Hi, my daughter Ayla is going to be starting mtx next weekend. We just saw her Dr. yesterday and needless to say, it did not go to well. Ayla had three joint injections in early june and at first everything was great. Her knee is still doing great with no swelling. Her ankle and elbow started swelling again a couple of weeks after the injections. They now stay swollen and she is limping again. She just turned two on Sunday and she is beginning to tell me that her ankle hurts. She points to it and says hurt. It just breaks my heart and I am just very down and depressed right now watching her go through this. I can barely keep back the tears on a day to day basis. Im sure you ALL know how I feel. The bad news is that we have noticed that her neck is stiff at times. It is not all of the time but on occasions. Her lab work is still very bad... sed rate in 60's, hemoglobin 10..etc..she cries ALOT, I can tell that she does not feel well , and she seems so frail to me....anyway, the Dr. said now her symptons are looking more like poly instead of pauciarticular and he thinks we need to start on mtx.(she was diagnosed at 18 months) She is on naproxen as of now. We are going to try the oral route first and if this doesnt help, he wants us to try the injections. I have been reading all of the posts about mtx and I am starting to get a little worried about it.
In the beginning I was very optimistic that this would just go away and everything would go back to normal. Everyone kept telling me it was no big deal and that she would grow out of it. It is now 7 months later and nothing seems to be getting better, no one understands what I go through on a daily basis with her. People on the outside see a sweet, beautiful girl who looks like every other child and they just have no clue..anyway.. I am so sorry for rambling, I am just very down. Oh, and to add to everything, at her eye appt also this week, the DR. noticed that she has a lazy eye and so now we are getting glasses. I cried when he told me that she needed glasses.. he prob thought that I was crazy... i know things could be worse, it was just one more thing to worry about..If anyone has any advice, suggestions about the mtx, I would love to hear from you. Thanks for listening!!!!
