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We are a group of friends who have come together because we share the common bond of caring for someone who has Trisomy 21. We are here to share therapy tips, medical issues, laughs, accomplishments and yes, even frustrations. We embrace what Trisomy 21 has brought into our lives. We feel that it has taught us to appreciate the true meaning of life. We count our children as blessings! We will fiercely protect them and fight for their lives to be valued just as all other peoples' are. We share our pictures, our stories and our hearts here not only to provide friendship and support for each other, but also in the hopes that others will open their minds and their hearts to our unique children and, in turn, make a better world for everyone.
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Nash and Brian Skotko really hit it off.....

May 16 2008 at 2:08 PM

Jan (Nash's Mom)  (Login nashtaters)

Brian came to our annual meeting last week, and presented, and Nash really enjoyed meeting him. Brian is so gracious and his whole family came with him, even his sister. He asked that I send a copy of the photo with Nash to him. I did, and here it is on his website.

http://www.brianskotko.com/index.php?option=com_gallery2&Itemid=4

Nash is also really asking about Down syndrome more and started pointing to a self advocate that was there to pick up his STAR award. A really nice gentleman, about 42 that is featured in one of the NDSC "More Alike Than Different" promotional piece. Nash pointed at him in the audience and said "Look"! I said yes, do you want to meet him? Nash said "Yes, Down syndrome too" and ran to him. lol They had quite the nice conversation.



Jan and Nash 7!
http://mauzysmusings.blogspot.com



click here to go to Gifts

 
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AuthorReply
Tamara
(Login shawensmom)

Re: Nash and Brian Skotko really hit it off.....

May 16 2008, 5:55 PM 

Cute picture. Shawen won't even acknowledge that he has Down syndrome - not sure what's up about it. I've always tried to approach it matter-of-factly and discuss it freely.

Sometimes I think he just really doesn't care - which might not be a bad thing ... Not sure - But I always wonder when I hear about kids who acknowledge it -

Tamara

 
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(Login maxnemmasmom)

Jan that's awesome.

May 16 2008, 7:54 PM 

Brian is our keynote speaker at our conference next year. I'm looking forward to it. I think it's great that Nash is identifying with other people that have DS. That is my wish for Max as he gets older.

Cris,Emma(7),Max(3),and Sam(2)

 
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(Login mom2rhett)

That's an ADORABLE picture!!!

May 16 2008, 11:19 PM 

Nash is getting soooo big, and he is one smart kiddo, he must get it from his dad....I ah mean his mom......


================================Running!

Pam, wife to Andy,
Mom to, Dakota, 12yrs
Hunter, 9 yrs
Chloee, 6 yrs
Rhett , 2yrs (T21)

Check out our blog, just click on the button below!!















 
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becca
(Login Sammismom)

Re: Nash and Brian Skotko really hit it off.....

May 17 2008, 8:31 AM 

Adorable photo! I find it so interesting to hear about kids beginning to have that self-awareness and the understanding of Ds, and I've wondered at what age they begin to acknowledge it. I would absolutely love for Sammi to become a self-advocate.

becca
www.thebatesmotel3.blogspot.com
www.flickr.com/photos/bateminx


 
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Naomi
(Login artist30)

Jan, question for you....

May 17 2008, 9:55 AM 

Does Brian have DS? Maybe I read it wrong, but it sounds like Nash is saying Brian has DS too? I'm confused because I don't see it, curious. Nash IS SOOOOOO CUTE!!!!! I can't get enough of his adorable face! He's so smart too! You go Nash!!!!

 
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(Login LisaLisa627)

Very cool!

May 17 2008, 3:00 PM 

That is great that you were able to meet him and that Nash was pictured with him! I sure hope if we move to MA that I can meet him one day too!

And I just know that Nash is going to be an amazing advocate for all people with T21!

Hugs!

Lisa

http://photobucket.com/albums/v442/LisaLisa627/


 
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(Login momtoelliotandnora)

Re: Nash and Brian Skotko really hit it off.....

May 18 2008, 10:10 AM 

That's a wonderful photo, Jan! And, GO NASH!!


Michelle - momma to Nora (2-12-02), Elliot (8-8-06 Ds), and Isaac (9-7-07)

Peek at Elliot's blog:
http://elliotsexpeditions.blogspot.com





 
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