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just found you
by Lisa (no login)
I just found you website:) I have a wonderful support system with my family, but at times it feels like they don't understand. They try, but it's just not the same. I have been missed diagnosed since the I was 17. My mom took me in thinking I was depress, even when I told her I wasn't, I was just so tired. The doc didn't listen to me and prescribed me a antidepressant with, get this, a sleeping agent in it. Well I only took that two times before I started to hide them. I then found caffeine pills that helped, then a stimulant herbal nitro. I called them my happy pills. I still suffered from moments where my body decided that it didn't want to work anymore and I would just crumble. I told myself that I was just clumsy. Before I say this next part, please understand that I come from a religious background. I had these, I know now, dreams that a demon was sitting on my chest. It was just so real, I real thought that the devil was out to get me. Then when I was really waking up, I couldn't move (to me even more proof that it was real). Things got really bad for me three years ago (age 27) when no amount of energy pills would take the sleepiness away. I was at a super bowel party, at a bar, had nothing to drink and fell asleep the first quarter woke up at the forth. I went to the doctor and told her I was up to 12 energy pills a day to stay awake for my eight hours of work. She looked at my chart and asked me if I was depressed since I had a history of it. I told her no, and she didn't believe me. She then said that she would sleep the whole day away if she could. I broke down crying, which didn't help the whole I'm not depress thing. She then told me to get 6 to 8 hours of sleep a night and that should fix everything. She did order a bunch of testes then, just in case. I had blood work done, an EKG, and a MRI. Everything came back saying I was in perfect health. I then started to log my sleeping patterns and went back with my sister and mother for proof that I wasn't making it all up. My doctor was out sick that day and I saw a PA named Sarah. She looked at my chart, asked me about my life (which is good), then said well you sure don't sound like you're depress. Cried again:) Finally someone believed me. I told her everything, dreams, body giving out, everything. She left room came back and said I have all of the symptoms of narcolepsy. I, seeing duce bigalo, said that I don't just fall down sleeping. She laughed and told me that it's not even close to being that way. She prescribed me nuvigil and my whole life changed. Sounds silly, but I went to my son's field day, which doesn't sound like a whole lot, but ment the world to me. My family still doesn't understand that it doesn't matter when I go to bed, how much sleep I get, I'm still as tired as if I pulled an all nighter. The dreams, still freaky, but I can now deal with them now knowing that they are not real. Cataplexy still happens rarely.
I'm sorry that this is so long. Guess I just needed to get all of this off my chest. It is great knowing I'm not alone.