Hello and congratulations on you recent son Garrett. I have a 15 month old daughter who was diagnosed with Treacher Collins Syndrome. I have been researching Treacher Collins for over a year now and I belong to a group called pilot parentship. Pilot Parentship is an organization in which you are given phone numbers and addresses to people who have the same syndrome to help educate and prepare us as parents. They will be able to provide a list of names and numbers to the people who are closest to you. This program has been a blessing to me and my family. Malorie and I learn more and more each day. If you wish to obtain the information I already have or the number to our group please e-mail me and give me a list of things you wish to know and I will help you as best as possible. I am also new to this and learning, but we can also learn together...