Sorry ladies, this is a venting post.....to follow up on my previous posts, have been on Estinyl for 40+days, FSH dropped to a good level, E2 started to go up, went up 200pts to 294 in 4 days. Had to do Saturday labs, former local RE was last resort but it needed to be done, so...during the exam, he tells me my lining "isn't good" as it had already converted to HH and my uterus has a bunch of cysts in it- he tells me this is from all the extra estrogen I've been taking and that they should clear up with next AF. Also, when he was scanning my R ovary, couldn't find it and made the comment that it's probably so inactive that he can't see it. I told him that techs usually have to push on my abdomen b/c it's far over, he does and he sees a 10mm follicle. Scans the L and sees a 19. My b/w from Sat show that my E2 has dropped, LH has surged and P4 is rising. Ok, I'm feeling positive about this. C.o.oper nurse told me to go again today for labs to confirm O.
B/W confirms O, and follicle on R is gone (the smaller one) and the one on the L is still there. I think local RE reversed the measurements on the report b/c when I asked about O'ing such a small follie, the nurse said it was the 19 and the smaller one was a persistent cyst. Sure enough I look back on the report local RE gave me and it says R ovary 19 L ovary 10. But I swear that wasn't the case during the u/s...but anyway, that's not even the worst of it.
When I left my callback message this morning, I requested that they discuss the cysts that are in my uterus with Dr. Ch.e.c.k. The nurse actually discussed them with C.h.oe and she says that I should have a sonohystogram because they could be interfering with implantation. It's like Groundhog Day!! I'm like, I JUST HAD A HYSTEROSCOPY IN DECEMBER!!! (sorry for all caps). And the nurse is fumbling because NONE of this, the sono results from November, the Hyster results from Dec, are in my file. And she says, well you should have another sono anyway following a hyster to make sure it's all clear. Ladies, I've BD'd 4 times and had 2 vag u/s in the last 4 days . The thought of anything else up in my business honestly makes me cringe.
I'm so sorry to dump here, but this is the only place I feel I have a voice right now. I can't talk to my local RE, he thinks I'm crazy for TTC, I can't talk to the nurses at C.o.oper and I can't talk to my DH right now. I'm afraid he's going to just say "ENOUGH" with all of this, and I can't blame him. He watching me go through all these crazy procedures, getting knocked out, poked, prodded...and not seeing anything positive come from it. I did make a callback appt with C.h.eck for next week but I'm at the end of my rope here. I just needed to get this out. Thx for reading.
I'm so sorry AJ that youre dealing with this. Of course your frustrated. First of all, the fact that they dont have the reports in your file...(holy crap, that would have thrown me OVER THE EDGE) I cant imagine how frustrated and annoyed you must be right now. And the thought of going through another procedure- OMG, I get that too...HSG, SIS, U/S, exams, P4, all this $h!t is endless. To be told when you just had one, that now you need another one- hell no, I would question that.
I feel lately like it's too many doctors. Too many techs, too many hands...is this smart anymore? This is what I ask myself lately. I've been the victim of drs/techs/re's missing things on my procedures and I'm mad. Is this wasting time I can't get back? It's exhausting, you're exhausted. I get it.
I'm a new C ooper patient. I live 2+ hrs away. I havent even done a full natural cycle (the fibroid ruined that for me this would have been my first month) but I have to say this. I have noticed MANY posts on here lately (and even from time past) from people SO BEYOND frustrated with that place, Im starting to wonder if it's good to work with them for very long.
I know Dr C is amazing, I adored him when I met, he knows his stuff... but the more I read and read about all the mishaps that occur there- it makes me extremely nervous about doing a future IVF with them. Frankly (and DH and I only have money to afford just ONE IVF- there can be NO F-ups on their end!!!! ) one of the reasons we were drawn to that place was the price but at WHAT price? If they're not even putting crap in their proper place, if people cant get in touch with them on a weekend...if going to be monitored by an RE that you aren't comfortable with- then is this ALL worth it? I don't know, and I'm sure this isnt helping you at all, but know that you certainly aren't alone in being upset with them. I'm really sorry. I would speak directly to Dr C heck at this point. I wish I had more to say to you that was helpful.
for your response. I feel selfish posting such a negative thread...I try to constantly remind myself that others are in similar to worse situations and that I have a lot to be thankful for. But I just had a mini-meltdown with everything.
You're absolutely right- there are just too many hands in the pot so to speak. I don't want to bash C.o.oper (and I don't think you were) because I know there are many on this board who attribute their success directly to them. And the nurses I've spoken to the last couple of days have been great. But I think there is a huge difference being OOT and in office as a patient. At least if you do monitoring there they are the only ones interpreting your results. I have 3 different people telling me 3 different things. And about recommending another sono, what, am I going to have another hysteroscopy?? I don't think so.
Sighhh. Ok. Think I'll have a glass (or 3) of wine and call it a day!
dont feel selfish, you have every right to be upset. its a big deal. it's your time, money, sanity and not to mention unnecessary stress. I totally agree, being an OOT patient is very difficult, very stressful. just the stress of "are they going to get the results by 3" makes me crazy.
you said it- too many hands in the pot. i always say to DH we need to relocate to NJ for a few months til a bfp then we can come back home. of course thats not realistic. it's too many diagnosis' explanations, etc from every direction. its too much. too much!!
wine sounds like a good idea. decompress tonight.
I can relate to how you feel. I'm amazed that you are able to b-dance even. All this examination routine by itself, and then all the hope that goes up and down.
Some homeopath asked me - first question, first appointment - 'Do you have a plan B? If this doesn't work out I mean?' I was all upset. PLAN B?? What does she think I'm here for and all.. She said 'I'm only asking this to give you some peace of mind - it'll relax you to not be so focused'. I never went back to her.
You know what? I'm starting to think she's right. Maybe driving ourselves crazy WON'T make things better.
But then again, who can help it?
I've read through all German forums, women who drove themselves nuts eventually got pregnant (some of them). And.. they say even in Worldwar II women got pregnant - and that must have been SOME stress.
My friend said 'don't take yourself so serious, let things happen'. Great, she has a kid. It just worked for her.
What am I trying to say.. ?
You're not alone.
I'm sorry you had to go through this. They are so disorganized and it becomes hard especially when we are cycling and in this constant state of stress. I've done a hyst at Co.oper before and they never told me to repeat afterwards with a sono. Hope the venting helped and you feel better tmw.
I'm definitely not doing another sono. I think the nurse was caught off guard when I told her I just had one and a hyster to boot. In this case I hope the local RE is correct and the cysts will dissolve on their own. And if they don't, then maybe that will be a sign...
Hugs to you-
It is frustrating to be an OOT patient. I have a call back with C.heck on Thurs and I am curious what he has to say about my disaster of a cycle. I also ended up with some type of infection but have no idea what it was. Being an OOT IVF patient, it was like no man's land and I didn't belong to anyone to help me post IVFs. They told me to get it check locally, prob a UTI. Well, test was negative for UTI but pain subsided once I was on nitofur. Mystery infection.. When I called to say I was in pain a week later, I had to tell the nurse how I bled a lot during IVF, could they have nicked something. It was like she wasn't even looking at my file until I said that. Anyway, I get your frustration. I have no idea what I am going to do but I am tired of all the tests. I'm trying to schedule a sonoghystogram for later this week myself per their orders. Intersting to see if the results end up in my file...
Yikes Mrs. McIrish,
I'm so sorry about your infection. It's so hard to take orders from Co.o.per and give to others to follow- you just never know what gets lost in translation and everyone has their own take on it. I hope you get some good answers during your callback.
Because I knew right after the sono that I would need a hyster C.o.oper told me to schedule a surgical consult with someone local. I never thought to double check that they received the actual report. Live and learn I guess! Luckily the imaging center can fax it to them tomorrow and I will definitely follow up!!
I had an HSG done locally last year and told the local OB-GYN to fax my results. Dr. C never got them which was completely frustrating since we had driven 10+ hours to see him.
Even with my recent cycle, the local RE told me and C.oopers that I had 5 follicles. When we got there for the procedure, I had only one.
In that same cycle, the local RE didn't even send C.oopers my results because they "assumed" that the fax machine sent them. They didn't even follow up with the machine to make sure it went through. DH reamed them out that we had both local REs calling us back.
Sometimes it's hard to blame C... and sometimes it's hard to blame the local RE... I've given up trying to blame anyone... I just work hard at making sure everybody gets their results when they need them and hope that they are as accurate as possible.
But yeah... it can feel like a wild goose chase... "are we doing the right thing??"
I'm probably jinxing myself by saying this, but I haven't had an issue with Co.o.per getting my lab results for a few weeks now!! I absolutely hate fax machines. We don't own one, don't want one. We have a scanner/copier and if we need to send something it gets scanned and emailed. So much simpler and easier to trace. But in the end I know I just need to be more vigilant and not feel bad about bothering them to double check that things have been received.
for venting here! Believe me, this is the place to do it. I got so ticked off reading your experience and seriously was having flashbacks to some of my experiences.
First of all, my opinion is to not necessarily listen to Dr. Choe. She made bad decisions on my care a number of times. I would absolutely trust her to do a retrieval and/or a transfer, but not to dictate protocol otherwise. Again, just my opinion, but specifically ask Dr. Check or even Dr. Brasille for guidance regarding the sono.
I've experienced my local (pathetic) fertility clinic indicating follicles on the wrong side. I've also experienced them not finding my right ovary, because, like you, mine is a little hard to see and I have to push down on the abdomen to find it. Cooper never failed to find it, even if it took a little effort. But my local clinic just gave me the "must be nothing happening there" or "there is nothing happening there" rather than expend some effrot to find it. My one and only cycle where I made it to retrieval at Cooper started with my local RE office sending a report to Cooper one Saturday with my follicle on the left and a smaller leftover cyst on the right. Because my E2 was going up nicely and I worried about the local clinic's expertise, I traveled to Cooper that day and had b/w and u/s on Monday. Cooper's u/s tech indicated the follicle (bigger at that point) on the right and the smaller leftover cyst on the left. I'll never forgot seeing the Cooper nurse right after the u/s and her saying delicately "we were a bit confused since the u/s report you got on Saturday showed the follicle on the other side" and "you need to find a better place to get your u/s, like a fertility clinic." DH then said, "it is a fertility clinic - that is why we are traveling up here." The nurse smiled knowlingly. Anyway, I digress and I guess I'm venting a little now. But my point is that I feel your frustration at your local former RE. I would not put much credibility into what they were saying regarding the lining and the "cysts". I'd wait until you can get an u/s somewhere better and I'd definitely tell Dr. Check that you question the skill of the person who did your local u/s.
I'm hoping that you won't have to worry about any of this stuff next cycle because you will have gotten a BFP this cycle. You did have a great E2 level, you BD'd, and you confirmed ovulation. So, you have a reason to feel positive about all that.
You're response really means a lot. It's crazy some of the same issues we've had...I saw the cysts or whatever they are on the u/s screen- they looked like a bunch of small little black bubbles. I really think it's because of the Estinyl. I was on it for a long time, longer than I thought they would keep me on it. Hoping the RE was right and they will flush out with AF. But now I'm nervous about taking Estrace and keeping the estrogen level elevated for the 2WW, wondering if that will have a negative effect.
Sometimes with Co.oper you just have to. Being an OOT patient is definitely difficult! I hope you get it all straightened out, I think every OOT Cooper patient has been in your shoes and knows exactly what you're going through. GL!
Totally agree with PPs on venting- if you need to vent, that's what we're all here for! It is so SO frustrating coordinating all of this crap, especially when it feels like no one is really cooperating. Sending best wishes AJ!