Hello there. I am newly diagnosed with POF in the last few weeks and I am falling apart!! I am 31 years old!! I am in a state of serious disbelief, desperation, and depression. I thought perhaps if I share my story, I may get some help with dealing with this. Here goes...
I was on the pill for 10 years, my husband and I decided in June that I would stop taking it because we would want to start trying in September. Well I wasn't getting my period for a couple of months and I figured my body was trying to regulate itself after being on the pill for so long. I called my OB, took Provera for 10 days to try to induce a period and it didn't work. Then i went in for an US which showed a thin uterine lining and we did hormone levels. That's when my life turned upside down. I found that I had hypothyroidism, not a big deal for me. My FSH was 86. My OB gave me my horrible diagnosis and referred me to an RE. She rechecked my FSH level and just about 2 weeks later it was 170. I have been started on estrogen and progesterone. I have been taking them because I have such horrible hot flashes. But I have read that the estrogen would bring down my FSH levels which may not give me a chance of ovulating. Anyone else here of this? I feel that my RE has given me little to no hope of conceiving of my own- about a 5% chance. Also that my levels are so high- beyond medication to help stimulate any follicle production. I see my RE again in a few weeks when she'll have some genetic testing results back. I have an appointment with a psychologist tomorrow who will hopefully help me a little and help me figure out how I am going to break this news to our families.
I haven't been able to stop crying for days, haven't been able to sleep and I have been ridiculously unproductive. I think I am in deep need for some depression meds. One of the hardest things has been that many people know what my time frame for wanting to start having kids was, so it is talked about all the time- how I should be having some little one soon. It is killing me!!! I haven't told anyone and really want to keep it known just within the family. So I don't know how I am going to keep dealing with all of these comments.
We of course are thinking of our alternate options- donor egg and adoption. My husband has been the best, I couldn't be more thankful for his response in all of this. I still just feel very alone however, especially when I see so many people I know pregnant or talking of their plans for pregnancy. My heart goes out to all of you who are also having an infertility problems. Thankyou for reading this.
Don't give up hope. You are fairly young, so you have age on your side. My opinion would be to seek another opinion, or maybe a third. This experience is tough, but you must not let it overtake your life. Keep visiting these forums if you feel it helps. I think its wonderful that you've decided to seek out counseling. Good luck.
Hi Ilicha. I was hearing almost my story from you. I'm 31, had my 'time period of having a baby announced and talked about'- our families/friends hopeful etc etc. And then one fine day, I went to get checked - diagnosed with blocked tubes, septated uterus and to top it all, extremely high fsh. My first bloodwork showed low fsh but the high estrodiol was suppressing it. Which means - POF at any rate. I'm completely shattered too - now thinking about donor eggs- my chances are less than 1% with all the other problems.
Wished to share my own experience with you - completely understand what you're going through. Hope we can redirect our lives somehow.
sorry that you are going thru this....i went thru the same ordeal last year. i also have hypothyroid and high fsh and your story sounds very similar to mine. i am newly pg after a year of being monitored by a local RE...go to new high fsh board and search "highest fsh 93 and pg". You are not alone. Let me know if you have any ?s.