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We are a group of friends who have come together because we share the common bond of caring for someone who has Trisomy 21. We are here to share therapy tips, medical issues, laughs, accomplishments and yes, even frustrations. We embrace what Trisomy 21 has brought into our lives. We feel that it has taught us to appreciate the true meaning of life. We count our children as blessings! We will fiercely protect them and fight for their lives to be valued just as all other peoples' are. We share our pictures, our stories and our hearts here not only to provide friendship and support for each other, but also in the hopes that others will open their minds and their hearts to our unique children and, in turn, make a better world for everyone.

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Ben has had a lot of MRI's..

June 26 2008 at 4:39 PM

amy  (Login ntmjbmom)

Response to MRI Advice


due to having brain tumor/brain cancer..but basically I would just have them do the brain and spine at the same time..I would see a neurologist and have them order both. That way you can avoid having to sedate him twice.

They generally give Ben anesthesia that knocks him out as it takes some time..and then a couple hours later, it's over.
I'm all for gathering as much information as possible so that the best, most informed decisions can be made.

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