It amazes me that people that can take the time to get an education and become an MD, can be so uncaring and downright ignorant.
I am 71 and was diagnosed in 1967. I have a less severe case than most people, but the second Dr. that I went to told me that I had Narcolepsy. All he did was talk to me for 20 minutes, and he told me what it was. As I found out later, this is not the usual case. I understand the average is 15 years before a proper Rx. I could be wrong,but I think it takes longer for a woman to get a proper diagnosis.
You should start a journal and write down as much information as you can about your symptoms. First section about everything that has happened in the past. Then start fresh and list everything that happens in the present and future. List the Dr.s that you see and their results. Any changes in your symptoms, medications and their effects and side effects. Attacks of cataplexy and the severity and how long. List how often you have nightmares or bizare dreams.
You should try to get copies of all your medical records if you can. This is helpful any time you see a new Dr. Eventually you may be able to apply for disability, or assistance of some kind.
The length of your letter is the result of the frustration that has been thrust upon you. Your finding and posting on this site is your first step in creating some stability in your life. You WILL NOT find statements of lazy, or if you would get a good nights sleep -- We will understand what you have gone through, and sometimes we will have answers for some of your questions.
You can always vent your feelings here and no one will look down on you.
Welcome to this site, visit often.
GEM, Oregon, U.S.