As for unknown resources, yes, I would think there could be some. See if there is some group called Family Connection or something similar, which provides information and support for families of children with special needs. Talking to btdt families is very important, too.
Keiki's Makuahine (Keiki's Mom) 51, dh 52
Keiki: b. 2002 after 3 months bedrest
Natural conception following ZIFT/chem. pg
Olivia: b. 1999 d. 1999
28-week preemie, ptl cause unknown
Natural conception after 1 mc
ttc since 1998