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We are a group of friends who have come together because we share the common bond of caring for someone who has Trisomy 21. We are here to share therapy tips, medical issues, laughs, accomplishments and yes, even frustrations. We embrace what Trisomy 21 has brought into our lives. We feel that it has taught us to appreciate the true meaning of life. We count our children as blessings! We will fiercely protect them and fight for their lives to be valued just as all other peoples' are. We share our pictures, our stories and our hearts here not only to provide friendship and support for each other, but also in the hopes that others will open their minds and their hearts to our unique children and, in turn, make a better world for everyone.
 

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I'm with Karen and have to agree that I still stand by what I have said...

February 29 2004 at 1:25 AM

  (Premier Login mom2mikey)


Response to Some truths about Camille and her family

 
I was going to try to reread the book again and see if it made a difference to how I felt about it. I got through the first 30 pages or so and then stopped. I just do not have any use for the way the situations are presented. Things like thyroid issues are presented as "major health issues". I know the heart issues can be bigger issues, but we have so many on our board who have lived through the surgery or surgeries that I have a hard time swallowing the way its presented here.

I stand most strongly behind my views on adoption and "ownership" of other humans (don't believe in it) and the need for children who are adopted to be able to hold on to their history and to feel good about their history.

I would write more but I've already written it. All in all, I think this book is very poorly put together and it appears to come off as trying to capitalize on these children. I have no doubt that these parents love them and that they are well cared for. I also think that my definition of family is much different. As a mother, I know when my child is having meals... I don't walk in on it and realize it in the middle of it. I wake up in the morning when my child gets up - someone else does not get up for me and go through the morning routine with him. I define family very different from what happens in this family.

Anyway... there is a load more that I could say but I just wanted to note that I still stand behind my thoughts and feelings in regards to the picture this book has presented.

Monica (mommy to FIVE year old Mikey!)
Check out Mikey's picture by clicking here!

You're laughing because I'm different... I'm laughing 'cause you're all the same!

Whoever said silence is golden has never heard the laughter of a child!


 
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