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Anna and HCL -- Episodes

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  1. Relapse Digest - Kyle on Feb 22, 2017, 11:29 AM
    1. Good Luck - Timothy Clune on Feb 22, 2017, 1:56 PM
      1. First and foremost..... - Kyle on Feb 22, 2017, 5:02 PM
        1. Platelets - Tim Clune on Feb 22, 2017, 5:20 PM
          1. Rituxan - Kyle on Feb 22, 2017, 5:52 PM
            1. Rituxan - Timothy Clune on Feb 22, 2017, 7:34 PM
     
  2. Started treatment Digest - Tim Clune on Feb 21, 2017, 12:41 PM
    1. Thoughts are with you! - Anna on Feb 21, 2017, 1:05 PM
      1. All outpatient for me... - Tim Clune on Feb 21, 2017, 1:13 PM
    2. Hang in there! - Linda on Feb 21, 2017, 5:29 PM
    3. Good luck!! - sam1224 on Feb 21, 2017, 6:39 PM
    4. Hi Tim - Rob on Feb 22, 2017, 7:49 AM
      1. Not sure yet on the Rituxan timing - yep, large room, probably 25 chairs - Timothy Clune on Feb 22, 2017, 8:34 AM
        1. Yeah - Rob on Feb 22, 2017, 11:49 AM
    5. Started treatment - Mel on Feb 22, 2017, 11:39 AM
     
  3. medical alert bracelets etc Digest - Carroll on Feb 6, 2017, 9:06 AM
    1. Re: medical alert bracelets etc - Waid on Feb 10, 2017, 9:41 AM
      1. thanks - Carroll on Feb 13, 2017, 6:58 AM
     
  4. Skin cancer & itching - connection to HCL? Digest - Helen on Feb 2, 2017, 10:08 AM
    1. Itching + Rashes - Anna on Feb 2, 2017, 1:15 PM
      1. Have the rashes subsided? - Helen on Feb 2, 2017, 5:31 PM
        1. For the most part - Anna on Feb 2, 2017, 6:21 PM
          1. Just wondering - Helen on Feb 2, 2017, 8:21 PM
            1. Herbal Supplements - Anna on Feb 2, 2017, 9:12 PM
    2. Thinking - Waid on Feb 2, 2017, 7:20 PM
      1. Immune System Post-Treatment - Helen on Feb 2, 2017, 8:09 PM
        1. Re: Immune System Post-Treatment - Waid on Feb 3, 2017, 9:07 AM
    3. BRAF - Carroll on Feb 6, 2017, 9:12 AM
      1. BRAF negative??? - Rob on Feb 7, 2017, 6:21 AM
        1. BRAF Mutation - Helen on Feb 7, 2017, 1:40 PM
          1. BRAFness - Rob on Feb 7, 2017, 6:00 PM
          2. I don't think - Waid on Feb 8, 2017, 4:48 PM
     
  5. Carroll - how are you doing? Digest - Sonny on Feb 1, 2017, 7:51 AM
    1. Yes, how are you doing? - Pat on Feb 1, 2017, 10:51 PM
      1. Hello Sonny/Pat everyone - Carroll on Feb 2, 2017, 6:24 AM
        1. Still watchful waiting - Sonny on Feb 2, 2017, 9:58 AM
          1. Way to go Sonny and Carrol - Pat on Feb 4, 2017, 5:24 PM
            1. thinking of you - Carroll on Feb 6, 2017, 8:55 AM
          2. thumbs up - Carroll on Feb 6, 2017, 8:59 AM
            1. Will wait it out - Sonny on Feb 7, 2017, 9:38 AM
     
  6. Another Cytometry Digest - Helen on Jan 30, 2017, 9:26 AM
    1. Hellen tell us about your gym workout. - Rob on Jan 30, 2017, 3:06 PM
      1. My Workout.... - Helen on Jan 30, 2017, 3:23 PM
        1. Hi Hellen - Rob on Feb 1, 2017, 2:13 PM
          1. Can I? - Pat on Feb 1, 2017, 10:53 PM
            1. In always wonder which comes first.... - Rob on Feb 2, 2017, 8:13 AM
              1. I don't think they're connected.... - Helen on Feb 2, 2017, 9:58 AM
    2. My Cytometry Results - Helen on Feb 5, 2017, 5:46 PM
      1. Sounds like a plan! - Timothy Clune on Feb 6, 2017, 1:38 PM
        1. Thanks! - Helen on Feb 6, 2017, 1:59 PM
     
  7. TO EVERY ONE Digest - SIMONE on Jan 26, 2017, 6:49 AM
    1. I asked in 2003 - Timothy Clune on Jan 26, 2017, 7:03 AM
    2. The problem is... - Rob on Jan 26, 2017, 8:05 AM
    3. Re: TO EVERY ONE - Tokyo HCL on Jan 27, 2017, 1:01 AM
    4. Me - Pat on Feb 1, 2017, 10:36 PM
     
  8. New to the Forum Digest - Stay Positive on Jan 25, 2017, 9:54 AM
    1. Glad the site is helpful - Rob on Jan 25, 2017, 3:49 PM
    2. Welcome - Waid on Jan 25, 2017, 10:16 PM
    3. Greetings! Fellow HCLer - Pat on Feb 1, 2017, 10:18 PM
     
  9. Absolute Neutrophil Count Digest - Helen on Jan 23, 2017, 5:43 PM
    1. What is the percentage of WBC - Timothy Clune on Jan 23, 2017, 6:12 PM
      1. ANC - Helen on Jan 24, 2017, 2:01 PM
        1. Hi Hellen - Rob on Jan 24, 2017, 2:15 PM
          1. ANC - Helen on Jan 24, 2017, 3:40 PM
            1. ANC - Rob on Jan 25, 2017, 3:04 PM
        2. Your counts look to be on track - Timothy Clune on Jan 24, 2017, 6:47 PM
    2. How are your other counts? - Todd on Jan 24, 2017, 6:47 PM
      1. ANC - Helen99 on Jan 25, 2017, 7:25 AM
        1. It sounds like you're in good hands - Waid on Jan 25, 2017, 10:13 PM
          1. Another Flow Cytometry - Helen on Jan 30, 2017, 9:01 AM
          2. Another Flow Cytometry - Helen on Jan 30, 2017, 9:02 AM
            1. Hang in there - Timothy Clune on Jan 30, 2017, 10:14 AM
              1. Thanks! - Helen on Jan 30, 2017, 1:56 PM
                1. Hellen tell us about your gym workout. - Rob on Jan 30, 2017, 3:04 PM
    3. Yes - what a roller coaster life this is - Pat on Feb 1, 2017, 10:04 PM
      1. My thoughts - Todd on Feb 2, 2017, 9:32 AM
     
  10. Hahaha Digest - Rob on Jan 22, 2017, 8:04 AM
    1. Haaaa - Pat on Jan 22, 2017, 12:35 PM
    2. Nice - Timothy Clune on Jan 22, 2017, 12:46 PM
      1. I had a battalion commander in 5th Marines... - Rob on Jan 22, 2017, 7:08 PM
     
  11. Pentostatin (DCF) with a side of Rituxan Digest - Timothy Clune on Jan 20, 2017, 11:13 AM
    1. Sounds like a plan - Rob on Jan 20, 2017, 5:57 PM
      1. 24+ weeks - Timothy Clune on Jan 20, 2017, 6:40 PM
        1. clinical trials are free... - rob on Jan 20, 2017, 8:26 PM
          1. Not free - Timothy Clune on Jan 21, 2017, 6:10 AM
            1. True enough - Rob on Jan 21, 2017, 1:33 PM
    2. Been praying everything is good for tx - finances too - Pat on Jan 22, 2017, 12:34 PM
      1. Thanks! - Timothy Clune on Jan 22, 2017, 12:44 PM
        1. Re: Thanks! - SIMONE on Jan 24, 2017, 9:17 AM
          1. Thanks... me too! - Timothy Clune on Jan 24, 2017, 11:08 AM
     
  12. Food for though: high-fat diet accelerates BRAF V600E mutations? Digest - Jeff on Jan 18, 2017, 5:57 AM
    1. they better hurry up before ... - Rob on Jan 18, 2017, 12:57 PM
    2. An interesting point for researchers - Waid on Jan 18, 2017, 2:02 PM
     
  13. BIOPSYE Digest - simone on Jan 12, 2017, 6:31 AM
    1. May you have a long remission! - Timothy Clune on Jan 12, 2017, 7:07 AM
    2. Congratulations, Simone - Waid on Jan 12, 2017, 11:10 AM
    3. Great news! - Anna on Jan 12, 2017, 12:13 PM
    4. Looks good - Rob on Jan 12, 2017, 6:49 PM
    5. Biopsy - Mel on Jan 13, 2017, 4:56 AM
      1. thank you - simone on Jan 13, 2017, 5:03 AM
    6. Re: BIOPSYE - Anonymous on Jan 14, 2017, 2:22 PM
    7. WOW, Simone - that is Fantastic! - Pat on Jan 22, 2017, 12:26 PM
     
  14. 29 year survivor Digest - Mary Gunter on Jan 11, 2017, 3:35 PM
    1. Good Luck! - Timothy Clune on Jan 11, 2017, 3:50 PM
      1. My Past Treatments - Timothy Clune on Jan 11, 2017, 3:53 PM
        1. Re: My Past Treatments - Mary Gunter on Jan 11, 2017, 4:07 PM
          1. Re: My Past Treatments - Mary Gunter on Jan 11, 2017, 4:22 PM
            1. Thanks Mary - Timothy Clune on Jan 11, 2017, 7:09 PM
    2. Welcome, Mary - Waid on Jan 11, 2017, 4:38 PM
      1. Re: Welcome, Mary - Anonymous on Jan 11, 2017, 5:06 PM
    3. Re: 29 year survivor - simone on Jan 12, 2017, 6:25 AM
    4. Hi Mary, Welcome. And Congratulations on 29 years WOW - Pat on Jan 22, 2017, 12:24 PM
    5. BLESS YOU - Stay Positive on Jan 25, 2017, 9:57 AM
    6. Good luck - Linda on Feb 21, 2017, 5:20 PM
     
  15. Bone Marrow went well - Today's CBC results Digest - Timothy Clune on Jan 9, 2017, 12:06 PM
    1. Glad the BMB-thing went well but you make me feel guilty - Rob on Jan 9, 2017, 2:51 PM
      1. So glad you are getting a good bounce back up! - Timothy Clune on Jan 9, 2017, 3:04 PM
    2. Kreitman and Saven are good people... - Rob on Jan 9, 2017, 3:10 PM
    3. Bone is a bit tender today... - Timothy Clune on Jan 10, 2017, 10:17 AM
      1. Yeah I know wachumean - Rob on Jan 10, 2017, 7:09 PM
        1. Re: Yeah I know wachumean - simone on Jan 11, 2017, 7:13 AM
          1. Sedation - Timothy Clune on Jan 11, 2017, 7:26 AM
            1. Re: Sedation - simone on Jan 12, 2017, 6:26 AM
          2. Good luck Simone - Rob on Jan 11, 2017, 8:00 AM
      2. Which came first? - Waid on Jan 11, 2017, 4:39 PM
        1. I got the room all done / painted before the machines showed up - Timothy Clune on Jan 11, 2017, 7:07 PM
          1. Internet of things - Waid on Jan 12, 2017, 11:16 AM
        2. Re: Which came first? - simone on Jan 12, 2017, 6:27 AM
    4. Praying for everyone - Pat on Jan 22, 2017, 12:18 PM
     
  16. I want to wish everyone a.... Digest - Rob on Dec 30, 2016, 8:02 AM
    1. Thanks Rob... - Timothy Clune on Dec 30, 2016, 9:52 AM
    2. Happy New Year - Waid on Dec 30, 2016, 9:52 AM
      1. Thank you - Rob on Dec 31, 2016, 8:56 AM
     
  17. Enjoy holidays Digest - Mel on Dec 24, 2016, 6:17 AM
  18.  
  19. merry christmas Digest - simone on Dec 22, 2016, 7:04 AM
    1. Merry Christmas Simone - Rob on Dec 22, 2016, 9:03 AM
    2. Right back at you :-) - Timothy Clune on Dec 22, 2016, 9:38 AM
    3. Wishing you the best! - Anna on Dec 22, 2016, 5:09 PM
    4. Not to worry Simone - Pat on Dec 23, 2016, 1:33 PM
     
  20. How yang doin Digest - Mel on Dec 21, 2016, 5:02 AM
    1. Mel I'm doing very fine with a glass of... - Rob on Dec 21, 2016, 12:47 PM
      1. Enjoy - Sonny on Dec 22, 2016, 7:10 PM
     
  21. Todays Lab Results and Consult with my Doctor... Digest - Timothy Clune on Dec 20, 2016, 11:12 AM
    1. Tim? - Rob on Dec 20, 2016, 5:35 PM
      1. Tricare Prime for Retirees - Timothy Clune on Dec 21, 2016, 5:33 AM
    2. You are on my prayer list - Pat on Dec 21, 2016, 5:39 PM
      1. Thanks Pat - Timothy Clune on Dec 22, 2016, 6:34 AM
        1. Wow, energy level is still pretty high - Pat on Dec 23, 2016, 1:30 PM
          1. Yep, HGB is still up, so my energy is good - Yep, fancy LG washer/dryer coming - Timothy Clune on Dec 23, 2016, 3:49 PM
    3. Ibrutinib off trial - Todd on Dec 23, 2016, 2:49 PM
      1. Thanks - Timothy Clune on Dec 23, 2016, 3:40 PM
    4. Since you had - Waid on Dec 26, 2016, 10:07 AM
      1. Risk of Hypogammaglobulinemia - Timothy Clune on Dec 26, 2016, 1:59 PM
        1. Re: Risk of Hypogammaglobulinemia - Waid on Dec 27, 2016, 9:52 AM
          1. Re: Likely True with any MAB - Timothy Clune on Dec 27, 2016, 11:10 AM
    5. New Year Blessings - Paula on Dec 29, 2016, 4:48 PM
      1. Thanks Paula! - Timothy Clune on Dec 29, 2016, 7:45 PM
    6. Good luck - Linda on Dec 30, 2016, 11:07 AM
     
  22. How ya doin Digest - Mel on Dec 19, 2016, 11:38 AM
    1. Mel! - Rob on Dec 20, 2016, 8:53 AM
      1. Good Deal - Timothy Clune on Dec 20, 2016, 11:01 AM
        1. Hi Tim - Rob on Dec 20, 2016, 5:28 PM
    2. Mel Tim n Rob - Pat on Dec 21, 2016, 5:24 PM
     
  23. Newly Diagnosed Digest - Lisa on Dec 4, 2016, 8:19 PM
    1. Hi Lisa - Paula on Dec 5, 2016, 9:18 AM
      1. Thank you Paula - Anonymous on Dec 5, 2016, 11:36 AM
    2. Re: Newly Diagnosed - Anonymous on Dec 6, 2016, 4:39 PM
    3. Welcome, Lisa - Waid on Dec 8, 2016, 7:54 AM
      1. Sounds encouraging - Lisa on Dec 8, 2016, 6:11 PM
    4. Hi Lisa - Pat on Dec 21, 2016, 5:18 PM
     
  24. Carroll have you been checked out for this? Digest - Rob on Nov 28, 2016, 11:45 AM
    1. Not sure - Carroll on Nov 30, 2016, 6:39 PM
      1. This one won't be painful. - Rob on Dec 1, 2016, 11:09 AM
     
  25. Thanks for the gift! Digest - Anna on Nov 24, 2016, 10:34 AM
    1. Love it - Pat on Nov 26, 2016, 5:58 PM
     
  26. Carroll, how is your energy level? Digest - Sonny on Nov 23, 2016, 10:31 AM
    1. Latest - Carroll on Nov 25, 2016, 8:02 PM
      1. Re: Latest - Anna on Nov 25, 2016, 8:45 PM
      2. Internist - Sonny on Nov 26, 2016, 4:45 AM
        1. Yes - Carroll on Nov 30, 2016, 6:47 PM
          1. Best wishes - Sonny on Dec 1, 2016, 4:58 AM
      3. WooHoo, no Hairies for you - Pat on Nov 26, 2016, 6:03 PM
        1. OK start working on that switch - Carroll on Nov 30, 2016, 6:52 PM
      4. Hang in there - Waid on Dec 7, 2016, 11:15 PM
     
  27. Anna, how are your doing ? Digest - Sonny on Nov 23, 2016, 10:28 AM
    1. Complete Remission! - Anna on Nov 24, 2016, 10:27 AM
      1. Congrats !!! - Sonny on Nov 24, 2016, 11:24 AM
      2. WooHoo!!! - Carroll on Nov 25, 2016, 7:56 PM
      3. Congrats, Anna - Waid on Dec 7, 2016, 10:32 PM
      4. Great news! - Linda on Dec 16, 2016, 8:55 AM
     
  28. Thanks Giving Digest - Mel on Nov 23, 2016, 4:14 AM
    1. Right back at you! - Tim Clune on Nov 23, 2016, 1:52 PM
     
  29. For the Wait and Watchers Digest - Sonny on Nov 16, 2016, 7:21 AM
    1. Sonny - Pat on Nov 26, 2016, 6:07 PM
    2. Ratios - Waid on Dec 7, 2016, 10:40 PM
     
  30. CD4 Digest - simone on Nov 16, 2016, 2:08 AM
    1. CD4 Recovery - Tim Clune on Nov 16, 2016, 6:01 AM
      1. Re: CD4 Recovery - simone on Nov 16, 2016, 6:03 AM
        1. CD4 count - Tim Clune on Nov 16, 2016, 6:13 AM
          1. Re: CD4 count - simone on Nov 16, 2016, 6:15 AM
     
  31. Tim: Vemurafenib/Rituxan Digest - Sheepdawg on Nov 15, 2016, 1:26 PM
    1. Thanks Sheep - Tim Clune on Nov 15, 2016, 1:37 PM
    2. Do you have a link to that article? - Todd on Nov 15, 2016, 2:12 PM
      1. Re: Do you have a link to that article? - smone on Nov 15, 2016, 11:09 PM
      2. Here is a link to a summary of vemurafenib/rituximab combo trial - Jeff on Nov 16, 2016, 3:05 AM
        1. Thanks - Todd on Nov 17, 2016, 8:41 AM
    3. Sheep, how are you doing these days? - Pat on Nov 26, 2016, 6:14 PM
     
  32. Pentostatin - who has done it after Cladribine? Digest - Tim Clune on Nov 15, 2016, 9:50 AM
    1. pentostatin - Mel on Nov 15, 2016, 11:14 AM
      1. Thanks Mel - Tim Clune on Nov 15, 2016, 12:16 PM
      2. Re: pentostatin - simone on Nov 15, 2016, 11:14 PM
        1. pentostatin - Mel on Nov 16, 2016, 5:54 AM
          1. pentostatin - Mel on Nov 16, 2016, 5:58 AM
            1. Re: pentostatin - simone on Nov 16, 2016, 6:13 AM
            2. Re: pentostatin - simone on Nov 18, 2016, 2:21 AM
              1. pentostatin - Mel on Nov 18, 2016, 4:50 AM
                1. Re: pentostatin - simone on Nov 18, 2016, 6:44 AM
                  1. pentostatin - Mel on Nov 18, 2016, 7:31 AM
                    1. Re: pentostatin - simone on Nov 18, 2016, 8:34 AM
                      1. pentostatin - Mel on Nov 18, 2016, 1:02 PM
          2. pentostatine - simone on Nov 16, 2016, 6:07 AM
            1. Pentostatin Question - Todd on Nov 16, 2016, 3:25 PM
              1. Re: Pentostatin Question - simone on Nov 17, 2016, 6:11 AM
                1. That's Fast - Tim Clune on Nov 17, 2016, 8:18 AM
                2. Thanks - Todd on Nov 17, 2016, 8:40 AM
    2. For Mel and Tim - Pat on Nov 26, 2016, 6:21 PM
     
  33. Tim, did you see your doc? Digest - Waid on Nov 14, 2016, 11:22 PM
    1. Hey Waid, yep I saw him... maybe another trial is in my future... - Tim Clune on Nov 15, 2016, 5:55 AM
      1. Change 1 - That clinical trial is out - Not accepting HCL patients - Tim Clune on Nov 15, 2016, 8:41 AM
    2. Re: Tim, did you see your doc? - simone on Nov 15, 2016, 8:58 AM
      1. My past... - Tim Clune on Nov 15, 2016, 9:16 AM
        1. Re: My past... - smone on Nov 15, 2016, 11:11 PM
          1. 3/28/2016 Flow Results - Bright CD25 markers - Tim Clune on Nov 16, 2016, 6:09 AM
            1. Re: 3/28/2016 Flow Results - Bright CD25 markers - simone on Nov 16, 2016, 7:43 AM
              1. CD25 negative is Hairy Cell Variant - Waid on Dec 7, 2016, 10:30 PM
    3. See my doctor again Dec 20th - Tim Clune on Nov 21, 2016, 4:50 PM
      1. How are your numbers? - Sonny on Nov 22, 2016, 8:43 AM
        1. 10 Nov 16 Numbers - Tim Clune on Nov 22, 2016, 8:58 AM
          1. Numbers - Sonny on Nov 22, 2016, 3:28 PM
            1. Feel Fine - Tim Clune on Nov 22, 2016, 5:02 PM
              1. No Treatment - Sonny on Nov 22, 2016, 7:31 PM
                1. Sorry - Tim Clune on Nov 22, 2016, 8:40 PM
                  1. No worries - Sonny on Nov 23, 2016, 10:27 AM
     
  34. pentostatine treatment Digest - simone on Nov 11, 2016, 6:49 AM
    1. Glad you are doing so well! - Tim Clune on Nov 11, 2016, 7:06 AM
      1. Re: Glad you are doing so well! - Tim on Nov 15, 2016, 1:00 AM
        1. We'll see - Tim Clune on Nov 15, 2016, 6:04 AM
          1. Re: We'll see - simone on Nov 15, 2016, 7:38 AM
            1. Ibrutinib - Tim Clune on Nov 15, 2016, 9:07 AM
              1. Re: Ibrutinib - simone on Nov 15, 2016, 11:18 PM
                1. I was 36 when I started - Tim Clune on Nov 16, 2016, 5:57 AM
                  1. Re: I was 36 when I started - simone on Nov 16, 2016, 6:10 AM
    2. Hi Simone! - Rob on Nov 11, 2016, 4:55 PM
     
  35. Anna I put the link up above Digest - Rob on Nov 8, 2016, 4:54 AM
    1. Awesome! - Anna on Nov 8, 2016, 8:29 AM
      1. Glad you like it - Rob on Nov 9, 2016, 7:45 AM
        1. Rob, how are you feeling? - Sam1224 on Nov 9, 2016, 9:59 AM
          1. Hi Sam - Rob on Nov 10, 2016, 4:30 AM
     
  36. Welcome to DC Digest - Anna on Nov 7, 2016, 11:37 AM
    1. Thanks Anna - Sonny on Nov 7, 2016, 11:39 AM
      1. Doing well - Anna on Nov 7, 2016, 11:44 AM
        1. Great news - Sonny on Nov 7, 2016, 12:06 PM
     
  37. Anna - how are you doing? Digest - Sonny on Oct 31, 2016, 5:16 PM
    1. Pretty well - Anna on Nov 2, 2016, 8:49 AM
      1. The best is yet to come - Sonny on Nov 2, 2016, 6:56 PM
        1. Thanks! - Anna on Nov 2, 2016, 7:56 PM
     
  38. Hi everyone Digest - richard on Oct 23, 2016, 7:53 AM
    1. Hi Richard - Paula on Oct 23, 2016, 9:49 AM
      1. Thanks - richard on Oct 23, 2016, 12:02 PM
        1. Hi Richard and Paula - Pat on Oct 28, 2016, 1:14 PM
          1. Thanks Pat - Anonymous on Oct 30, 2016, 1:25 PM
          2. Hi Pat - Paula on Nov 3, 2016, 10:55 AM
            1. That's Awesome - Pat on Nov 26, 2016, 5:54 PM
     
  39. Carroll - how is your energy level Digest - Anonymous on Oct 19, 2016, 6:58 AM
    1. Forgot to add my name to last post - Sonny on Oct 19, 2016, 6:59 AM
      1. fatigue - Carroll on Oct 19, 2016, 6:07 PM
        1. Hmm - Sonny on Oct 19, 2016, 6:22 PM
          1. So true, Sonny - Pat on Oct 19, 2016, 8:15 PM
        2. Age??? - Rob on Oct 20, 2016, 5:03 AM
          1. Age - Carroll on Oct 20, 2016, 10:03 AM
            1. New normal - Rob on Oct 21, 2016, 8:31 AM
              1. Energy level - puzzling - Pa on Oct 28, 2016, 1:07 PM
     
  40. Anna and the Hairy Cells Digest - Anna on Oct 17, 2016, 8:27 PM
    1. Thanks - Sonny on Oct 17, 2016, 9:23 PM
      1. Re: Thanks - Anna on Oct 22, 2016, 9:33 AM
    2. re your podcast - Pat on Oct 19, 2016, 8:11 PM
      1. Re: re your podcast - Anna on Oct 22, 2016, 9:32 AM
    3. Nice work - Tokyo HCL on Oct 20, 2016, 10:40 PM
      1. Re: Nice work - Anna on Oct 22, 2016, 9:31 AM
    4. Airbnb - Todd on Oct 25, 2016, 6:47 PM
      1. Re: Airbnb - Anna on Oct 25, 2016, 8:16 PM
        1. Thanks - Todd on Oct 26, 2016, 3:29 PM
          1. NIH Transportation - Sam1224 on Oct 28, 2016, 9:00 AM
    5. Lodging - Linda on Oct 28, 2016, 9:21 AM
      1. Re: Lodging - Anna on Oct 28, 2016, 10:22 AM
        1. Lodging - Linda on Nov 3, 2016, 8:19 PM
          1. Thanks! - Anna on Nov 24, 2016, 10:43 AM
    6. Podcast - Linda on Nov 3, 2016, 8:54 PM
      1. Re: Podcast - Anna on Nov 24, 2016, 10:47 AM
        1. Braf/ mek - Linda on Dec 16, 2016, 8:28 AM
     
  41. Anna - how is treatment going? Digest - Sonny on Oct 16, 2016, 8:18 AM
    1. Re: Anna - how is treatment going? - Anna on Oct 17, 2016, 8:18 PM
      1. Hoping you have a good week - Sonny on Oct 17, 2016, 8:49 PM
      2. Hi Anna - stay positive - Pat on Oct 19, 2016, 8:08 PM
        1. Re: Hi Anna - stay positive - Anna on Oct 22, 2016, 9:29 AM
          1. Depeding on your doc's advice and your ANC level... - Rob on Oct 22, 2016, 4:46 PM
          2. Rituxan - Sonny on Oct 22, 2016, 5:30 PM
            1. Re: Rituxan - Anna on Oct 22, 2016, 5:40 PM
              1. Glad to hear - Sonny on Oct 22, 2016, 5:46 PM
     
  42. Blood work Dr visit. 10.13.16 Digest - Jim weathers on Oct 13, 2016, 5:30 PM
    1. Good Deal - Tim Clune on Oct 13, 2016, 5:52 PM
    2. 1990? - Anonymous on Oct 13, 2016, 9:14 PM
      1. Re: 1990? - Jim weathers on Oct 14, 2016, 11:21 AM
        1. Hi Jim - Rob on Oct 14, 2016, 2:27 PM
          1. Re: Hi Jim - Jim weathers on Oct 15, 2016, 3:27 PM
    3. Way to go Jim - Pat on Oct 19, 2016, 7:58 PM
     
  43. My Downward Trend Continues Digest - Tim Clune on Oct 12, 2016, 4:45 PM
    1. How are you feeling? - Rob on Oct 12, 2016, 5:00 PM
      1. Hey Rob - Tim Clune on Oct 12, 2016, 5:29 PM
        1. Love the hemo... - Rob on Oct 13, 2016, 3:17 PM
          1. Ibrutinib Trial, Tricare, etc... - Tim Clune on Oct 13, 2016, 5:50 PM
            1. Wow a lot to consider. - Rob on Oct 14, 2016, 2:25 PM
              1. Tim and Rob - Pat on Oct 19, 2016, 7:51 PM
                1. Thanks Pat - Rob on Oct 20, 2016, 5:12 AM
                2. Hey Pat and Rob - Tim Clune on Oct 20, 2016, 7:57 AM
                  1. Ft Huachuka - Rob on Oct 21, 2016, 8:41 AM
    2. no fatigue - Carroll on Oct 19, 2016, 7:51 PM
      1. Amen - Pat on Oct 19, 2016, 7:53 PM
      2. Yep, Classic HCL - Tim Clune on Oct 20, 2016, 8:05 AM
    3. Good luck Tim - Linda on Oct 28, 2016, 9:08 AM
      1. Hey Linda - Tim Clune on Oct 28, 2016, 1:45 PM
     
  44. Back from Saven (7oct16)--Hi Simone and Carroll and everyone Digest - Rob on Oct 7, 2016, 4:26 PM
    1. Yeah - Carroll on Oct 7, 2016, 6:23 PM
      1. No live vaccines - Todd on Oct 7, 2016, 7:30 PM
        1. Re: No live vaccines - simone on Oct 9, 2016, 11:36 PM
          1. Briefly... - Rob on Oct 11, 2016, 6:30 AM
            1. Re: Briefly... - SIMONE on Oct 11, 2016, 8:46 AM
          2. Seconds - Waid on Oct 17, 2016, 4:07 PM
      2. Thanks Todd and Carroll - Rob on Oct 8, 2016, 6:38 AM
    2. Yea - Paula on Oct 9, 2016, 10:25 AM
      1. Hi Paula -- how are you doing these daze....? - Rob on Oct 9, 2016, 2:26 PM
        1. Re: Hi Paula -- how are you doing these daze....? - Paula on Oct 11, 2016, 6:27 AM
          1. Out of curiosity... - Rob on Oct 11, 2016, 11:59 AM
            1. You are right - Paula on Oct 16, 2016, 2:14 PM
              1. Local color - Waid on Oct 17, 2016, 4:14 PM
                1. Waid - Paula on Oct 17, 2016, 6:27 PM
    3. Looking good, life goes on - Pat on Oct 9, 2016, 10:06 PM
      1. Hi Pat - Carroll on Oct 10, 2016, 11:24 AM
        1. Thanks Carroll - Pat on Oct 19, 2016, 7:19 PM
      2. Pat, according to Bill Gates MicroSoft will cure cancer in 10 years! - Rob on Oct 11, 2016, 6:08 AM
    4. Re: Back from Saven (7oct16)--Hi Simone and Carroll and everyone - simone on Oct 9, 2016, 11:34 PM
      1. Hi Simone - Rob on Oct 11, 2016, 6:14 AM
        1. Re: Hi Simone - SIMONE on Oct 11, 2016, 8:48 AM
     
  45. pentostatine treatment Digest - simone on Oct 7, 2016, 6:46 AM
    1. Good - Carroll on Oct 7, 2016, 8:20 AM
      1. Re: Good - simone on Oct 7, 2016, 9:15 AM
        1. Wonderful - Carroll on Oct 7, 2016, 6:28 PM
          1. Re: Wonderful - simone on Oct 9, 2016, 11:23 PM
    2. Hi Simone - Pat on Oct 9, 2016, 10:13 PM
      1. Re: Hi Simone - simone on Oct 9, 2016, 11:29 PM
        1. Yes - Waid on Oct 17, 2016, 3:59 PM
     
  46. Post virus Digest - Charles on Oct 3, 2016, 2:03 PM
    1. My family doc--back when I had pneumonia--said... - Rob on Oct 4, 2016, 10:56 AM
      1. plats - Charles on Oct 8, 2016, 4:51 AM
    2. Hi Charles - Pat on Oct 9, 2016, 10:18 PM
      1. Thanks - Charles on Oct 26, 2016, 11:43 AM
     
  47. Hi everyone Digest - Erin on Oct 3, 2016, 1:58 PM
    1. Welcome Erin - Carroll on Oct 3, 2016, 7:05 PM
      1. Thanks - Erin on Oct 4, 2016, 7:12 AM
        1. Hi Erin - Rob on Oct 4, 2016, 10:54 AM
        2. You are such a classic HCLer - Waid on Oct 5, 2016, 1:14 PM
          1. The only problem is... - Rob on Oct 6, 2016, 12:44 PM
        3. Vitamins - Carroll on Oct 7, 2016, 8:14 AM
    2. Welcome Erin - Pat on Oct 9, 2016, 10:27 PM
     
  48. Treatment Start Date Digest - Anna on Sep 23, 2016, 5:11 PM
    1. Well - Devo on Sep 23, 2016, 5:47 PM
    2. I did - nicky clarke on Sep 24, 2016, 6:21 AM
      1. and.... - nicky clarke on Sep 25, 2016, 4:55 AM
        1. Re: and.... - Anna on Sep 25, 2016, 11:48 AM
    3. Re: Treatment Start Date - PAULA on Sep 24, 2016, 8:34 AM
      1. Re: Treatment Start Date - Anna on Sep 25, 2016, 11:40 AM
    4. Treatment - Carroll on Sep 25, 2016, 8:00 AM
      1. Re: Treatment - Anna on Sep 25, 2016, 11:46 AM
    5. Suprise to hear NIH .... - Lou DiFinizio on Sep 25, 2016, 7:23 PM
      1. Re: Suprise to hear NIH .... - Anna on Sep 25, 2016, 7:34 PM
    6. Advice - Waid on Oct 2, 2016, 12:43 AM
      1. Re: Advice - Anna on Oct 2, 2016, 1:21 PM
    7. Re: Treatment Start Date - Erin on Oct 3, 2016, 1:28 PM
      1. Re: Treatment Start Date - Anna on Oct 3, 2016, 1:34 PM
    8. Hi Anna - Pat on Oct 9, 2016, 10:36 PM
      1. Re: Hi Anna - Anna on Oct 10, 2016, 7:12 PM
     
  49. 38 years old with hcl Digest - giorgia on Sep 21, 2016, 2:20 PM
    1. Giorgia--this is an "Italian" board. Do you know of... - Rob on Sep 21, 2016, 3:01 PM
      1. Re: Giorgia--this is an "Italian" board. Do you know of... - Giorgia on Sep 22, 2016, 2:52 AM
    2. Re: 38 years old with hcl - emi on Sep 22, 2016, 1:13 AM
      1. Re: 38 years old with hcl - Giorgia on Sep 22, 2016, 3:15 AM
      2. Re: 38 years old with hcl - emi on Sep 22, 2016, 5:46 AM
        1. Re: 38 years old with hcl - simone on Sep 22, 2016, 7:09 AM
          1. Re: 38 years old with hcl - Anonymous on Sep 22, 2016, 1:11 PM
    3. Praying for you and your husband, Giorgia - Pat on Oct 9, 2016, 10:39 PM
     
  50. Rob you out there ? Digest - Carroll on Sep 20, 2016, 5:12 PM
    1. Today I'm in the coffee shop writing my book. - Rob on Sep 21, 2016, 8:59 AM
      1. in the coffee shop - mel on Sep 21, 2016, 12:26 PM
        1. Tastes good too. - Rob on Sep 21, 2016, 2:50 PM
          1. Sounds like you are cruising through treatment! - Sam on Sep 21, 2016, 6:20 PM
            1. Retuxan followup? - Rob on Sep 21, 2016, 6:51 PM
      2. Glad to hear - Carroll on Sep 22, 2016, 5:38 AM
        1. heh heh heh - Rob on Sep 22, 2016, 9:30 AM
          1. You da man - Carroll on Sep 23, 2016, 1:54 PM
      3. Vegan options - Waid on Oct 2, 2016, 9:47 AM
     
  51. Blood Test Digest - Brad55yrsNY on Sep 17, 2016, 11:03 AM
    1. Hope counts look good - Carroll on Sep 17, 2016, 8:18 PM
      1. Energy level - Sonny on Sep 21, 2016, 3:18 PM
        1. Energy - Carroll on Sep 22, 2016, 5:49 AM
          1. B12 ? - Sonny on Sep 22, 2016, 5:46 PM
            1. Thanks - Carroll on Sep 23, 2016, 1:50 PM
              1. Recent Counts - Sonny on Sep 23, 2016, 3:43 PM
                1. ANC - Carroll on Sep 23, 2016, 5:23 PM
                  1. ANC over Time - Sonny on Sep 23, 2016, 7:37 PM
                    1. Conundrum - Caroll on Sep 23, 2016, 9:45 PM
                      1. BMB - Anonymous on Sep 24, 2016, 6:12 AM
                        1. BMB - not anonymous - Sonny on Sep 24, 2016, 2:41 PM
                          1. Anonymous - Waid on Oct 2, 2016, 8:48 AM
                        2. Didn't know about flow cytometry - Carroll on Sep 25, 2016, 7:47 AM
                          1. Cytometry - Sonny on Sep 30, 2016, 2:00 PM
                            1. Energy - Carroll on Sep 30, 2016, 8:47 PM
                              1. Hi Carroll - Rob on Oct 1, 2016, 3:51 AM
                                1. Hey Rob - Carroll on Oct 1, 2016, 6:44 PM
                                2. What will you do with the results? - Waid on Oct 2, 2016, 9:30 AM
                                3. My results - Carroll on Oct 2, 2016, 7:11 PM
                                4. Carroll, I'm fine! HA! - Rob on Oct 2, 2016, 12:51 PM
                                5. Less zzzzz - Carroll on Oct 2, 2016, 8:24 PM
                                6. Sometimes... - Rob on Oct 3, 2016, 4:20 AM
                        3. Translation - Waid on Oct 2, 2016, 9:19 AM
                          1. Translation - Sonny on Oct 2, 2016, 10:22 AM
    2. Results - Brad55yrs on Sep 21, 2016, 6:24 PM
      1. Home run - Sonny on Sep 21, 2016, 7:27 PM
      2. Real good counts. - Rob on Sep 22, 2016, 5:24 PM
      3. RE: Vitamin D - Riggie on Sep 22, 2016, 8:10 PM
        1. True - Brad55yrsNY on Sep 23, 2016, 7:39 AM
     
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