Trisomy 21 Online Community


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We are a group of friends who have come together because we share the common bond of caring for someone who has Trisomy 21. We are here to share therapy tips, medical issues, laughs, accomplishments and yes, even frustrations. We embrace what Trisomy 21 has brought into our lives. We feel that it has taught us to appreciate the true meaning of life. We count our children as blessings! We will fiercely protect them and fight for their lives to be valued just as all other peoples' are. We share our pictures, our stories and our hearts here not only to provide friendship and support for each other, but also in the hopes that others will open their minds and their hearts to our unique children and, in turn, make a better world for everyone.

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what a sweeeeeet surprise!

June 23 2008 at 12:18 AM
Debbie  (Login Eema6)

Response to We Are H-O-M-E!!


rhett is such a trooper - i'm not surprised that you are home early! and so glad for you and your kids (and dh, too, of course!)

sorry rhett's in some pain; would sensory stuff distract him or bug him? could he stick his hands in a tray or small tub of shaving cream? how about pouring rice/beans or water? even a cloth bag of different textures - silky, rough, bumpy, velvet...finger paint? or pudding paint if he's allowed anything by mouth...just for a distraction... how about music with headphones? bubbles - maybe a bubble blowing machine...easy to turn on flashlight...hopefully these days will pass quickly and he will be back to himself in no time!

sorry, no g-tube advice, but I did find this when I was looking up something else..don't know how current all the products are but it seems to have some good tips.

...can we have a picture of rhett with no n-g tube? pretty please???

Debbie and Binny (10/24/02)

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