I read your letter w/great interest as we are now considering the mandibular distraction for our 8 yr old daughter w/tcs. I have many many question that can only be answered by another parent who has "been there". I called the TC foundation 800 # from your letter today & left a message for Hope. I haven't talked to Hope in a very long time and have in fact misplaced her phone #. The TCFND.org address comes up as not existing when I type it in as a web site---has it been discontinued?
Please contact me either by e-mail- LenaX42@aol.com or feel free to call me anytime--even collect--716-266-6182. I am anxious to talk w/you as soon as possible.
Thanks so much & god bless you and your darling angel.
Lena Kieliszak
120 Sachem Way
Rochester, New York 14617