Check out the Narcolepsy Chats at:
TalkAboutSleep.com
Chats every Mon & Thurs
(check schedule for any changes)

So I know I've asked this before....

by (no login)

But...

Right now I'm only having episodes of Cataplexy (or I suppose what we are 99.5% certain is Cataplexy)
I have been having the episodes since May of '07, and since then there has been no "normal" attack for me. The length and severity can vary greatly even within the same day.

I also haven't had many *sleep* symptoms. I know of a few times I've had hippo-hallucinations, but no sleep paralysis and only mild, mild EDS. (On the Epworth Sleepiness Scale I have a score of 9)

So. I'm wondering...Did any of you ONLY experience Cataplexy when your symptoms first started? And if so, how long was it until you started having stronger sleep symptoms?

I know this might sound crazy, but some days I wish the sleep symptoms were a bit more, well, MORE, so that the doctors that can help us could have some proof other than the Cataplexy attacks. I don't like being dxd with Conversion Disorder as we've already ruled that out.

So.

Thanks in advance,

~Bri

Posted on Jun 11, 2009, 11:21 PM

Respond to this message

Return to Index
Responses


Our Picture Album