My daughter is 8 years old. She has been diagnosed with Fetal Alcohol Syndrome (she's adopted), mental retardation, mild CP and ADHD. She has had an unusual look all of her life and we were always told it was the FAS, but now I heard of another FAS parent who just found out his son actually has TCS. We also adopted her birth brother and he doesn't have the same look or the same bretahing troubles. My daughter looks as though her eyes are "melting" off of her face. They are wide spaced and they dip way down at the outer corners. She does not have caved in cheekbones, but they are flat, not prominent. She has a very recessed lower jaw and her teeth are horribly crowded, top and bottom. It is written on her paperwork that she had a "small cleft palate" when born, but she's had her tonsils and adenoids out (twice on the adenoids and we've been told she needs them out again!) and the doctor said the cleft was so small he could hardly detect it. She has repeated ear infections and we've been told that her ear canals are extremely small. She's had ear tubes. I saw these posts about noisy nighttime breathing and that's one of our biggest concerns. She had a sleep study and that showed that she wasn't having apnea, but I never felt as though she really feel deeply asleep while we were there. Her breathing/snoring is extremely noisy and when I watch her, her chest looks like it's really making an effort to suck in air. She's also started this habit (?) of making this funny noise throughout the day like she's closing off the back of her throat with her tongue and blowing a puff of air out her noseShe saw a cranio facial doctor last March and he has referred her to see the "team", but I'm wondering if this is what they may say she has. He said she could use some surgery to her eyes and jaw and that her palate is a wee bit too long. She just doesn't look as severe as a lot of the photos I see, but I do see her in them. Can a person just have a very mild case of TCS? Thank you so much!!