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We are a group of friends who have come together because we share the common bond of caring for someone who has Trisomy 21. We are here to share therapy tips, medical issues, laughs, accomplishments and yes, even frustrations. We embrace what Trisomy 21 has brought into our lives. We feel that it has taught us to appreciate the true meaning of life. We count our children as blessings! We will fiercely protect them and fight for their lives to be valued just as all other peoples' are. We share our pictures, our stories and our hearts here not only to provide friendship and support for each other, but also in the hopes that others will open their minds and their hearts to our unique children and, in turn, make a better world for everyone.

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September 17 2008 at 10:02 AM

Amy & Emma  (Login mama2emma)

Response to Well...we thought we were all set...BUT....


Before you send that letter off, read this article from Wrightslaw. When you're communicating with district people, it helps to be very careful of what you say. Using words like "slanderous" and "blatant unwillingness" may actually backfire on you - districts tend to be protective of their own, and you may end up putting them on the defensive against you, rather than bringing them over to your side. I would honestly consider your letter a first "get it off your chest" letter, and use the Wrightslaw guidelines to write a letter that will be more likely to get you what you want.

I know (from experience!) how frustrating this is. I know how badly you want to say these things. But I also want you to succeed, and I don't think this letter will help you do this.

If you want some help, feel free to email me at

Amy & Emma (6 years old!)


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