i will do the whole welcome, contact us thing in a minute. but first this has been weighing on me, man the cataplexy is kicking my butt these last `10 days ---
what you describe is a giant change in expectation of relief. you simply cannot just rule out xyrem considering the extreme state of upheaval and constant injury you go through without it.
also xyrem is one of the very unique meds that can do the whole narcolepsy/cataplexy package, and there is nothing that is enough like it to experiment around. with the improvement in sleep, some of the daytime hallucinations and automatic behavior must have been improved dramatically by what i call "mechanical" means: taking extreme exhaustion out of the picture, so much of the day and night N and C effects were lessened, and surely not getting worse.
before you completely abandon xyrem as an option, it occurs to me to control the "nausea" side effect separately. tell the docs if they dont have a chemical answer to it, that you will try something independently, then get your hands on some pot. if you can deal with appetite and nausea (attraction AND aversion) in the same step, you might see your weight and strength come up.
you have so much at stake, please get back to us on this.
in case you have not seen it here since september, i will post the Definition Page, and PLEASE email me anytime.
pat
btw. i believe you are getting the best care in the world if you are still at or near Stanford. there MUST be some way to work with this.