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We are a group of friends who have come together because we share the common bond of caring for someone who has Trisomy 21. We are here to share therapy tips, medical issues, laughs, accomplishments and yes, even frustrations. We embrace what Trisomy 21 has brought into our lives. We feel that it has taught us to appreciate the true meaning of life. We count our children as blessings! We will fiercely protect them and fight for their lives to be valued just as all other peoples' are. We share our pictures, our stories and our hearts here not only to provide friendship and support for each other, but also in the hopes that others will open their minds and their hearts to our unique children and, in turn, make a better world for everyone.
 

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Email me privately.... I will send you a photo

February 28 2008 at 10:08 AM
  (Login burnsun)


Response to Thanks, Jane!

 

but they never even gave us the right SS# and the right one was never declared disabled and had I found out before we finalied (which took over 12 months cause of incompetent paperwork on someones part) and it took 8 months to bring her home after matching! URG!!!!!!!!!!! it makes my blood boil..... and you would never believe the things she wouldn't do or they forgot to mention (she had been returened to DFS 3 times from adoptive placements!!! And had 5 actual families in that time and ................. she wouldn't take a bath or ge tin water or eat solid or..... I could go on and on on on!

But in the year and 8 months she has been here........... she has made over 2 years of developmental progress.... our new thing is huge anger issues (came with them.... but we worked on getting her used to people and touching..... now she is snuggle bug and such.... but it was hard hard work............and After three at birth / close to this was a huge surprise!

you can read and see about her and us at http://thegrumpyfamily.blogspot.com/

JAne

 
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