Jaqueline posted about this below and I thought I would re-phrase it and see if we can get more responses on this over the next couple of days. Usually, we look for successes and I think we don't get the whole picture. I'm heading into cycle #2 (hopefully!) and I think it's good to be realistically optimistic.
So sorry for barging on Jacqueline's topic, but I have been thinking about posting this for a while so I figured this was a good time to bring it up.
Here's what I'm thinking:
Just post highest FSH, how long TTC and current status. And you can just post it on the message title. For example, "24, TTC 2 years, still trying" or "12.5, TTC 1 year, currently pg" or "15, TTC 4 years, moved on to DE"
I've been thinking about what a poster said during a recent board brawl that essentially accused us of being unrealistic in our expectations for a BFP. I thought this would be fair.
Fsh of 15 & 16 at 34. Very poor responder to meds. 3 ivfs. No success. Moved to DE. It won't be possible to get accurate stats. People move on from the boards with & without success, but you might draw out some old timer lurkers like me & get a decent representation of both sides. Those who succeeded & those who moved on.
Switched to Dr Davis @ Cornell
7/03 IVF#6 BFN
9/03 IVF#7 Chem pg
Also saw Dr. Jonathan Scher in NYC who said DH and I had too similar DQ Alphas and that if we ever split I may get pg easier...hmmm who knew???
4/05 Natural pg (m/c 7-8w....triploidy)
5/05 FSH 19.4
1/06 Natural pg (m/c 8w....BO)
4/06 Natural pg............dd 12/20/06
8/07 FSH 17.9
9/07 Natural pg (m/c 10w....trisomy 22)
1/08 FSH 14.9
5/08 FSH/IUI=chem pg
8/08 Switched to BIVF (Dr. Brian Berger) Insurance denied IVF and denied on appeal
10/30/08 +HPT.....Natural PG
01/29/09 Normal amnio
11/18/09 Cycle Day 1 of TTC#3
03/18/10 FSH 23.3.........yikes!
I was a member of this board for 2 yrs before I was successful with protocal that I found on these very same boards. FF 3 yrs and we've been trying for #2. My cycles/body is very different now and have not had my own cycle in almost a year (AF induced by provera). I would be more than happy to answer any questions any ladies have. As you can see from my signature I did a whole bunch of things!
ps private convos are welcomed as well. please let me know!
TTC#1 since Jan 2006
Nov 2006 1 round Clomid + IUI BFN
Feb 2007 1 round Femera (stalled cycle) BFN
July 2007 1 round Gonal F 225 (1 great follie) + IUI BFN
Aug 2007 1 round Gonal F 300 (1 follie almost stalled) +IUI BFN
Oct 2007 1 round clomid + low dose Gonal f + IUI (3 follies) BFP with 2!! (Sadly lost 1 baby at 13 weeks), delivered healthy baby girl at 37 weeks (June 2008).
TTC #1: Low/Hi FSH: 8.3/16.5; Yoga 3x/week, Reiki 1x/mo, Acupuncture pre/post, Mayan Fertility massage month prior BFP
TTC#2 since Jan 2010
Sept 2010 1 round clomid (no follie at day 10)
TTC#2 Low/Hi FSH: 22; intermittent yoga, acupuncture & mayan massage
New appt/cycle with Cooper 10/12/2010
Highest FSH 14 the month I turned 36, I had been with a RE for 5 months at this point. Conceived 5 months later after a high stim IUI, delivered at 37. Leading up to this pregnancy I did accupunture, and numerous supplements.
I went on to have a natural BFP at 39 and delivered at 40. No accu, just opks, fert monitor and temped. Additions that I made on this pregnancy were higher doses coQ10, added resveratrol, and used instead cups, and preseed. I also added p4 cream but didn't do it with consistency so I don't think that made any difference.
When I say TTC for 3+ years, that means actively trying. Add on to that 7 or so years of not really trying but no bc either. I went to an RE at age 37.5 and had hysteroscopy/laparoscopy. Started what would end up being 3 unsuccessful IUI's a few months later. FSH was hovering between 12-15 but then went to 23 so was put on "hold" for a few more months. Started accu, really good/healthy diet, light exercise, wheatgrass...(all things I learned here!)FSH back to 15 (or just below) and first IVF at age 38 which was successful. DS born just after my 39th birthday. I don't know if it would have happened if I had not found this board -really. The information and support that I found here (even as a lurker!) was invaluble.
Great idea for a post!
...is that there doesn't seem to be much of a rhyme or reason to success. And that success is definitely not guaranteed!
Some of this also seems to come down to some practical stuff, like time and money. Perhaps if we all had unlimited time and money we would all eventually get there?
All of the latest research is leaning towards Antral Follicle Count (AFC) as a better predictor of success than FSH. So I'm wondering...would that help us make more sense of why some succeed and some don't?
It's so nice to see responses from so many women. I can see that we all like to hear from others who share our experience. Last night, I was again pestering DH about agreeing to go for a 3rd IVF (we haven't started #2 yet, but I'm a planner!). And DH, who is so wonderful, said of course we can as long as we could figure out reasonable financial arrangements. But then he did ask me when we would say enough is enough and stop trying...and when we would be able to get on with our lives....
My knee-jerk response was..."When we have a baby." Which perhaps is unreasonable, but it is how I feel.
I just wanted to say that I definitely feel that AFC is a more accurate predictor of success. It definitely was in my case. And I also wanted to say that I think it is great that you are thinking about what you will do if IVF 2 doesn't work for you. It takes a lot of the stress off the cycle if you already have your plan in place for what you will do next. I worked exactly that way, planning several steps down the road.
While in general I agree AFC count is another good indicator, my afc's have always been decent (one of my IVFs I actually got 13 eggs), but still I have not had baby. By all the normal counts I should have got preg form one of my 4 IVFs as I started before I was 35, FSH was 11 or less, AFC was good, AMH was normal, estrogen was normal. Yet my eggs seem to be crap.
We lost the 1st baby at 29 weeks but that had nothing to do with high FSh or IVF. success at 39 with IUI, she is now almost 8 months.
Honestly, I don't really think there is a good predictor, my AFC is really bad, they always had a hard time finding my ovaries.
When I was on these boards I felt like most people that were doing IVF, were under 40, and could produce a reasonable number of embryos (3-5) eventually had success, although there was one that did not and moved to DE and had success.
Success at @34 - TTC - 5 years - Highest Known FSH - 10 - (now 20) - AFC - 9-13
April 11 2011, 2:49 PM
RE #3 never tested my FSH when I conceived DD with IVF at 34. Nurse at RE #1-#2 (same practice) found records of my FSH at 10 at age 30-33 (?). (I asked a few weeks ago to see if there were any records - forgot to ask for the date!) When going back to TTC #2 when DD was one year old at age 36, RE #3 tested FSH and it was at 20. He believes that my FSH was DEFINITELY elevated when conceiving DD.
Highest known FSH 16.4--I'm sure it's been higher...
April 12 2011, 6:24 AM
AMH less than .1, poor responder to meds, 4 IUI's, 2 IVF's (one xcelled), TTC for 3 years. Finally successful at 40 years old naturally--after having given up... Can't attribute it to anything in particular--I just think I finally found that golden egg! DS is now 16 months. I still check in and am rooting for all of you girls!!
Success - 34, Highest FSH 20.8, children mentioned
April 13 2011, 8:10 AM
1st dd born 4/20/09 after 18mo ttc (2 m/c)...conceived naturally with lots of holistic practice. 2nd DD born 8/6/10, conceived 6mo after DD #1 was born. Also conceived Naturally...have tested FSH one time since original diagnosis it was 16.