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We are a group of friends who have come together because we share the common bond of caring for someone who has Trisomy 21. We are here to share therapy tips, medical issues, laughs, accomplishments and yes, even frustrations. We embrace what Trisomy 21 has brought into our lives. We feel that it has taught us to appreciate the true meaning of life. We count our children as blessings! We will fiercely protect them and fight for their lives to be valued just as all other peoples' are. We share our pictures, our stories and our hearts here not only to provide friendship and support for each other, but also in the hopes that others will open their minds and their hearts to our unique children and, in turn, make a better world for everyone.

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hmmm.... well

September 17 2008 at 12:11 AM
Kate & Tommy  (Login kates_champ)

Response to celiac???


Jessica, as I wrote to Naomi below, Tom does not have celiac but I do (diagnosed 4 years ago). First of all, if you suspect celiac, you should not put Joey on a gluten free diet. He needs to be eating gluten for any tests to be valid! Second, has your ped done a blood test to screen for celiac? This is something that can be done right away before seeing the GI.

Celiac is tricky to diagnose just on symptoms... but the blood test is the best first step. You want to be sure because living gluten free is not something you want to do for life based on a suspicion. It's managable and livable.. but I wouldn't do it if I didn't absolutely have to!


mom to: Sean (9), Thomas (6 - T21), Maura & Sarah (twins, 2)

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