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We are a group of friends who have come together because we share the common bond of caring for someone who has Trisomy 21. We are here to share therapy tips, medical issues, laughs, accomplishments and yes, even frustrations. We embrace what Trisomy 21 has brought into our lives. We feel that it has taught us to appreciate the true meaning of life. We count our children as blessings! We will fiercely protect them and fight for their lives to be valued just as all other peoples' are. We share our pictures, our stories and our hearts here not only to provide friendship and support for each other, but also in the hopes that others will open their minds and their hearts to our unique children and, in turn, make a better world for everyone.

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Elliot refuses to eat – HELP!

June 18 2008 at 5:10 PM

Michelle  (Login momtoelliotandnora)

We’re REALLY struggling here. Our OT through EI is trying – our OT at a private group is trying, all to no avail.

I try to feed the boys together so Elliot can witness Isaac shoving everything under the sun into his mouth. He just laughs, like it is a game. When I even get near Elliot’s mouth with the spoon he shudders, then screams. I have all of the tools: the funny little stick with a sponge on the end; the thing that resembles a thimble; etc. I have even tried “smell therapy” as one OT put it. Nothing. And self-feeding is a joke – he throws the food across the room, even things that you would assume a child of his age would really like and wouldn’t often get. The kid is going to turn into a bottle of Pediasure.


PS – We are on a waiting list for speech therapy. That is all that we have not tried.

Michelle - momma to Nora (2-12-02), Elliot (8-8-06 Ds), and Isaac (9-7-07)

Peek at Elliot's blog:

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Shannon **Gabi's Mom**
(Login ShanGraham)

That sounds so much like my Preston!

June 18 2008, 5:24 PM 

You described Preston to a tee. I recently got a lot of advice from a bunch of people through the Picky Eaters Club offered at In The Life of a Child. Maybe it will help you. Here is the link to the only 2 editions so far: (Be sure to follow the links to the other blogs and read the comments because people have all sorts of tips.)

And these were my contributions (or desperate pleas for help on my blog for The Picky Eaters Club):


Wife to Ryan & mom to Jeremy-15, Gabriella (Gabi)-8, & Preston- 1 Year old!! & stepmom to Christopher-13 & Anthony-11

Check out our Blogs:

Click Here to Go to Gabi's Heart Blog (Our story of finding out her diagnosis and her cardiac surgery)
Click Here to Visit Gabi's World with frequent updates!

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(Login momtoelliotandnora)

Oh yay...

June 18 2008, 6:28 PM 

cannot wait to check this out. You're a dear. Thanks so much!

Michelle - momma to Nora (2-12-02), Elliot (8-8-06 Ds), and Isaac (9-7-07)

Peek at Elliot's blog:

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(Login abbysmommy)

I can only tell you what helped us

June 18 2008, 5:39 PM 

No idea if they'll help you or not, but here goes.

Is he on reflux meds? If so, the right ones? Until Abby got on Prevacid, she refused anything in her mouth.

Another biggie for us was constipation. We started giving her a tsp of maalox each day to keep her moving so that she was comfortable.

The third one for us was HUGE. Abby is 33 months old, and has now been off formula for only 2 weeks. It turns out that she has a milk protein (and soy protein) intolerance. We realized that she couldn't tolerate milk (she'd throw up milk or pediasure) when we were trying to reduce her formula intake. I talked to her allergist (we see him for her asthma), and he said she has enterocolitis and that she needs to be off all milk (and as it turns out, all soy) for 18 months and then she should have outgrown her intolerance. WOW has it made a difference. She actually EATS now. We had been giving her Good Start pretty much since birth and she never seemed to have a problem with it, but obviously she did.

I hope you find something that works. It's sooooo hard.


Mommy to AJ (4 yrs) and Abby - T21 (9-14-05)

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(Login momtoelliotandnora)

Thank you!

June 18 2008, 6:34 PM 

Thanks, Megan.

Yep, Elliot has been on Prevacid for about 18 months, and recently, we stopped (as per the pedi). I wonder if THAT is what's going on.

After his recent spinal untethering surgery, Elliot's constipation has improved dramatically. He can actually have a bowel movement now without a suppository. So, it probably isn't that, but...if he does become backed up, he refuses his Pediasure and actually vomits a bit. We have had him on all sorts of things for constipation in the past...but I do think he's getting better with regard to that.

Not certain about the milk protein intolerance, but who knows...all he eats is Pediasure, but maybe, just maybe, he's dealing with that too.

I appreciate your words of wisdom. Hugs...

Michelle - momma to Nora (2-12-02), Elliot (8-8-06 Ds), and Isaac (9-7-07)

Peek at Elliot's blog:>

This message has been edited by momtoelliotandnora on Jun 18, 2008 6:34 PM

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(Login abbysmommy)

Re: Thank you!

June 18 2008, 8:48 PM 

I'd sure talk to the doc about getting him on the prevacid again!

I really hope you find something that works!!!!


Mommy to AJ (4 yrs) and Abby - T21 (9-14-05)

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