hello. I read your message while looking for some advice on the web. i too have a son with TCS. His name is Anant and he is now 4 years old. He has bilateral conductive hearing loss, coloboma of the lower eyelids, micrognathia, hypoplasia of the cheekbones etc. But he is growing into a fine boy. When he was born I was devastated. I am from India and Anant was born in England, while my husband was working there. We had no family there and absolutely no experience of dealing with the situation. Anant was my first child.
We have moved to USA in july this year and are finding the medical system totally different. Please advise me how to go around to getting the services if you can.
As a parent who is raising a child with TCS I can say that things look very bleak in the beginning but they only get better. Anant can talk, he is brighter than most kids his age, he has a one yaer old sister and loves her to bits. He is well mannered and loves anything on wheels- cars, buses and his favourite is Trains.
Please write to me if you have any questions that i may be able to help you with.