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Xyrem for weight;oss?
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I was diagnosed with narcolepsy last August. A few months prior to that I was diagnsoed with Type 2 diabetes (familial). I've spend four years trying to get help with my sleep and up until last August all that was discovered was obstructive sleep apnea. After a number of doctors I found one who studied sleep patholgies at Stanford especially narcolepsy. I could literally fall asleep while walking and wake up not knowing where I was and often walking into doors and walls. I was experiencing full-on dreams that could occur with a bob of my head tying to stay awake. I'd had enough after splitting my forehead open on a door jam and slamming hard into a mirrored door.
After a couple more sleep studies my sleep latency was measured at .4 minutes.
I began taking Xyrem last Sept. After the first night I awoke and experienced an extreme awakening of my senses. Everything was brighter, my sense of smell was greatly intensified and was my sense of taste. My sleep was better but still wanting. That was on the first dose level. Titrating up made my narcoleptic fits become almost eliminated. I had side effects like nausea, blurred morning vision. Over the last few months I have lost over 15 lbs-a lot for me as I had been 150lb. I could lose 5lb in a few days. I couldn't keep weight on. I was feeling weakened. My doctors blamed it on the Xyrem, even though my sleep doctor didn't think it the culprit. I've had to come off it and now my sleep is a mess. I don't sleep well at night and during the day I can't keep awake at times even with provigil. I'm a 50 yr old male and have had to take time off from work in order to build myself back up. My diabetes is well-controlled and while I have other health problems they are well-controlled.
Does anyone have experience with Xyrem that could account for weight loss? Stopping the treatment hasn't helped my mood either. I was having such good results with the Xyrem dose of 3.75, 2X a night. Now I sleep for 9 hours and wake up exhauseted.
Any feedback will be greatly appreciated.