OMG I am so sorry you are having to go through this.
First thing you need to do is go and see a specialist, but with high FSH you need to be very selective about which specialist you go and see.
In your situation I would see no-one else except Dr Check in NJ. He's the only one I know who has helped someone with very high FSH (164 I think it was) to conceive with her own eggs. Every other specialist will instantly tell you you won't be able to use your own eggs, so there is little point even asking them. Can you get to NJ? Not sure where you are located.
To be completely honest with you, given your history (and my heart aches at the thought of a little 5-year-old having to go through that treatment), it is more likely than not that you will need to look at another source of eggs to have children.
But the most important thing at this point is to go right to the one person who could possibly help you, make sure you leave no stone unturned, before deciding what to do next.
Huge ((hugs)) to you; this is so difficult to deal with, but you have fantastic support right here, so please stick around and let us know how it goes.
Kiwichick (old-timer and board grad)
ttc#1 2+ yrs (starting at age 36), FSH 19.6 dx at age 38.5, DD#1 conceived via IUI/Clomid at 38.7
ttc#2 2.4 years (starting at age 39.11);
FSHs 9.6 (4/05), 9.7 (6/05), 12.4 (10/05), 8.5 (1/06), 18.8 (2/06), 16.4 (4/06), 9.0 (7/06), 12.1 (10/06), 9.0 (4/07 w/E2V), 8.1 (5/07 w/E2V)
Two failed IUIs (Clomid)
IVF#1 (MDL, 300 Gonal F) cancelled, no response (July 2005, age 40.4)
Chemical pg on a break cycle (Aug 2005, age 40.5)
IVF#2 (antagonist, 450 Gonal F, ICSI) - 4 follies, 2 eggs, 2 embies, BFN (Nov 2005, age 40.8)
Chemical pg on a break cycle (Jan 2006, age 40.10)
Chemical pg on a break cycle (March 2006, age nearly 41)
IVF#3 (antagonist, 450 Gonal F + 75 Luveris, ICSI) - 6 follies, 6 eggs, 4 embies, 3 t/f, low level chemical pg/BFN (May 2006, age 41.2)
IVF#4 (antagonist, 450 Gonal F + 75 Luveris, ICSI) - 6 follies, 3 eggs, 3 embies, BFN (Aug 2006, age 41.5)
IVF#5 (antagonist, 450 Gonal F + 75 Luveris) - cancelled, one follie (Nov 2006, age 41.8)
Natural BFP in Feb 2007; m/c @ 7wks (age 41.11)
IVF#6 (low stim antagonist, 150 Gonal F + 75 Luveris, frozen sperm, no ICSI) - 2 follies, 2 eggs, 1 embie, BFN (Apr 2007, age 42.1)
IVF#7 (low stim antagonist, 150 Gonal F + 75 Luveris, with Dex, ICSI, June 2008, age 42.3) - 4 follies, 4 eggs, 4 embies t/f, BFP!
Twin girls born by C-section at 37w1d, 2/12/08 (age 42.11)
Acupuncture, Chinese herbs and supplements, baby aspirin, 5mg folic acid. DH did acu, herbs, vitamins (under duress).
Embie pics and my full story are up at:
Some of my IF learnings are at:
If you prefer a more coherent write-up as an e-book, try this:
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