Hi, My experience has been almost similar to you. My son Anant has moderate tcs. He wears hearing Aids, has related facial features. He is now 4 yrs old and about to start pre school. I have recently moved to USA and am finding it difficult to get him necessary specialist care or in hearing aids management.
Since anant was born he has had feeding problems, even now he is mainly on very liquid diet, takes hours to eat and does not want to eat by himself. When he was little no one would believe me that he had a feeding problem, most specialist would say that there are a lot of babies who are fussy.
I still spend almost 4-5 hours a day feeding him. He still has 2-3 feeds of milk in the night. I think I am up almost whole night. I have a one year old daughter also.
There are lots of information to be shared but Anant is almost awake now. Do try to keep in touch and share information.