The Treacher Collins Family Support Group Forum


Welcome to the Treacher Collins Family Support Group Forum.

The Forum is here for TC Families, Individuals, Professionals or anyone who has an interest in Treacher Collins Syndrome to contact others.

Please use it wisely as it will be monitored and removed if used otherwise!

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  1. My newborn Niece w/TC is to have jaw surgery etc.... , May 4, 2000
    1. respond. , May 8, 2000
      1. Re: Malorie & Emily. , May 8, 2000
        1. Sorry for the late response. , Jun 18, 2000
          1. malorie didn't go to Jamaica. outside, Jun 8, 2003
    2. response to jaw lengthening. , May 15, 2000
      1. My doctor says the same. , Jun 18, 2000
        1. Our 2 Year Old son Brendan is having the OP in Sept.. , Jul 15, 2000
          1. Response to Graham. , Jul 17, 2000
            1. Would like to know more about problems.... , Jul 19, 2000
      2. jaw surgery. , Sep 4, 2000
    3. I am concerned about jaw distraction. , Jul 17, 2000
      1. please contact me. , Oct 26, 2000
  2. Please provide me with all the new information regarding this syndrome. . . .I need to help a young. , May 15, 2000
    1. Re:to questions. , Jun 18, 2000
      1. Any information would be greatly appreciated.... , Jun 19, 2000
        1. Re: to Kimberly Gilbert. , Jun 23, 2000
          1. Untitled. Anonymous, Aug 3, 2000
            1. Not finished yet. , Aug 4, 2000
      2. Untitled. Anonymous, Aug 3, 2000
        1. who is this. , Aug 4, 2000
    2. Special Ed Teacher. , Oct 13, 2000
  3. information about trachs and good surgeons. Joni Meagher, Jun 12, 2000
    1. Reply to Joni regarding trach. TG, Jun 21, 2000
    2. plastic surgeon. , Jul 14, 2000
      1. Dr. McCarthy. , Aug 10, 2000
  4. TCS and DNA testing?!?!?!?!. , Jun 22, 2000
    1. Genetic / DNA Testing. , Jul 10, 2000
    2. Untitled. Anonymous, Dec 26, 2000
    3. Untitled. Anonymous, Dec 26, 2000
    4. Have the Test. , Dec 26, 2000
  5. What are other families' plans w/timing jaw extention surgeries, possible baha placement, ear recons. , Jul 15, 2000
    1. questions. , Aug 10, 2000
      1. thanks for the response. , Aug 14, 2000
    2. tcs. , Sep 26, 2000
  6. Shriner's hospital in Chicago. , Jul 23, 2000
    1. ALTERNITVE CARE AND SECOND OPINION. , Sep 4, 2000
      1. Untitled. , Sep 18, 2000
  7. BAHA - To Becky E. and others. , Aug 12, 2000
  8. ????. , Aug 29, 2000
    1. Response to Christina. , Sep 18, 2000
    2. Response to Christina on Financial Aid. , Sep 18, 2000
  9. parent of 2 year old with "mild"tcs still finding her way!. , Sep 6, 2000
    1. Response to Audrey. , Sep 18, 2000
    2. response to audrey. , Sep 29, 2000
    3. HANG IN THERE. , Oct 16, 2000
    4. TCS. , Dec 26, 2000
  10. Noisy breathing in TCS at night. , Sep 6, 2000
    1. Noisy breathing. Susan Lee, Sep 10, 2000
    2. low dairy diet can sometimes help. , Sep 14, 2000
      1. Noisy Breather. , Sep 18, 2000
    3. Response to David G.. , Sep 18, 2000
    4. noisy breathing. , Dec 26, 2000
 
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