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We are a group of friends who have come together because we share the common bond of caring for someone who has Trisomy 21. We are here to share therapy tips, medical issues, laughs, accomplishments and yes, even frustrations. We embrace what Trisomy 21 has brought into our lives. We feel that it has taught us to appreciate the true meaning of life. We count our children as blessings! We will fiercely protect them and fight for their lives to be valued just as all other peoples' are. We share our pictures, our stories and our hearts here not only to provide friendship and support for each other, but also in the hopes that others will open their minds and their hearts to our unique children and, in turn, make a better world for everyone.

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g-tube help..

June 22 2008 at 10:48 PM

Kay Drakesmom  (Login drakesmom)

Response to Sorry....already I need G-tube help.....


There was a difference in drainage when Drake was up and moving about. From what the Drs. told me that once Drake was healed he would not leak much and not require any type of bandage around the g-tube. Drake's g-tube was miss placed and blocked the enterance to his intestines. He had a specially made g-tube to allow his feeds to pass thru the tube into his intestines. Therefore Drake leaked everyday, when he was getting sick his first sign was extra leakeage. I took white wash cloths (so they could be bleached to sanitize and reuse) cut them in fourths, then cut a slit 1/2 way down one side. I sewed around all of the edges to keep the cloth from unraveling. At the top of the slit I put velcro to close the slit. That way I opened it up put it around the g-tube velcroed it shut, then took a long sleeve of surgilast and put on Drake to hold the cloth in place with out using any tape. Drake is very sensitive to tape on his skin. During the day I would check him and change to keep the cloth dry. Some days he would never need changing, some chancged twice and other days I was constently changing. This also saved on the leakage staining his shirts. If you need I have pictures some where. I can find them and post them. Hope this helps.

Kay mom to Ryan 9, Drake 8 (T/21) and Katelyn 6 1/2

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