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Re: hang in there
by (Login patlittlejohn)Moderators
the spinal fluid is something 95% orexyn deficit shown in patients with N (diagnosed).
the MSLT can show false negatives for a variety of reasons, and be repeated many times in hope of "catching it just right on the right day".
many people come away from sleep lab testing with "inconclusive", "borderline", "pre-conditions", and even "completely normal".
the sleep testing is not regulated sufficiently to be considered standard for diagnosis, and it is referred to as "customary procedure as part of diagnosis".
the MSLT MUST be directly following the overnight, in order to be considered conclusive to insurers, and some clinics.
the overnight MUST use and titrate cpap or bipap, and show results of controlling apnea, BEFORE the MSLT. Also, since there are periods of adjustment and fine-tuning with cpap,
the improvement in breathing during sleep might not be enough to make the MSLT a true indication of REM onset. then you get an "inconclusive" dx, and have to come back and run BOTH tests, sometimes over and over.
I had at least 12 tests in 7 years, even though my dx was based on blood testing for HLA.
Other factors can be used in diagnosis, besides sleep labs.
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