Unfortunatly life doesn't get easier for you as a parent of a TCS child for a while yet. My son has severe TCS, I have a moderate case. I wake up at night time finding it hard to breath even at the age of 21. I use 3 pillows to help with the breathing. My son has no ears but I am not going for the BAHA ever, I do not believe he would benefit that much from it that it is worth putting him through that. Although my son is under one of the more advanced doctors of TCS knowledge his hearing is still what is consentrated on the most as it is his means of comunication. The fight for your child will go on untill he is old enough to look after himself. The hardest day will be the day he comes home in tears from school and tells you that noone likes him because he looks different. I bid you luck for the future