Hi,
I have ust recently gotten into this support forum, after battling alone with 3 children all with TCS, the eldest is nearly 18, then I have a son who is 14, and another son 11. The oldest two have both had extensive surgery, to reconstruct their faces.This has been done here in Adelaide by Mr David David, and his team in the AMCWC. My Daughter two years ago had her jaw done and is only now in need of cosmetics around the eyes. All three still have the hearing loss and respond well to hearing aids due to conductive loss. I have a huge repitoire of stories to tell, and would be really interested in communicating with you. Thanks for the offer. It has been a very long an lonely 18 years. as you would know the communtity at large does not vie these children with a great deal of compassion and or interest. We are very isolated socially.