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We are a group of friends who have come together because we share the common bond of caring for someone who has Trisomy 21. We are here to share therapy tips, medical issues, laughs, accomplishments and yes, even frustrations. We embrace what Trisomy 21 has brought into our lives. We feel that it has taught us to appreciate the true meaning of life. We count our children as blessings! We will fiercely protect them and fight for their lives to be valued just as all other peoples' are. We share our pictures, our stories and our hearts here not only to provide friendship and support for each other, but also in the hopes that others will open their minds and their hearts to our unique children and, in turn, make a better world for everyone.
 

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DS & Autism

January 5 2009 at 5:05 PM
Sandy  (Login sandybeebox)

 

Just wondering if there are parents who could shed some light on a dual diagnosis of ds and autism (specifically aspergers)??

Sometimes I wonder if there is more going on with Jamie than meets the eye. She has a fair amount of socially unacceptable behaviour. We have always chalked it up to "behaviour is communication", but sometimes that just doesnt cut it.

I would hate to think that she has something more going on with her and that we are not recognizing it or getting her the supports she needs.

So.........if anyone can tell me in a nutshell........what lead you to believe your child had autism as well? Jamie is 6 years old. She has fairly good speech, can carry a conversation, can express most of her needs. It is the social development that seems to be the issue.

For example, we have been having bus issues so today we started a reward program for good bus behaviour. She did great until she was less than 1km from home. Then she started choking the boy she was sitting with (he is a friend of hers that she sees every day and knows very well), she was also biting on the hood of his coat. She would not loosen her grip around his neck. The bus driver says the boy was not doing anything to antagonize her either. The driver is awesome with Jamie, very patient, kind and accepting. Her and I talk by phone quite frequently, so the driver is not the issue.

Episodes like these are quite disturbing to me as they come with NO plausible cause.

Thanks

Sandy

Sandy - mom to Carter(8) and Jamie(6)T21

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