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Re: re: cataplexy attacks
by (no login)Probably the biggest slap in the face since this all started was about a year after the attacks started. I was taking Celexa at the time which cut the full body attacks down to 1 a day at only 2 min or so each. Mom and I were in my bedroom laughing and I got a little "floppy" but didn't go all the way down and after I was all better my mom was crying! I asked her what was wrong and she said "Even though you still had a small attack, that's the first time in a year I've heard you laugh."
Then I cried and yeah.
One of the things I've been working on with my therapist is keeping my emotions reined in. I've become quite good at fake laughing =)
We were told when I met with the sleep doc at Children's that they wanted to try me on Provigil and Xyrem, but after my sleep study they said that I DIDN'T have narcolepsy, and because I didn't fall asleep during the attack of cataplexy I couldn't have either. (Total BS if you ask me)
As for current meds, I'm taking Daytrana at the time, which has been one of the biggest helps. It's the best I've done on meds so far, and it's a stimulant. Both anti-depressants (Celexa then Prozac) helped by getting them down to about 1 a day, maybe 6 a week. Then came stimulants, Concerta first then Daytrana. They've seemed to be the most helpful by keeping me more alert and awake during the day, so I don't have as many sleep triggered attacks, which are always the worst.
So. This is long. SORRY! lol
~Bri
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