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Glad to know you
by Jack (no login)
I'm thankful you wrote. Keep talking to those of us who understand. Your whole life is ahead of you and it's important to know that most of us with this illness get desperate at times. Too much desperation too long is not good however. I know you suffer. I do too. I keep trying to remind myself that narcolepsy does not define my life. I define it even though it is with this illness. It's easier said than done sometimes. I hope you find a way to get along that works for you. I find that I have spent a good deal of time isolating myself and I really need to reach out more to doctors, counselors, friends, whoever can help me. This illness can cause isolation and the tiredness causes saddness. Lets make a promise as fellow narcoleptics to look for ways to have a good life in spite of this setback. How about it? Knowing someone else out there like me is trying their best makes me want to do the same. Write more about your experiences. We all could benefit from your story and can learn from you.Just knowing you're out there is like having a good friend.