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Message board for narcoleptics, friends and family. Ask/answer questions...or just get it off your chest.

tell me

by phil (no login)

my internet is too slow tell me about the Mali interview


http://www.narcolepsynetwork.org/?page_id=34

Posted on Nov 8, 2009, 12:49 PM

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rough transcript

by (Login patlittlejohn)
Moderators



M: mali described what n is.

M: discussed the impact on young adults, progressive autoimmune nature,

M: likened it to diabetes and crohn's

M: most commonly occurring (first) in young adults, teens and early twenties.

M: commonly goes undiagnosed.

M: 5 main symptoms, mostly 4 of those happen to normal people, but infrequently. all 5 happening all the time are indicators:


M: falling asleep ... reading, on the bus, listening to music, watching tv, profound and overwhelming.

M: cataplexy... this does not occur in normal people.

M: vivid dreams

M: disrupted nighttime sleep

sorry, I missed one, i think it was hallucination



Interviewer asked, "are you conscious of the paralysis during sleep?"

M: Like being caught halfway between sleep and waking, semi conscious. during REM normal people are paralyzed... this happens when our mind is awake but our body is stuck in REM

"do you come out of that?"

M: yes, but hard to judge how long that takes.

M: sometimes it helps if someone touches you or tries to wake you.

M: for normal people with sleep deprivation this can happen, too.

"are there many cases of n?"

M: probably 1 in 200,000 people are missing this hypocretin in the brain. maybe more people have milder versions, with something like mild diabetes, pre diabetic conditions,


"what should we do if we think we have it?"

M: first recognize it. with kids in sleep dep, it might be hard to distinguish. problems falling asleep inappropriately might send you to the doctor.

M: some other conditions like thyroid or anemia might mimic, but go to the doctor.

M: it might be commonly overdiagnosed as depression.

M: medications have been proved over the years: stimulants for students of people with repetitive work.
M: for c, antidepressants actually work.
M: xyrem seems to address all symptoms. has seen great successes in kids/students

M: taking naps, etc.

M: n does not mean you need more sleep, but trying to get enough of the right sleep at teh right time.

"support systems for n: ?"

M: its an important part, because n is for life. at different stages of life we need different kinds of support or advice. ref n network, newsletter, answer emails, etc.

M: often people who are not dx are underemployed, and have trouble in life.

M: when I got on the right med I got my life back again.

M: N network conference, scholarships to attend,

M: they have a list of local support groups, to connect with someone closeby, sometimes helps to meet someone with the same challenges.
also online support, message boards, chat

"do you have N?"

M: yes, i worked in finance, not medicine. i was lucky to be dx quickly, the time has come down from about 14 years to be dx.

M: people will say we are just lazy or fall asleep all the time, an invisible disorder.

"what about research?"

M: in 2000 discovery of hypocretin made researchers interested;
M: HLA marker seems to be an inherited likelihood.

M: made pwn want to be part of the research.

"Going on for 14 years before dx, dealing with docs and testing must be a long process"

M: people make assumptions for so long, it gets ignored at first. if the doc doesnt support you and refer you appropriately, thats difficult. insist on another opinion, and use the word "sleepy", not "tired".

"Doc has to refer you to specialists?"

M: Pcp can refer, or some insurance lets you go directly to the specialists. ask your insurer, or the docs office. most docs will refer you.

"what research have you done about african americans?"

M: greater numbers of blacks have the gene, but fewer proportions have n.

M: in my experience and research, i noticed and asked Mignot why someone with all the same measured symptoms the same, does not have c?

M: she said maybe 50 percent of blacks with n do not have c.

M: harder to get dx.

M: those black pwn i have met who have and do not have c, respond differently to challenge than culturally different caucasion and other data.
or it might be a gene that protects from c.

M: i can recruit people in the research, and it might help them and the greater group.

"what about these 100 black participants, often studies are done, and the white population is more into participating, is key, we need to participate"

M: there are subtle diff's, we had a korean study, by a korean doc, and there are subtle diff's that may help people of that background, might customize treatments, and also open a new discovery in general.

M: to inquire, with or w/o dx, contact Mali.
unpaid (participation) but it will not cost the subject for blood test submissions.

800 497 5337
einen@stanford.edu


M: talked about challenges in school and work. there is help; medications do help quite a bit.


"anything you would like to say?"

M: if you have n, the tendency is to let their world get smaller and smaller. i want everybody with n to be the person they were meant to be, and dont become isolated. with the right dx and the right treatment, we can live more full rich lives. dont ignore it, dont listen to stereotypes or judgments.




Posted on Nov 8, 2009, 2:04 PM

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Facebook

by Lindsay (no login)

I deleted my old profile because I had flooded it with FB games people. Please readd me :)


www.facebook.com/lawropiak

Posted on Nov 7, 2009, 11:09 PM

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I dont care anymore!

by Scarlet (no login)

I don't care if people think I am abusing adderall- I am going to keeep taking it. Their opinion means nothing to me- I am going to take it in a few hours so I can stay awake for my sons football game!!


Who cares what the rest of the world thinks!

Posted on Nov 6, 2009, 9:15 AM

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Re: I dont care anymore!

by (Login patlittlejohn)
Moderators

Dear Scarlet,



I KNOW: we kind of got that kind of caring kicked out of us.

Sure we could stand in a pharmacy or ER with our heads hanging down, listening to

THIS IS A VERY DANGEROUS AND CONTROLLED DRUG,

WE KNOW "DRUG SEEKING BEHAVIOR" WHEN WE SEE IT,

JUST LET ME CALL THE DOCTOR, AND PROVE YOU REALLY NEED THIS,

OH, "NARCOLEPSY", SO THAT'S YOUR EXCUSE!



I was very lucky to get relief with provigil for a while, because mostly people had never heard of it.






Honey, that train left the station years ago (about the time we started losing everything meaningful and precious)...

If they want us to hang our heads now, they will have to find something we have not lost yet.

Posted on Nov 7, 2009, 9:17 AM

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GEM Knife Boxes

by Bulldawg (no login)

Hey GEM

Did you get your knife display boxes done?

Posted on Nov 5, 2009, 3:07 AM

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99 and 44/100%

by (no login)

I have been thinking about you, but with everything on your plate lately, I did not want to bother you. I have had so little chance to spend out in the shop I was not sure I was going to get them done. I ended up doing them all the same since it would be fastest. I completed them yesterday, with a little finishing left. So your timing was right on. Send your E-mail to:
ggbellringer@yahoo.com I may have to get help to send the pictures but will send them when I can.

GEM

Posted on Nov 5, 2009, 8:15 AM

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Fart Tax

by phil (no login)

WELLINGTON - New Zealand farmers are being asked to cough up NZ$8.4 million (2.9 million pounds) a year to help reduce greenhouse effects caused by flatulence of their millions of sheep and cattle -- and they say the plan stinks.

Last year New Zealand signed up to the Kyoto Protocol (news - web sites) on global warming (news - web sites) and agreed to reduce production of greenhouse gases which are suspected of being a major cause of climate change.

Now the government plans to introduce a tax to help pay for research into livestock emissions of methane and nitrous oxide, which account for more than half of the country's greenhouse gases.

But farmers argue that reducing greenhouse gas emissions benefits everyone so the costs should be spread across all taxpayers.

"This decision is yet another example of the government's desire to act in the wider public interest but expecting rural New Zealand to pay for its largesse," Federated Farmers President Tom Lambie said.

Most of the livestock emissions come from the methane-rich burps of cows and sheep.

On current livestock numbers of around 46 million sheep and nine million cows, the levy will cost farmers around nine cents a sheep a year, and around 72 cents per cow.

Deer and goats will also be taxed, but pigs and poultry -- paltry contributors to greenhouse emissions by comparison -- are exempted.



Posted on Nov 4, 2009, 12:20 AM

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Gas Tax

by GEM (no login)

Watch out for the Flatulence Cops.

Posted on Nov 4, 2009, 6:54 AM

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global warming

by (no login)

I've noticed 'Global Warming' is now called 'Climate Change'...what 'they' don't want ot acknowledge is the fact that climate change is normal and runs in cycles. In the 70's it was 'Global Cooling' Time magazine reported the world was headed toward another ice age. The so called scientists said it was due to pollution. In the 90's the so called scientists said the world was headed in the opposite direction...due to pollution. Now, here we are in the 21st century and finding out is neither. The drafters of the Kyoto Protocol have fart gas for brains.

Besides, what will money in the coffers of the UN do to stop climate change? Just another tax to fund the Machine.

Posted on Nov 5, 2009, 11:30 AM

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re

by phil (no login)

the whole fart tax thing makes me roll on the floor laughing

Posted on Nov 5, 2009, 8:21 PM

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OOOPS Just Got fined $10 on the Fart Tax

by Bulldawg (no login)



Posted on Nov 6, 2009, 1:06 PM

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Pitutary Tumor

by Bulldawg (no login)

Does anybody have information on pitutary tumors? Odds are I might have one. MRI scheduled Monday week.

Posted on Nov 2, 2009, 10:53 AM

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prolactinoma

by phil (no login)

I have a friend that has a prolactinoma
depends on how long you have had it how removeable it is
wheter or not cancerous
options surgery, radiation

the person I know is still alive five years later

Posted on Nov 2, 2009, 8:58 PM

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Re: prolactinoma

by (Login patlittlejohn)
Moderators

Bulldawg,

Keep the faith, Dear. I think that is what my close friend had back in the mid 90's and he is completely well.

We are praying for you.




Posted on Nov 3, 2009, 6:00 AM

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what

by phil (no login)

what got you here symptoms, blood test ?

Posted on Nov 3, 2009, 10:45 AM

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What got me here

by Bulldawg (no login)

After much blood work (one such test was drawn by Vald the Impeller's wife)testestrone level low all other levels normal which is abnormal that they are normal. The endocrinologist wants to do a MRI on my brain. I've looked on the internet and its says that a tumor might be the culprit. other symptoms include:

Sllep Apnea
Excess sweating
skin tags
colon polps
headaches
obesity in mid section (I always thought I had furniture disease. My chest fell in my drawers)
restless leg
HOT FLASHES AT NIGHT
Male menopause
depression
Decreased stamina
easly fatigued

Any thoughts?


Posted on Nov 3, 2009, 3:33 PM

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prolactin

by phil (no login)

did they check prolactin blood level

Autopsy studies indicate that 6-25% of the U. S. population have small pituitary tumors. Forty percent of these pituitary tumors produce prolactin, but most are not considered clinically significant. Clinically significant pituitary tumors affect the health of approximately 14 out of 100,000 people. In nonselected surgical series, this tumor accounts for approximately 25-30% of all pituitary adenomas. Some growth hormone (GH)–producing tumors also co-secrete prolactin. Microprolactinomas are much more common than macroprolactinomas

Hyperprolactinemia can cause reduced estrogen production in women and reduced testosterone production in men. Although estrogen/testosterone production may be restored after treatment for hyperprolactinemia, even a year or two without estrogen/testosterone can compromise bone strength

Posted on Nov 3, 2009, 7:01 PM

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? Age

by (no login)

I went to see my sleep Dr. on the 20th of Oct., a little over a month from my birthday. I had become curious about the life span of someone with N. He assured me that N. does not shorten our life span in any measurable way. Except for accidental death! We are more prone to accidents. (So be more careful) I told him that I was asking because I am now the oldest person that I know, that has N.
I have never worried about death, but this last birthday has been an obstacle. How due you except something (70) that has never registered in your memory bank. It can not be! In the mirror I may look it, I may be slower doing things, I bruise more often, But my mind still says "it can not be".
I guess as long as I can, I will still kick and fight as I am being drug into advanced age.
You have to pick and chose your battles, and you never want to give in!

Posted on Nov 1, 2009, 5:26 AM

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Happy birthday to GEM

by (Login patlittlejohn)
Moderators

This is such wonderful news~


btw, 70 in our two families is considered on the young side.

Bless you and your wife, and family. Celebrating with you all.

Posted on Nov 1, 2009, 8:51 AM

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jokes

by phil (no login)

HALLOWEEN SKELETON JOKES

--------------------------------------------------------------------------------


When does a skeleton laugh?
When something tickles his funny bone.

Why don't skeletons like parties?
They have no body to dance with.

Who won the skeleton beauty contest?
No body

What do skeletons say before they begin dining?
Bone appetite !

Why should a skeleton drink 10 glasses of milk a day?
It's good for the bones

Why didn't the skeleton cross the road?
He didn't have the guts.

What is a young skeleton?
A skeleteen

What do skeletons like to eat?
Ribs

Which skeleton is a famous comedian from yesteryear?
Red Skeleton

What do you call a stupid skeleton?
A numbskull

What is a skeleton's favorite insult?
The word 'Bonehead'

How does a skeleton get into his house?
With a skeleton key

What do skeletons have nightmares of?
Dogs

What forms of major education do skeletons attend?
High Skull

What did the skeleton get for killing a ghost?
2000 Bone-us points


Posted on Oct 27, 2009, 2:33 PM

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Re: jokes

by (Login patlittlejohn)
Moderators

giggles! we will be housesitting and are requested to give candy to the little nippers.

Posted on Oct 28, 2009, 12:45 AM

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Re: jokes

by (no login)

UGH!

Posted on Oct 28, 2009, 11:35 AM

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Pumpkins

by phil (no login)

Why Pumpkins Are Better Than Men
1. Every year you get a brand new crop to choose from.

2. No matter what your mood is, pumpkins are always ready to greet you with a smile.

3. One usually makes a better pie.

4. They are always on the doorstep there waiting for you!

5. If you don't like the way he looks, you just carve up another face.

6. If he starts smelling up your place, you can just throw him out.

7. From the start you know a pumpkin has an empty, mush filled head to begin with.

8. A pumpkin is turned on (lit-up) only when you want him to be.



Posted on Oct 30, 2009, 1:20 PM

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Re: Pumpkins

by Melody (no login)

LOL.. good ones, Phil.. Happy Halloween, everyone :).

Posted on Oct 31, 2009, 12:14 PM

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Latest to have email hacked

by (no login)

Seems I am the latest to have this happen. Luckily a couple in my address book, their address is no longer good so I got them back.. that's how I know something was sent out. Several in here are in that book.. so anything you receive from me can be deleted .. looks like all they sent out was a link.. and I'm hoping none of you clicked on it. A few of you know my main email address and those of you that don't and want it.. let me know. I apologize for any problem these idiots may cause.

Posted on Oct 20, 2009, 11:42 AM

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Re: Latest to have email hacked

by (Login patlittlejohn)
Moderators

i clicked and avast! caught it and terminated the connection.

please send me your other address, to littlejohnquilt at msn dot com.

Posted on Oct 20, 2009, 5:10 PM

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Nuvigil

by (Login mikenotar46)

Hi all,

Doc took me off of provigil and put me on nuvigil. To my suprise it works quite well for me but I'm getting pretty bad dizzy spells. Is anyone else on it? Did the same happen to you? Does it go away? I'm getting a few more awake hours out of it and would hate to have to give it up.

mike

Posted on Oct 20, 2009, 10:52 AM

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Re: Nuvigil

by (Login patlittlejohn)
Moderators

Mike,

Wonderful that it is giving you extra bits of your life, and as long as supplies last, enjoy!

Dizziness: on the biochemical side, it keeps a more constant level in the system, right? Think you are still adjusting?

Did they change the binders or carriers in it, in order to patent it?


on the practical side, watch where you are (especially doing anything risky like standing up quickly, that sort of thing) and keep away from hard pointy things.


God bless you, Mike. This would be a mercy, if you could have substantial improvement.


Posted on Oct 20, 2009, 11:09 AM

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Pat

by (Login mikenotar46)

Hard pointy things. lol Did you get the package?

Posted on Oct 21, 2009, 6:22 AM

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Re: Pat

by (Login patlittlejohn)
Moderators

no, Mike, no package. Sorry I didnt see your question til today,

I will keep watch and thanks, Dear.

Posted on Oct 23, 2009, 3:58 PM

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re: Nuvigil

by (no login)

My neighbor is on Nuvigil for fibromyalgia, she says no side effects. Maybe she is used to it, since taking provigil. I think side affects are just saved for us Narcoleptics.

Posted on Oct 20, 2009, 3:34 PM

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Re: re: Nuvigil

by Ev (no login)

I was reading something about the US military using Provigil for staying alert without any side effects!
I could argue about that claim! so does this mean non-Narcoleptics really don't get any side effects??
Lucky them ,wouldn't you agree!

Posted on Oct 20, 2009, 3:47 PM

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Re: re: Nuvigil

by (Login mikenotar46)

I had no side effects from provigil but it didn't work very well with my adderall. The Nuvigil seems to complement the Adderall. Doc says he's going to add something else when I see him next. He didn't say what. 2 days now with no dizziness. I have my fingers crossed.

Posted on Oct 21, 2009, 6:18 AM

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flu down the hall

by phil (no login)

a ladie a few doors down the hall has swine flu

here we go

Posted on Oct 19, 2009, 5:44 PM

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Re: flu down the hall

by (Login patlittlejohn)
Moderators

I see what you mean, Phil. We have been waiting for the first troops to appear (not to say "Horsemen")

and we have heard of many deaths in this valley (Mesa actually, not Phoenix proper).

The "Oh well" is kind of kicking in. no possible way Jim or I would consider getting vaccinated (because of his teetering on the verge of death, his cancer is HUGE, probably involving all internal organs, and is in bones, skin and all),

This might be his way out, his hall pass.

Take care, Phil, please remember to post here OFTEN, and we are praying for you, Dear Friend.


















Posted on Oct 20, 2009, 11:05 AM

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Untitled

by Paul Q (no login)

perhaps you have all seen this and it has been posted before, but this is my first experience with it and wow.

http://www.zombieinstitute.net/Rant.htm

and specifically the article that i thought kicked a lot of arse was - http://74.125.95.132/search?q=cache:frXKeD07u5QJ:www.zombieinstitute.net/Documents/Narcolepsy.doc+sugar+narcolepsy&cd=9&hl=en&ct=clnk&gl=us




Posted on Oct 19, 2009, 4:06 PM

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Re: Untitled

by (Login patlittlejohn)
Moderators

I think I am in love with the brain that is doing this thinking:

http://74.125.95.132/search?q=cache:frXKeD07u5QJ:www.zombieinstitute.net/Documents/Narcolepsy.doc+sugar+narcolepsy&cd=9&hl=en&ct=clnk&gl=us


"If I am right about the basics of narcolepsy, then it's pretty clear that the current clinical approach is not only ineffectual but counter-productive.


The diagnostic criteria are arbitrary.

The MSLT measures nothing of value. Time to sleep onset and REM vary over the course of the disease and are directly affected by hormones and what you've eaten.

The spinal taps are pointless. Minute intracranial fluctuations of orexin create the acute symptoms, not the overall level of orexin.

The gene tests are too restrictive. DQB1*0602 is only one of the HLA alleles known to be associated with narcolepsy, and several more are implicated by gluten intolerance.


And the drugs may actually worsen the condition over the long term. Provigil contains gluten. Amphetemines probably accelerate the viral activity. And nobody even knows what Xyrem does...


Perfect.


Is there ANYTHING about narcolepsy that isn't ironic??? "


Posted on Oct 20, 2009, 11:00 AM

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Re: Untitled

by (no login)

I have been thinking about your reply and think the problem with narcolepsy is that...zzzzzzzzzzzzzzzzzzzzzzzzzzzzzzzzzzzzzzzzzzzzzzzzzzzzzzzzzzzzzzzzzzzzzzzzzzzzzzzzzzzzzzzzzzzzzzzzzzzzzzzzzzzzzzzzzzzzzzzzzzzzz...huh?!...........................zzzzzzzzzzzzzz...wh...wha...what?...zzzzzzzzzzzzz

Posted on Oct 20, 2009, 8:03 PM

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Flu Vaccines

by (no login)

Is anyone aware of the fact that flu vaccines contain mercury? The FDA considers iT a 'full' dose.

A 'full' dose? As opposed to what?

As for me, the only times I have gotten the Flu was when I received the Vaccine. I am not saying the vaccine gave me the flu. I think I was less careful when I had the vaccine and, well, got the bug from somewhere, someone, something, somehow...

By The Way, place a roll of paper towels in your bathroom making sure it is 'shielded' from the toilet
(one way to do this is to make sure everyone flushes the toilet ONLY when the seat is down) Using paper towels is so much better than the 'community' hand towel that over time would make any self-respecting petri dish jealous. Make sure to buy the 'pick-a size' paper towels and save money.

If you can, get your bathroom doorknobs and and toilet handles changed over to copper. Study shows copper has less surface contamination of germs, viruses, bacteria it seems they either cannot live on the copper or are repelled by the copper (funny how ancient civilizations used copper plates, bowls, and utensils.

Also, if you send me checks for my birthday, which is this Saturday, please make the checks out to 'Cash'.

Posted on Oct 19, 2009, 11:13 AM

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Re: Flu Vaccines

by (Login patlittlejohn)
Moderators

lol

Posted on Oct 19, 2009, 2:05 PM

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A-OK

by (no login)

As for your B-day, send me your checking acct. #. I will write out some big checks, and send you one.

Posted on Oct 19, 2009, 6:32 PM

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Re: A-OK

by (Login patlittlejohn)
Moderators

Or your off-shore Bahamian account... and please include your password!

Posted on Oct 20, 2009, 10:42 AM

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Re: A-OK

by (no login)

Uh-huh...

Posted on Oct 20, 2009, 7:59 PM

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checks

by (no login)

uh-uh

Posted on Oct 20, 2009, 7:55 PM

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TV

by (no login)

They showed a 20 year old married lady with a horrific problem. Six days after a flu shot she came down with a rare problem. She can no longer walk upright, and her speech is distorted. Yet if she runs she can run at a normal pace and her speech is fine. She can also stand and walk backwareds without any problem. As soon as she slows down, or stops all her problems come back. There is no cure and she can not function. It looks like she is stuck going into cataplexy. As if she was stuck rapidly going in and out. I did not catch the name of the condition, but it makes N a piece of cake. apppppppppppppppppppppppppppppppppppppppppppppppppppppppppppppppppppppppppppppppppppppppppppppppppppppppppppppppppppppppppppppppppppppppppppppppppppppppppppppppppppppppppppppppppppppppppppppppppppppppppppppppppppppppppppppppppppppppppppppppppppppppppppppppppppppppppppppppppppppppppppppppppppppppppppppppppppppppppppppppppppppppppppppppppppppppppppppppppppppppppppppppppppppppppppppppppppppppppppppppppppppppppppppppppppppppppppppppppppppppppppppppppppppppppppppppppppppppppppppppppppppppppppppppppppppppppppppppppppppppppppppppppppppppppppppppppppppppppppppppppppppppppppppppppppppppppppppppppppppppppppppppppppppppppppppppppppppppppppppppppppppppppppppppppppppppppppppppppppppppppppppppppppppppppppppppppppppppppppppppppppppppppppppppppppppppppppppppppppppppppppppppppppppppppppppppppppppppppppppppppppppppppppppppppppppppppppppppppppppppppppppppppppppppppppppppppppppppppppppppppppppppppppppppppppppppppppppppppppppppppppppppppppppppppppppppppppppppppppppppppppppppppppppppppppppppppppppppppppppppppppppppppppppppppppppppppppppppppppppppppppppppppppppppppppppppppppppppppppppppppppppppppppppppppppppppppppppppppppppppppppppppppppppppppppppppppppppppppppppppppppppppppppppppppppppppppppppppppppppppppppppppppppppppppppppppppppppppppppppppppppppppppppppppppppppppppppppppppppppppppppppppppppppppppppppppppppppppppppppppppppppppppppppppppppppppppppppppppppppppppppppppppppppppppppppppppppppppppppppppppppppppppppppppppppppppppppppppppppppppppppppppppppppppppppppppppppppppppppppppppppppppppppppppppppppppppppppppppppppppppppppppppppppppppppppppppppppppppppppppppppppppppppppppppppppppppppppppppppppppppppppppppppppppppppppppppppppppppppppppppppppppppppppppppppppppppppppppppppppppppppppppppppppppppppppppppppppppppppppppppppppppppppppppppppppppppppppppppppppppppppppppppppppppppppppppppppppppppppppppppppppppppppppppppppppppppppppppppppppppppppppppppppppppppppppppppppppppppppppppppppppppppppppppppppppppppppppppppppppppppppppppppppppppppppppppppppppppppppppppppppppppppppppppppppppppppppppppppppppppppppppppppppppppppppppppppppppppppppppppppppppppppppppppppppppppppppppppppppppppppppppppppppppppppppppppppppppppppppppppppppppppppppppppppppppppppppppppppppppppppppppppppppp
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Posted on Oct 18, 2009, 4:41 PM

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re

by phil (no login)

I was at this brain injury meeting with a friend and met this well dressed atractive woman , she was fine till IBM sent her to India, she had to get immunized to go

two months later she comes out of a coma in india they said she went coma on the plane

one shot and you go from big money executive to unemployed for the rest of your life

remember the girl in I woke up in a morgue she said vacine one day narcolepsy the next

Posted on Oct 18, 2009, 5:53 PM

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re:re

by (no login)

I don't want to get started on this vaccine thing again, but sh** happens to some people. I know I had alot of problems when I first had a flu shot many years ago working at the hospital and it wasn't until the next year that I got another flu shot, same symptoms followed. Well I am allergic to mercury, which is used as a preservative in many vaccines. We all have different immune systems and things like that can happen, we just never know it until it happens to us, and it is just a real bummer.

Posted on Oct 18, 2009, 6:26 PM

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smallpox

by phil (no login)

I was not aloud to go to college without getting a smallpox jab, it did not turn out well

next year my brother has to do the same thing and the doc called the school and sain in view of what happend to me he refused to give it to my brother

Posted on Oct 18, 2009, 9:43 PM

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Quantum Physics to the rescue

by Bulldawg (no login)

In theory you can make a computer run on chemicals instead of electricity. When and if this comes to realization you could program it with a persons unique chemical make up and predict how medicine would effect them.

Posted on Oct 19, 2009, 5:17 AM

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OCD, Paranoia,Zero Appetite & Adderall

by Scarlet (no login)

Since starting adderall and not realizing it I have become comepletely OCD with specific things and also have NO appetite what so ever. I have been forcing myself to eat over the last several weeks. I have been living on coffee, cigs, water, and only a few bites of food a day. I know this is not healthy and is a direct result of adderall.

I think my body was becoming a toxic dumping ground! Unable to eat, sleep, or do much else except obsess on the computer, and extreme paranoia!!!!


What other alternatives besides these harsh meds with awful side effects do we have?

Has anyone else had the same side effects from meds and what did you do to cope?


Thanks ~

Posted on Oct 18, 2009, 1:52 PM

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re: meds

by (no login)

I have the same problem on provigil, but I have to break my dose up throughout the day. I take 100 mg at 7 am, 9 am, 1 pm and 3 pm. If I take them as the doc ordered 200 mg at 8 am and 200 mg at 12:00 noon, I am so tired and ready for bed and eight hours sleep by 4 pm, plus I then deal with some anxiety. I just found spacing them out is better for me. As I said before, I have more problems with C, HH, SP when I'm on the provigil, I don't know if its the meds or if its just that I am awake for longer periods of time and rushing to get things done and just tire myself out and then suffer from fatigue, which for me brings on C. We are just in a catch 22 situation and have to figure out the worst of two evils?! I'm sort of an OCD person anyway when it comes to getting things done NOW, not later and it may be a little worse on the meds.

I am on week three, of my morning 4 mile fast walk. I have lost twenty pounds and two inches around my waist. The first week I lost nothing, was really discouraging, but I'm sticking to it. I feel better physically because I've dropped some pounds, but it really tires me out and I come home and take a nap. I am determined and how I love challenges.

Scarlet----you have to eat! I know I don't have much of an appetite either, but you have to get good nutrition for your cells to function. Eat light several times a day. I love cucumbers and raw carrots, cheese, nuts, granola bars and take a one a day vitamin. Drink lots of water. I've also made it a point to eat breakfast, most important meal of the day, it fires up your metabolism. I have a boiled egg, whole grain wheat toast and a glass of orange juice.
Just remember if God leads you to it, he will lead you through it.



Posted on Oct 18, 2009, 3:01 PM

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Thanks Pam!

by Scarlet (no login)

Your encouragement means alot. I am back to eating daily - my husband and Dad have been making sure of it and am beginning to feel better! Thanks again.

Posted on Oct 18, 2009, 4:27 PM

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Re: OCD, Paranoia,Zero Appetite & Adderall

by (no login)

I know two people who are on Adderall and they both take 'vacations' from it on the weekends. A lot of self-discipline is needed in some cases in regard to diet. Make sure the tidbits you do eat are at least fruits and vegetables.

I think coffee and chocolate would be all right to eat because they come from beans which means, if I am right in my reasoning, that they come from legunes. Plus, steak is a very efficient way of getting a lot of vegetation in your diet because that is what cows eat all day and therefore can be considered a vegetable. (For those of you who want to correct me and say that beef comes from steer, I bet you also think hamburgers come from pigs. And for those of you who get upset over those of us who eat animals I just want to say that I am second generation vegetarian i.e., the COW eats the grass...and I eats the COW...

Posted on Oct 19, 2009, 10:55 AM

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Re: OCD, Paranoia,Zero Appetite & Adderall

by (no login)

Well said.. lol.. and hope you have a great birthday on Saturday. I have a post it note next to my computer and set up yahoo to remind me.. but.. just in case.. HAPPY BIRTHDAY!!

Posted on Oct 19, 2009, 11:59 AM

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Love your way of thinking....

by (no login)

Chocolate....legumes? Sounds good to me!!!

Posted on Oct 19, 2009, 2:03 PM

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Re: Love your way of thinking....

by (Login patlittlejohn)
Moderators

Oh Steve, you BEGINNER at rationalization, you!


It's better than that: Olives, chocolate, tomatoes and coffee are all FRUIT! (some would say berries)




Posted on Oct 20, 2009, 10:40 AM

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