My name is Tim Van Autgaerden and I study at the university of Antwerp in Belgium. For my course of 'medical applications in the technology of the genes' I've had chosen the topic of TCS. This very unknown and rare disease has raised my interest. So anyone who would like to share his opinion or has made major breakthrough in this field on scientific level can always contact me. If there are people who have this disorder or someone known in his family, please let me know. I'm prepared to hear your stories.