that in skimming posts below, I saw mention of a health issue you are dealing with these days. I'm sorry if you've posted about this before, I only really have time to lurk these days & end up missing so much of everyone's daily life. Sorry I haven't offered my support until now. I do hope things are okay for you, that you are getting good care and will be back to 100% soon. I know on a good day, life for you is a juggling act, let alone the added stress of health challenges.
I am thinking of you! ((hugs)).
This message has been edited by shayrose on Aug 17, 2012 9:49 AM
Like shayrose, I only have time these days to skim posts, rarely reply, but I saw the same one she did... and I ditto her sentiments. I miss not participating on the boards and communicating with you and others too
I haven't really posted much about it & I never started a thread on it, other than the initial post, which proved to be the wrong diagnosis. As more people know IRL, I'm reluctant to say too much, but I'm comfortable saying that what they initially thought was LPR is instead an extremely rare condition. I'm the process of multiple tests to lay the groundwork for an out-of-town clinic, where I will be evaluated & treated (surgery & then long-term monitoring).
The good news is that I virtually certainly have a benign, non-systemic form of this condition. If systemic, the median life expectancy is 20 months, approx., & there is no cure. So needless to say, there was a lot of concern initially but things are looking up, to say the least.
And another doctor horror story to add to my long list, of course.
I know you have had something going on and felt I should wait for you to let the news come out. I have been thinking of you. I am glad to hear you have an answer and you are on the good side of what the news could have been. take care and you know you can always email - I may be your medical twin so I can relate
I must have missed it all also. I try to keep up, but obviously am not doing a very good job. I'm. Certainly thrilled that you have the no systemic kind. I wish you well with your upcoming procedures and treatments. Hugs.
I only have a second to write.... Haven't logged in here for ages and just came and found your post. Don't understand what's going on, but it sounds very concerning and like there's still lots of uncertainty. Hope you are ok. Hugs.
I can't imagine how stressful and thought-provoking it must have been for you during the period of diagnosis. Glad it's non-systemic, although the need for surgery, etc., is still a lot to go through. I didn't really think before posting initially and if I outed you, I apologize. Just sort of reacted without thinking, wanting to give you some support. (())
Our home modem broke this morning, so we are without internet service until the end of the week. I'm at my in-laws' house right now, using theirs. I just wanted to let you know, as I won't be able to respond for a while.
Thank you all. It has been a crazy roller coaster, for sure. Until the testing is complete, I shouldn't get over confident, but things are looking better than they initially were, when I was led to believe I had a disease that was fatal & incurable. Not a good place to be with 2 small children, to say the least!