Dear High FSH sisters:
I have been on hiatus from the boards for awhile- here is our success story which has been posted in bits and pieces but I guess it’s never been put all together, sorry.
It was a long road, but we made it, and Jonathan will be one year old next month. While I am still breastfeeding, I have spotted a few times and also had AF 3 times; maybe we will have another success someday. I turned 28 yesterday and our tentative plan is to try again until I’m 30. If I’m still O’ing- then maybe longer – if not, we’ll move on to adoption.
The Short story:
At 25, probably went through perimeno for about a year and half before dx w/ POF; my obgyn attributed my irregular cycle to going off of the pill & then stress. Yeah- sure; I had to ask him for the round of hormone tests & he fell off his chair when the results came in.
I was dx with POF April/May 2002 with highest FSH of 164 and was given the DE speech, etc. I moved on to Cooper/Dr Check and O'd 6 times in a year and a half on low dose estrogen (estinyl estradiol) to bring down my FSH. Had b/w taken at least once a week, if not twice during that time to monitor any e2 rise. My O'ing was very sporadic - CD5, CD23, etc etc ... also, my left ovary doesn't do much; 5 out of 6 follies were from the right ovary. There were no other reasons or complications found with my POF such as immune issues & I had a clear HSG. no MF.
3 of the "cycles" were BFN's
2 were chemical pregnancies
egg #6 was THE ONE !
We found out upon having my immune and thyroid b/w redrawn the recommended year later that my TSH had gone up a bit (up to 5.1 from 2.39 in a year- goes along with POF usually)- so I am on low dose synthroid to manage my thyroid hormones and this was the 1st cycle where everything "clicked."
I did try injectables along the way - which did nothing to bring about a follie. Follistim did work in boosting a follie I already had, but that ended in a chem. pg. Tried clomid twice and that did nothing except give me a 33mm estrogen producing cyst which followed with 5-6 mos. of no O'ing.
I didn't make many dietary changes... ate a little less dairy and meats ... tried ginko biloba but it made me nuts, and I never really drink caffeine anyway. I exercised a little bit, but nothing compared to people who say they actually exercise! Oh, and we got a puppy
so, there's the story in a nutshell. hope it's helpful in some way. Bottom line- don't let them tell you it's impossible, because it's not! If you’re willing to try, try – you’ll never know unless you know you’ve traveled the road.
best,
Michellee
POFER25@hotmail.com
The Long Story:
April 30th 2002: FSH 144.9 then 164
May 8th: FSH 145.6
May 16th: POF dx and Prempro HRT through 5/30/02
May 30th: Check consult
June 1: AF showed up- possibly from HRT
June 2: FSH 92 (estrogen in Prempro helped bring it down)
Put on estinyl (.02)subsequent weeks in June FSH: 67, 55
Estinyl (.04); FSH 42, 27
No AF by July 2nd, went on provera & (.02) estinyl for 13 days to bring on cycle
July 2002, don't know the size- I think it was possibly less than 10mm??, and was a chemical pregnancy, baseline FSH 40.6, O'd on CD25 with FSH 16, E2 was 115 - had taken 1-2 estinyl this cycle
Sept 2002, 15mm, BFN, baseline FSH 59, O'd on CD 23 with FSH 21.5 and E2 was 158, had Hcg trigger shot
Oct 2002, 18.7 mm, BFN, baseline FSH 9.6, O'd on CD5 ! E2 was 207, had Hcg trigger shot
November- Jan. a couple rounds of Clomid, no O
Jan. 2003, 23mm, BFN, baseline FSH 2.6, e2 366 with 33mm cyst (from clomid), O'd on CD10 with 23mm follie and e2 172
Feb. 2003 - more clomid, no O
March-April 2003 - Gonal F 1 amp x 7days, no O
May 2003, 18.3mm, chemical pregnancy, baseline FSH 11.9, 1 amp follistim on CD10 for 3 days, CD 13 FSH 11.3, e2 398, follie 18.3 mm, hCG trigger shot
***TSH level up to 5.1 from 2.39 in a year, started synthroid
June 2003, baseline FSH 33.5, CD 9 FSH 10.2, e2 129, CD10 FSH 9.2, e2 was 157, CD 12 surge FSH 23.8, LH 63.9, e2 128 with 15mm follie, no hcg
trigger, CD 14 - u/s - unsure if it released...
+ HPT on 7/10/03, b/w beta 273 on 7/11/03
remained on estrace through 10 weeks and on prometrium through 24 weeks (when admitted to hospital)
Started with an irregular shaped gestational sac - then a subchorionic hematoma through 16 weeks. My water started "leaking" around 24 weeks and I was on complete bedrest in the hospital for 8 weeks- starting at week 25.
Baby Jonathan was born at 33.5 weeks & stayed in the NICU for 2 weeks to learn how to eat.
He has made everything beautiful in its time. He has also set eternity in the hearts of men; yet they cannot fathom what God has done from beginning to end.
Ecclesiastes 3:11
Posted on Jan 14, 2005, 9:51 AM from IP address 209.102.237.238
