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  • Treacher Collins Syndrome

    • Posted Jul 21, 2005 8:24 AM

      This is to give hope to those who have TCS, which I have. I was born with no absent ears, no cheekbones, drooping eyelids minus bottom eyelids, high roof in my mouth, recessive chin. Another complication was that I also had severe sleep apnea, but now use a CPAT machine, which works great!!! Now after 45 years, my surgeries are drawing to a close. Thanks due to the efforts of one doctor, Dr. John M. Hiebert of Kansas City, MO. It is my hopes and dreams that noone will have to have as many surgeries, which I have had and all of my information on me I had given permission to my doctors to help others with TCS.
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