Greetings from the UK. Our daughter Hazel was born in 1991 with TC, until then we had never heard of it but within days a genetisist had visited and pronounced that I had very faint signs. From about 6 months Hazel was fitted with a Bone-conductive 'alice' band then 5 years ago she went through the ops to fit her with a BaHa and wow what a difference that made. This has given her near-normal (yes you do have to use that word) hearing - but and here's the down side UK-side, if it breaksdown then it is weeks before it gets replaced and in the meantime she uses another alice band.
The best thign we have found is to get involved with whatever support group you can find, we are on the committee of TCSFSG and also make use of the UK National Deaf Children Society and the local Deaf centre. I think one of the hardest things is to accept that there is a problem and to accept whatever you can get hold of in terms of support - don't be afraid to ask for or accept help.