At around puberty (12-13), I developed severe phimosis - this all stemmed from what seemed like a small purple 'clot' in my foreskin, which seemed to develop into the very common fibrous white ring that stopped the foreskin retracting - pretty much exactly like this:
The white BXO tissue soon spread to my glans, most notably right next to my urethal opening, although I'm unsure if it the scar tissue went down inside the uretha. I spent time everyday stretching, trying to widen the ring so I could at least retract my skin while flaccid. I also braved a visit to the doctors who arranged me to have a circumcision. I cancelled this operation at the last minute, not because I didn't want it but I didn't want my family to know about this condition - pretty stupid of me, I know.
I'm now 23, and my condition has changed vastly, but I'm unsure whether it's the BXO reversing or halting or simply a more advanced stage of BXO. The white fibrous ring has completely disappeared (or at least gone away from view...), although retraction is minimal when I have an erection. I have a few large concerns however - most notably that my glans has now fused to my foreskin - completely seamless on one side. This side happens to be the part where the frenulum is, although mine appears to have been destroyed by this BXO - all that's there now is foreskin and glans. My glans also has a very washed out appearance and has blotchy discolorations, along with occasional sore red lesions.
Since I had this BXO/Phimosis, it's been very difficult to urinate standing - initially because of the ballooning, but now it seems like the stream isn't 'consistent' and will be very messy, so I tend to sit down which it not only embarrassing but impractical. I have seem to have fairly soft erections, which seems like it's because the penis isn't 'free' to expand, and I also have some issues with premature ejaculation - possibly because of increased pressure?
I don't know what to do from here - I've been to my doctor who's only advice was to 'rip off the adhesion', even though it is literally now part of my glans. I'm very concerned about the possibility of developing penile cancer, and I just want to live a normal life. Can you guys offer some advice?
I spent a lot of time online trying to find a picture that looks like my penis but I can't at all, so here's one I took - sorry if this is not allowed.