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We are a group of friends who have come together because we share the common bond of caring for someone who has Trisomy 21. We are here to share therapy tips, medical issues, laughs, accomplishments and yes, even frustrations. We embrace what Trisomy 21 has brought into our lives. We feel that it has taught us to appreciate the true meaning of life. We count our children as blessings! We will fiercely protect them and fight for their lives to be valued just as all other peoples' are. We share our pictures, our stories and our hearts here not only to provide friendship and support for each other, but also in the hopes that others will open their minds and their hearts to our unique children and, in turn, make a better world for everyone.

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Here is the one that he has.....

June 22 2008 at 11:42 PM
Pam  (Login mom2rhett)

Response to Pam, Glad yall are home! (more)


He will get a mic-key button after 6 weeks. I think the reason they are so worried about the emergency kit being with us at all times is the fact that his holes tend to close over fairly quickly. Everyone was amazed at how fast his chest tube holes closed over. They never really drained after they were pulled like most people. But it's kind of like a PEG tube but it's called a Mic tube. It's sooooo much easier than a NG tube!!

Pam, wife to Andy,
Mom to, Dakota, 12yrs
Hunter, 9 yrs
Chloee, 6 yrs
Rhett , 2yrs (T21)

Check out our blog, just click on the button below!!

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