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Eating issues and SPD...please chime in ANY thoughts/experience

May 20 2012 at 1:52 PM
gr8tful1  (Login gr8tful1)

 
As most of you know, DS has had issues with eating since he was itty bitty. He had reflux so bad that we had to feed him when he was drifting off to sleep, otherwise he would refuse all milk except an ounce or two every 5-10 hours. It got to be a real issue about the age of 6 months when he had more volitional control of what he would/wouldn't eat and took fewer naps. So, we started seeing a feeding specialist. She is well known throughout the county as a feeding specialist and is very well versed in sensory processing disorder. Many people bring their children from other states to see her and she trains other specialists all over the county. But, she is very, very costly and our insurance doesn't cover her.

Anyway, DS was doing better with reflux and eating. We dropped down to seeing her once a month and, although he is a picky eater, we thought he was doing pretty good. But at the last visit she said she sees more signs of SPD (she has said this all along, but he was doing really good)and that his oral motor skills are regressing. He has been eating less and avoiding all meats, which he ate in the past. We thought it was just molars coming in (all 4 have come in during the last 2 months) and he has been sick...caught a cold and cough from me. But, he is eating less variety, less volume (stopped all purees and won't eat meat), and lost a couple of ounces. He has also dropped a bottle. He is already tiny, and doesn't have room to lose much weight when he should be gaining.

Anyway, he doesn't seem to have issues with anything else but food. He used to avoid touching things like dirt, etc...and hated noises and bright lights, but he seemed to have got over all that as he got older and his reflux disappeared. He does get overwhelmed with too much food in front of him and swipes away his food alot. But, didn't seem super out-of-the ordinary to me.

Anyway, I guess I am wondering if anyone else has experience with this. Also, we are paying the feeding specialist a fortune out of pocket, and now she wants to see him weekly...that is about $1200.00 a month. So, any help anyone can give us would be great. We tried a therapist in our insurance network, but she didn't help at all. Also, even though the feeding specialist is truly an expert, could it really just be his molars and illness? She only sees him two hours once a month. And usually he is none too happy to be there so doesn't do his most stellar eating. Any thoughts?

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  1. Wow, thats expensive - E&H on May 20, 2012, 4:07 PM
    1. Thanks - gr8tful1 on May 20, 2012, 8:39 PM
     
  2. Can sooooo relate! - aussiehoneygirl on May 20, 2012, 4:30 PM
    1. Hi - gr8tful1 on May 20, 2012, 8:45 PM
     
  3. What part of the country are you in? - Dee S. on May 20, 2012, 5:32 PM
    1. thanks - gr8tful1 on May 20, 2012, 8:47 PM
      1. Try Children's Hospital Again - Dee S. on May 21, 2012, 4:07 AM
     
  4. A few thoughts - demomone on May 20, 2012, 8:08 PM
    1. thanks - gr8tful1 on May 20, 2012, 8:53 PM
      1. Some more advice - demomone on May 21, 2012, 4:59 AM
        1. Never heard of a ped developmental specialist. - Anonymous on May 21, 2012, 6:53 PM
          1. yes..it's a sub-specialty - demomone on May 22, 2012, 5:00 AM
          2. They are hard to get into here! - BlessedThistle on May 22, 2012, 7:59 AM
     
  5. the swiping we have that happening here - THK on May 20, 2012, 10:12 PM
    1. Makes me feel better - gr8tful1 on May 21, 2012, 6:55 PM
     
  6. She sounds like she has a lot to offer. - PAH on May 21, 2012, 7:59 AM
    1. Will answer more later - gr8tful1 on May 21, 2012, 6:58 PM
     
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