you are interested, post here:
1. How old are you?
2. what age were you first really troubled by symptoms of n and c?
3. what are your top 10 symptoms (go down from the most disabling) as you live with them day to day?
4. what work do you do? or did you do?
5. city/state?
6. family situation?
7. family history? (not just history of n)
8. milestones and events, good and bad?
9. if there was one thing you wanted to be known about your life as a person with narcolepsy, what fact is that?
10. is there another thing you want known? let 'er rip.