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  1. 1 year out Digest - Rob on Aug 14, 2017, 6:00 PM
    1. 1 year - Vincent James on Aug 16, 2017, 11:21 AM
    2. Hope you get another Loooonnnggg Remission - Timothy Clune on Aug 16, 2017, 2:17 PM
     
  2. All HCLers have a common ancester Digest - Brad56yrsNY on Aug 11, 2017, 4:38 PM
    1. 23andme - Rob on Aug 13, 2017, 7:29 AM
     
  3. Documentary on Discovery Channel Digest - Helen on Aug 10, 2017, 7:32 PM
    1. Thank you Helen - Rob on Aug 11, 2017, 8:03 AM
     
  4. What is the longest you have gone between doc visits? Digest - Vincent James on Aug 4, 2017, 4:20 PM
    1. 11 Years - Brad56yrsNY on Aug 4, 2017, 7:08 PM
      1. Good answer - Vincent James on Aug 4, 2017, 10:44 PM
        1. diet vg - DersuS on Aug 9, 2017, 7:07 AM
          1. That's the question isn't it? - Rob on Aug 9, 2017, 5:02 PM
     
  5. 13 Years Digest - Brad56yrsNY on Aug 4, 2017, 1:31 PM
    1. Ha! Once I found... - Rob on Aug 4, 2017, 2:31 PM
      1. Diet - Brad56yrsNY on Aug 4, 2017, 6:33 PM
    2. Weight Loss and Luck - Timothy Clune on Aug 4, 2017, 3:43 PM
    3. Congrats brad - Vincent James on Aug 4, 2017, 4:14 PM
     
  6. Monocyte Counts Digest - Sonny on Jul 30, 2017, 9:38 AM
  7.  
  8. 17 years Digest - kc2 on Jul 27, 2017, 6:11 AM
    1. Congrats ! - Sonny on Jul 29, 2017, 6:06 AM
    2. Congratulations! - Pat on Aug 2, 2017, 4:47 PM
    3. Wow - Brad56yrsNY on Aug 6, 2017, 8:25 AM
     
  9. Bonjour, now 6 years on wait an watch ! Digest - Charles on Jul 26, 2017, 11:00 AM
    1. Great numbers - Sonny on Jul 26, 2017, 6:50 PM
      1. Hi Sonny, - Charles on Aug 8, 2017, 8:52 AM
    2. Bonjour Charles - Karen on Jul 27, 2017, 7:24 AM
      1. Bonjour Karen, - Charles on Aug 8, 2017, 9:42 AM
    3. Hi Charles - Pat on Aug 2, 2017, 4:44 PM
      1. Hi Pat, - Charles on Aug 8, 2017, 9:42 AM
     
  10. The Sun Digest - Brad56yrsNY on Jul 15, 2017, 4:32 PM
    1. Who Knows for Sure... - Timothy Clune on Jul 15, 2017, 4:40 PM
    2. Re: The Sun - Waid on Jul 17, 2017, 10:37 PM
      1. Re: The Sun - Brad56yrsNY on Jul 19, 2017, 5:43 AM
        1. Diet Soda - Sonny on Jul 20, 2017, 12:36 PM
          1. Dang! - Rob on Jul 20, 2017, 5:35 PM
            1. No sun, no soda, but... - Sonny on Jul 20, 2017, 5:47 PM
        2. We'll drive ourselves crazy.... - Helen on Jul 21, 2017, 4:42 PM
          1. I heard two guys parting ways in a store one night... - Rob on Jul 21, 2017, 6:02 PM
            1. Yep, sugar is the new enemy.... - Helen on Jul 22, 2017, 2:02 PM
              1. Helen - Rob on Jul 22, 2017, 5:00 PM
                1. Hey, Rob ... - Helen on Jul 22, 2017, 7:07 PM
                  1. I checked out the powerstepthings... - Rob on Jul 25, 2017, 6:40 PM
          2. Re: We'll drive ourselves crazy.... - Waid on Jul 22, 2017, 2:16 PM
     
  11. NIH - Coming in hot..... Digest - DavidFL on Jul 11, 2017, 10:35 AM
    1. Good luck - Sonny on Jul 11, 2017, 11:40 AM
    2. Have fun! - Timothy Clune on Jul 12, 2017, 8:46 AM
    3. Blessings - Pat on Aug 2, 2017, 4:29 PM
     
  12. New to HCL Digest - Lisa on Jul 7, 2017, 11:53 AM
    1. Yes Lisa! - Rob on Jul 7, 2017, 1:58 PM
    2. Happened to me! - Devo on Jul 8, 2017, 5:05 PM
      1. Devo - Wow - Pat on Aug 2, 2017, 4:39 PM
    3. Welcome Lisa - Sonny on Jul 9, 2017, 4:09 PM
      1. Re: Welcome Lisa - Dot Shaw on Jul 10, 2017, 5:54 PM
    4. Re: New to HCL - Waid on Jul 17, 2017, 10:43 PM
    5. Hi Lisa - Pat on Aug 2, 2017, 4:36 PM
     
  13. Todays Lab Results - my Doc is going to request treatment with Ibrutinib Digest - Timothy Clune on Jul 6, 2017, 12:51 PM
    1. Insurance is a headache - Sonny on Jul 6, 2017, 1:49 PM
      1. Keep hanging in there! - Timothy Clune on Jul 6, 2017, 6:10 PM
    2. Today's labs - Mel on Jul 6, 2017, 5:00 PM
      1. Thanks Man! - Timothy Clune on Jul 6, 2017, 6:06 PM
    3. Did Tricare for Life?... - Rob on Jul 7, 2017, 8:56 AM
      1. TRICARE- Prime - Timothy Clune on Jul 7, 2017, 11:26 AM
        1. Here's where I get confused.... - Rob on Jul 7, 2017, 1:46 PM
    4. Keep going Tim - Pat on Jul 30, 2017, 10:45 AM
     
  14. Anna, Kat, George - how are you doing? Digest - Sonny on Jun 18, 2017, 3:56 PM
    1. Update - George on Jun 19, 2017, 12:56 PM
      1. Keep rock'in - Sonny on Jun 19, 2017, 2:53 PM
        1. Counts - George on Jun 19, 2017, 8:26 PM
          1. Looking good - Sonny on Jun 20, 2017, 3:20 PM
            1. Counts - Pat on Jul 3, 2017, 10:54 PM
    2. Update from Kat - Kat on Jul 6, 2017, 9:11 AM
      1. Looking good - Sonny on Jul 6, 2017, 9:21 AM
        1. Thanks Sonny!! - Kat on Jul 6, 2017, 9:32 AM
      2. Looking Good - Timothy Clune on Jul 6, 2017, 3:05 PM
        1. Thank you! - Kat on Jul 7, 2017, 8:59 PM
      3. Hi Kat ...et al.....1 more Rituxan to go! - George on Jul 25, 2017, 8:27 PM
        1. Looking good - Sonny on Jul 29, 2017, 6:04 AM
          1. Thank You - George on Aug 1, 2017, 10:30 PM
     
  15. For those of you who have the BRAF mutation..... Digest - Helen on Jun 15, 2017, 5:21 PM
    1. Re: For those of you who have the BRAF mutation..... - simone on Jun 16, 2017, 7:06 AM
    2. As for me.... - Helen on Jun 16, 2017, 8:18 AM
      1. Other cancers can happen - Rob on Jun 16, 2017, 9:16 AM
    3. They go back and forth - Waid on Jun 16, 2017, 7:38 PM
      1. Family - Brad56yrsNY on Jun 18, 2017, 6:55 PM
     
  16. How Clean Is Your House? Digest - Brad56yrsNY on Jun 13, 2017, 8:10 AM
    1. It's the sunlight, not the dirt - Waid on Jun 13, 2017, 6:13 PM
      1. Go figure..... - Helen on Jun 13, 2017, 7:12 PM
        1. So.... I met this lady at Wlamart. - Rob on Jun 14, 2017, 4:50 PM
          1. College Friend - Brad56yrsNY on Jun 16, 2017, 8:56 AM
            1. Probably sun can be overdone - Rob on Jun 16, 2017, 9:20 AM
      2. Pretty Much... - Timothy Clune on Jun 13, 2017, 7:22 PM
        1. I'm sunny - George on Jun 19, 2017, 8:29 PM
      3. W. sounds pretty convencing except... - Rob on Jun 14, 2017, 4:42 PM
        1. Runners - Waid on Jun 14, 2017, 5:51 PM
          1. Everything you say is plausable - Rob on Jun 15, 2017, 9:47 AM
      4. Re: It's the sunlight, not the dirt - Brad56yrsNY on Jun 16, 2017, 9:14 AM
        1. Well - Waid on Jun 16, 2017, 7:05 PM
          1. Ankles - Brad56yrsNY on Jun 17, 2017, 4:02 PM
            1. Re: Ankles - Waid on Jun 18, 2017, 12:10 PM
            2. One possibility - Rob on Jun 18, 2017, 3:24 PM
              1. Some Chance - Brad56yrsNY on Jun 18, 2017, 7:39 PM
                1. Thanks Brad. Good advice. - Rob on Jun 19, 2017, 8:09 PM
    2. Sunlight didn't cause my HCL - Kat on Jul 6, 2017, 9:27 AM
      1. White Males of European Decent - Timothy Clune on Jul 6, 2017, 4:31 PM
     
  17. Rituxan Day 1 Tim Et Al Digest - George on Jun 12, 2017, 9:31 AM
    1. Good luck - Timothy Clune on Jun 12, 2017, 1:12 PM
    2. Nice that you can... - Rob on Jun 12, 2017, 1:33 PM
    3. Thanks for the update.... - Helen on Jun 13, 2017, 7:14 PM
    4. Hi George - Pat 1st Rituxan - Pat on Jul 3, 2017, 10:50 PM
     
  18. Done with Treatment for Now - Looking into starting Trametinib in a Month Digest - Timothy Clune on Jun 6, 2017, 12:02 PM
    1. Glad to hear from you, Tim... - Helen on Jun 6, 2017, 12:10 PM
      1. Congrats ! - Sonny on Jun 6, 2017, 1:13 PM
    2. Done with treatment - Mel on Jun 6, 2017, 3:49 PM
    3. So Tim.... - Rob on Jun 7, 2017, 7:37 AM
      1. Not sure... at least I have a month to breath and let my HGB recover - Timothy Clune on Jun 7, 2017, 8:21 AM
    4. Soooo wonderful Tim! - Pat on Jun 7, 2017, 1:49 PM
     
  19. Anyone in the UK know anythjing about... Digest - Rob on May 27, 2017, 4:42 PM
    1. Dearden is in Sutton - Waid on May 29, 2017, 8:48 AM
      1. Thanks Mate! - Rob on May 29, 2017, 3:11 PM
    2. Re: Anyone in the UK know anythjing about... - Anonymous on May 30, 2017, 1:48 PM
      1. Thanks Peter - Rob on Jun 2, 2017, 4:23 AM
     
  20. Splenectomy Digest - Timothy Clune on May 24, 2017, 1:03 PM
    1. Tim you might try Splenectomy - Rob on May 24, 2017, 6:08 PM
      1. Did the search... not too many folks have gone this route - Timothy Clune on May 24, 2017, 9:16 PM
        1. Splenectomy - Duncan on May 25, 2017, 2:19 PM
          1. Nice! - Timothy Clune on May 25, 2017, 3:27 PM
            1. 10 years later - Duncan on May 29, 2017, 4:08 AM
    2. Dr. Kreitman's Advice reference Splenetomy - Timothy Clune on May 25, 2017, 1:13 PM
    3. Spleeny Weeny - Kyle on May 25, 2017, 4:09 PM
      1. Platelets - Waid on May 26, 2017, 9:06 AM
        1. Makes Sense - Kyle on May 27, 2017, 7:18 AM
    4. Spleenectomy - Thumper on May 27, 2017, 9:17 AM
    5. Splenectomy - Linda on Jun 2, 2017, 3:34 PM
     
  21. Whole Food Plant Based Way of Eating Digest - Dot Shaw on May 23, 2017, 5:23 PM
    1. Probably won't hurt - Waid on May 24, 2017, 1:47 PM
    2. Great Idea - Brad56yrsNY on Jun 5, 2017, 8:28 AM
      1. Re: Great Idea - Dot Shaw on Jul 10, 2017, 6:14 PM
     
  22. Pentostatin infusion #7 and CBC results Digest - Timothy Clune on May 23, 2017, 10:49 AM
    1. Congrats, Tim - Waid on May 24, 2017, 1:36 PM
     
  23. Paper on Genomics of HCL Digest - Jeff on May 23, 2017, 6:05 AM
    1. Thanks - Timothy Clune on May 23, 2017, 9:30 AM
     
  24. Rituxan - Day 1 Digest - Kyle on May 21, 2017, 9:00 AM
    1. Hi Kyle - Kat on May 22, 2017, 3:54 PM
    2. Rituxan - 2nd Treatment - Kyle on May 25, 2017, 4:15 PM
     
  25. A Day in the Life Digest - Rob on May 16, 2017, 6:12 AM
    1. I like it.... - Helen on May 16, 2017, 7:22 AM
    2. Yeah - Pat on May 16, 2017, 3:07 PM
      1. Helen, Pat - Rob on May 17, 2017, 4:25 AM
     
  26. All clear! Digest - Anna on May 15, 2017, 11:01 PM
    1. All clear - Mel on May 16, 2017, 4:07 AM
      1. Re: All clear - Anna on May 17, 2017, 8:47 PM
    2. Isn't is nice.... - Rob on May 16, 2017, 6:02 AM
      1. It really is! - Anna on May 17, 2017, 8:45 PM
    3. Way to go! - Timothy Clune on May 16, 2017, 6:54 AM
      1. Thanks! - Anna on May 17, 2017, 8:46 PM
    4. Wonderful News! - Helen on May 16, 2017, 7:25 AM
      1. Re: Wonderful News! - Anna on May 17, 2017, 8:47 PM
    5. Congrats, Anna - Waid on May 16, 2017, 10:40 AM
      1. Re: Congrats, Anna - Anna on May 17, 2017, 8:48 PM
    6. Congratulations, Ana - Pat on May 16, 2017, 2:59 PM
      1. Thanks Pat! - Anna on May 17, 2017, 8:51 PM
    7. Congrats Anna ! - Sonny on May 16, 2017, 3:02 PM
      1. Thanks! - Anna on May 17, 2017, 8:53 PM
    8. Great news - Tokyo HCL on May 16, 2017, 4:12 PM
      1. Much appreciated - Anna on May 17, 2017, 9:00 PM
    9. Whoo-hoo!! - Kat on May 16, 2017, 7:47 PM
      1. Yay! - Anna on May 17, 2017, 9:07 PM
    10. Great! - Linda on May 22, 2017, 3:15 PM
    11. Great To Hear Anna! - George on Jun 6, 2017, 2:26 PM
     
  27. Round 7 of Rituximab and CBC Digest - Kat on May 13, 2017, 9:23 AM
    1. Looking Good - Timothy Clune on May 13, 2017, 12:35 PM
      1. Excellent - Sonny on May 14, 2017, 12:22 PM
        1. Thanks Sonny! - Kat on May 14, 2017, 11:24 PM
      2. Marrow - Kat on May 14, 2017, 11:32 PM
        1. Not planned yet - Timothy Clune on May 15, 2017, 9:26 AM
          1. Waiting - Waid on May 16, 2017, 10:37 AM
        2. Bone marrow - Pat on May 16, 2017, 2:49 PM
    2. Great counts - Rob on May 14, 2017, 7:52 AM
      1. That is hilarious! - Kat on May 14, 2017, 11:06 PM
    3. Round 7....In This Corner .... KAT the Infuser! ;-) - George on Jun 6, 2017, 2:33 PM
      1. Rituxan - Timothy Clune on Jun 7, 2017, 9:03 AM
     
  28. Bethesda Hotel Deals Digest - DavidFL on May 11, 2017, 7:57 AM
    1. Priceline - Anna on May 11, 2017, 9:03 AM
      1. Re: Priceline - Anna on May 11, 2017, 9:06 AM
        1. Good Tips! - DavidFL on May 11, 2017, 9:36 AM
    2. Just a thought - Rob on May 11, 2017, 9:58 AM
      1. 150-175 is the discounted rate - Timothy Clune on May 11, 2017, 10:06 AM
        1. Still the case - Anna-03 on May 11, 2017, 10:08 AM
    3. Hotels - Linda on May 22, 2017, 10:32 AM
     
  29. Infusion #6 of Pentostatin and CBC results Digest - Timothy Clune on May 9, 2017, 10:40 AM
    1. Fantastic, Tim!!! - Helen on May 9, 2017, 2:27 PM
      1. It is fantastic news - Timothy Clune on May 9, 2017, 6:47 PM
    2. Infusion #6 - Mel on May 9, 2017, 5:43 PM
      1. Pentostatin is kicking my harry cells' butts! - Timothy Clune on May 9, 2017, 6:43 PM
    3. Great news Tim. - Rob on May 9, 2017, 5:56 PM
      1. Me too Rob! - Timothy Clune on May 9, 2017, 6:46 PM
    4. Way to go Tim!! - Sam1224 on May 9, 2017, 6:35 PM
      1. It has been a long time since I saw 130's on PLT count - Timothy Clune on May 9, 2017, 6:41 PM
    5. Holy smokes! - Kat on May 9, 2017, 7:26 PM
      1. No sure things in Cancer treatment - Timothy Clune on May 9, 2017, 8:19 PM
    6. good news - simone on May 10, 2017, 8:54 AM
      1. Looking like 6 + 2 plus 4 weeks of Rituxan - Timothy Clune on May 10, 2017, 4:13 PM
    7. Amazing! - Anna on May 10, 2017, 11:48 AM
      1. These results were not what we expected... so pretty amazing for sure! - Timothy Clune on May 10, 2017, 4:07 PM
    8. Wow! - Kyle on May 10, 2017, 5:10 PM
      1. Thanks - Timothy Clune on May 10, 2017, 6:37 PM
        1. Feeling better ? - Sonny on May 14, 2017, 12:25 PM
          1. Doing better - Timothy Clune on May 14, 2017, 1:06 PM
            1. Cruising - Sonny on May 16, 2017, 3:05 PM
    9. Tim - looking good! - Pat on May 16, 2017, 2:45 PM
      1. Thanks! - Timothy Clune on May 16, 2017, 3:38 PM
    10. Nice! - Linda on May 22, 2017, 11:04 AM
      1. Hope the MEK/BRAF inhibitors are still working for you... - Timothy Clune on May 22, 2017, 1:41 PM
        1. Braf mek - Linda on May 22, 2017, 3:11 PM
          1. Great news - Timothy Clune on May 23, 2017, 3:43 PM
     
  30. Interesting article? Digest - Rob on May 7, 2017, 5:38 PM
  31.  
  32. 6-month follow up Digest - Anna on May 5, 2017, 7:33 PM
    1. Hi Anna! - Kat on May 5, 2017, 8:32 PM
      1. Thanks Kat! - Anna on May 8, 2017, 2:16 PM
        1. My wbc and neutrophils also dropped - Kat on May 8, 2017, 6:25 PM
          1. BMB? - Anna on May 8, 2017, 6:45 PM
            1. The thing is... - Rob on May 9, 2017, 6:06 PM
            2. BMB - Kat on May 11, 2017, 7:45 PM
              1. Awesome! - Anna on May 12, 2017, 6:06 PM
    2. Your platelets are up! - Rob on May 8, 2017, 8:00 AM
      1. Numbers - Anna on May 8, 2017, 2:16 PM
     
  33. Update on long lost George Digest - George on May 3, 2017, 2:27 PM
    1. Thanks for the update! - Kat on May 4, 2017, 8:22 AM
      1. Work schedules - Sonny on May 4, 2017, 9:27 AM
        1. Rest - George on May 4, 2017, 2:29 PM
        2. Sleep - Kat on May 5, 2017, 8:05 PM
    2. George - I wish I had your energy - Pat on May 16, 2017, 2:42 PM
     
  34. Future NIH trials??? Digest - Todd on May 2, 2017, 7:30 PM
    1. Will do - Kat on May 3, 2017, 9:52 AM
      1. What's the deal with MOXE? - Rob on May 3, 2017, 5:01 PM
        1. Not sure about it for everyone - Timothy Clune on May 3, 2017, 5:35 PM
        2. Moxe - Mel on May 3, 2017, 5:48 PM
          1. BL22 -> HA22 -> Moxe - Timothy Clune on May 3, 2017, 7:32 PM
    2. Not happening soon - Kat on May 4, 2017, 8:11 AM
      1. Thanks for the run-downs. - Rob on May 4, 2017, 9:17 AM
     
  35. Tim, how is it going? Digest - Sonny on May 2, 2017, 3:28 PM
    1. Its going... - Timothy Clune on May 2, 2017, 8:19 PM
      1. Keep on keep'in on - Sonny on May 2, 2017, 8:33 PM
     
  36. Kat, Germany, cold(s), gym Digest - Rob on Apr 29, 2017, 6:31 AM
    1. Pat up from below - Rob on Apr 29, 2017, 6:53 AM
     
  37. Round 5 of Rituximab + BMB/MRI/US + CBC Digest - Kat on Apr 28, 2017, 2:29 AM
    1. Great news Kat - Sonny on Apr 28, 2017, 11:05 AM
    2. Safe travels to Deuchland - Timothy Clune on Apr 28, 2017, 11:41 AM
      1. Quick trip to Deutschland - Kat on May 1, 2017, 2:14 AM
        1. BMB came back negative for hairy cells - Kat on May 1, 2017, 10:25 AM
          1. Great so.... - Rob on May 1, 2017, 12:02 PM
            1. No choice--3 more treatments - Kat on May 1, 2017, 4:20 PM
              1. That's interesting - Rob on May 1, 2017, 6:22 PM
                1. Agreed - Kat on May 2, 2017, 6:28 AM
                  1. Cladribine - Sonny on May 2, 2017, 3:21 PM
                    1. Uhhh...I did have both retuxan and cladr... - Rob on May 2, 2017, 5:47 PM
                    2. Toxicity of Cladribine - Kat on May 3, 2017, 9:46 AM
                      1. Kat how did they use Cladrabine? - Rob on May 4, 2017, 6:40 PM
                        1. Gloves, glasses, lab coat - Waid on May 5, 2017, 9:30 AM
    3. Valtrex - Kat on May 3, 2017, 9:49 AM
      1. I took something similar - Todd on May 3, 2017, 7:47 PM
    4. Bon Voyage Kat - George on May 3, 2017, 2:10 PM
    5. Glad you got to go on the trip to Germany - Pat on May 16, 2017, 2:37 PM
     
  38. Tim I responded to one of your posts waaaaay down there... Digest - Rob on Apr 27, 2017, 11:58 AM
    1. Very True... - Timothy Clune on Apr 27, 2017, 2:32 PM
     
  39. Infusion #5 of Pentostatin is a go... plus CBC results... Digest - Timothy Clune on Apr 25, 2017, 10:08 AM
    1. Looks good Tim - Rob on Apr 25, 2017, 11:18 AM
      1. Thanks - Timothy Clune on Apr 25, 2017, 11:26 AM
    2. Sun Burn - Kyle on Apr 25, 2017, 12:33 PM
      1. Thanks Kyle... - Timothy Clune on Apr 25, 2017, 4:44 PM
    3. Not fun - Anna on Apr 25, 2017, 4:05 PM
      1. Over the past 14 years I have had a 'hard time with more than half of me treatments - Timothy Clune on Apr 25, 2017, 4:47 PM
        1. Hang in there - Sonny on Apr 25, 2017, 8:14 PM
          1. I'm trying... - Timothy Clune on Apr 25, 2017, 8:55 PM
            1. Hang in there... - Todd on Apr 26, 2017, 8:48 AM
              1. Pentostatin is a bit harder than Cladribine so far... - Timothy Clune on Apr 26, 2017, 2:51 PM
            2. You WILL get through this... - Helen on Apr 26, 2017, 9:22 AM
              1. Thanks Hellen! Nice Hug! - Timothy Clune on Apr 26, 2017, 2:53 PM
    4. Tim is Da Man - Pat on Apr 26, 2017, 5:23 PM
      1. Thanks Pat - Looking to join that long Pentostatin Remission Club - Timothy Clune on Apr 26, 2017, 6:41 PM
        1. Re: Thanks Pat - Looking to join that long Pentostatin Remission Club - simone on Apr 27, 2017, 7:36 AM
          1. Acyclovir 800mg twice a day Bactrum 800-160 mg twice a day M/W/F - Timothy Clune on Apr 27, 2017, 2:40 PM
     
  40. I see Carroll, WAID and Pat down there--thank you bout the numbers. Digest - Rob on Apr 22, 2017, 5:34 PM
    1. Age plays a big part - Pat on Apr 26, 2017, 5:14 PM
      1. Hi Pat - Rob on Apr 29, 2017, 6:52 AM
     
  41. Relapse - Day 1 Treatment Digest - Kyle on Apr 17, 2017, 1:47 PM
    1. My Meds.... - Helen on Apr 17, 2017, 3:15 PM
      1. IU Cancer Center - Kyle on Apr 17, 2017, 3:22 PM
        1. No Rituxan for me - Helen on Apr 17, 2017, 5:02 PM
    2. Side effects - Waid on Apr 18, 2017, 10:51 AM
      1. Day 2 Treatment - Kyle on Apr 18, 2017, 11:30 AM
        1. Congrats on being 2/5 done - Kat on Apr 18, 2017, 7:10 PM
          1. Thanks Kat - Kyle on Apr 19, 2017, 10:27 AM
        2. Fine - Waid on Apr 21, 2017, 2:16 PM
    3. Praying for you Kyle - Pat on Apr 18, 2017, 8:32 PM
    4. Treatment - Day 3 - Kyle on Apr 19, 2017, 10:19 AM
    5. Treatments 4-5 - Kyle on Apr 22, 2017, 11:16 AM
      1. Sounds good man.... - Timothy Clune on Apr 22, 2017, 1:38 PM
        1. Recovery - Kyle on Apr 22, 2017, 3:55 PM
          1. Platelets may be over-rated - Kat on Apr 23, 2017, 8:28 PM
            1. 50,000 plus is normally good enough - Timothy Clune on Apr 23, 2017, 9:51 PM
            2. Counts - Kyle on Apr 24, 2017, 8:48 AM
    6. Looks good so far - Todd on Apr 26, 2017, 9:03 AM
      1. Treatment - Kyle on Apr 26, 2017, 10:41 AM
        1. Okay - Todd on Apr 26, 2017, 6:52 PM
     
  42. Number tracking Digest - Devo on Apr 12, 2017, 9:24 AM
    1. thanks - Carroll on Apr 14, 2017, 3:11 PM
    2. Great resource - Kat on Apr 15, 2017, 6:59 PM
      1. Charts - Devo on Apr 17, 2017, 6:43 AM
        1. Got it - Kat on Apr 20, 2017, 7:21 AM
     
  43. 4 days post Cladribine Digest - George on Apr 11, 2017, 4:11 PM
    1. Be careful - Timothy Clune on Apr 11, 2017, 7:14 PM
    2. BadGeorgie how are you? - Kat on Apr 14, 2017, 1:16 PM
      1. Tito's & Tonic - Sonny on Apr 14, 2017, 6:10 PM
      2. Update..... spending Easter Sunday in the hospital - George on Apr 16, 2017, 9:56 AM
        1. Take care - Sonny on Apr 16, 2017, 4:18 PM
          1. Discharged - George on Apr 16, 2017, 4:26 PM
            1. Thx for the update - Kat on Apr 16, 2017, 7:50 PM
              1. Fevers - George on Apr 17, 2017, 7:35 AM
                1. Fevers and rashes - Kat on Apr 18, 2017, 3:03 PM
                  1. Update from Tuesday Counts - rash - neuropathy? - George on Apr 18, 2017, 3:55 PM
                    1. Hey Georgie - Kat on Apr 20, 2017, 7:28 AM
                      1. Hey Katness - George on Apr 20, 2017, 7:47 PM
      3. Schedules - Waid on Apr 16, 2017, 6:51 PM
        1. Got it, thanks - Kat on Apr 16, 2017, 8:00 PM
          1. Ask for sleep-related orders - Waid on Apr 18, 2017, 10:55 AM
            1. Thanks Waid - Kat on Apr 18, 2017, 3:05 PM
    3. George - Kat - Pat on Apr 18, 2017, 8:21 PM
     
  44. Pentostatin infusion #4 Digest - Timothy Clune on Apr 11, 2017, 10:18 AM
    1. Getting better? - Sonny on Apr 16, 2017, 4:21 PM
    2. Was today #5? - Kat on Apr 18, 2017, 7:00 PM
    3. platelets - Rob on Apr 18, 2017, 7:11 PM
    4. Hang in there buddy - praying - Pat on Apr 18, 2017, 8:43 PM
    5. Sorry for being off the air so to speak - Timothy Clune on Apr 18, 2017, 10:31 PM
      1. Thanks for the update - Kat on Apr 20, 2017, 7:34 AM
      2. Hi Tim - George on Apr 20, 2017, 7:40 PM
     
  45. Tim - how are you doing? Digest - Sonny on Apr 11, 2017, 5:54 AM
    1. I'm hanging in there - Timothy Clune on Apr 11, 2017, 10:20 AM
      1. Bumpy road - Sonny on Apr 12, 2017, 1:34 PM
        1. I'm with you Sonny - Pat on Apr 18, 2017, 8:46 PM
     
  46. 8 months out Digest - Rob on Apr 10, 2017, 3:59 PM
    1. 8 months out - Mel on Apr 10, 2017, 4:25 PM
    2. Looking good - Sonny on Apr 10, 2017, 4:35 PM
    3. I'm jealous man - Timothy Clune on Apr 10, 2017, 4:43 PM
      1. Jealous number game - Rob on Apr 27, 2017, 11:44 AM
    4. I'm drooling at your numbers - Kat on Apr 10, 2017, 5:20 PM
      1. Thank you folks - Rob on Apr 11, 2017, 6:39 PM
    5. thumbs up - Carroll on Apr 14, 2017, 3:19 PM
    6. Congrats, Rob - Waid on Apr 16, 2017, 6:38 PM
    7. Way to go Rob - Pat on Apr 18, 2017, 6:55 PM
     
  47. Day 3 Digest - George on Apr 5, 2017, 12:40 PM
    1. You're cruising - Sonny on Apr 5, 2017, 2:38 PM
    2. good luck! - Anna on Apr 5, 2017, 4:30 PM
    3. Hi George - Rob on Apr 5, 2017, 6:06 PM
    4. Keep up the great job! - Pat on Apr 5, 2017, 11:37 PM
    5. Update Day 4. - George on Apr 6, 2017, 12:52 PM
      1. Great to hear - Timothy Clune on Apr 6, 2017, 1:11 PM
      2. You're killing it - Kat on Apr 6, 2017, 7:24 PM
      3. Yeah - Carroll on Apr 7, 2017, 5:36 AM
      4. Way to go George - Pat on Apr 8, 2017, 7:20 PM
    6. DONE! - George on Apr 7, 2017, 3:57 PM
      1. Congrats ! - Sonny on Apr 7, 2017, 4:04 PM
        1. Worked. - George on Apr 7, 2017, 4:07 PM
          1. Restful weekend - Sonny on Apr 7, 2017, 7:30 PM
      2. Good for you! - Helen on Apr 7, 2017, 6:15 PM
      3. Rituxan schedule - Waid on Apr 7, 2017, 6:46 PM
        1. Thanks Waid - George on Apr 7, 2017, 7:52 PM
          1. Refresh my memory... - Helen on Apr 8, 2017, 8:57 AM
            1. Memory Refresher ;-) - George on Apr 9, 2017, 2:51 PM
              1. Rock on - Sonny on Apr 9, 2017, 3:55 PM
              2. Wow that is great! - Kat on Apr 10, 2017, 2:24 AM
     
  48. Thanks Vincent Digest - Rob on Apr 5, 2017, 7:58 AM
    1. Re thanks - Vincent James on Apr 14, 2017, 10:59 AM
     
  49. 3D Digital Dental X-rays Digest - Sonny on Apr 4, 2017, 6:18 AM
    1. Dental X-Rays - Duncan on Apr 4, 2017, 1:13 PM
      1. Thanks Duncan - Sonny on Apr 4, 2017, 1:44 PM
        1. Re: Thanks Duncan - Duncan on Apr 4, 2017, 1:52 PM
          1. Whole jaw and scan - Sonny on Apr 4, 2017, 2:29 PM
      2. agree - Carroll on Apr 4, 2017, 3:11 PM
        1. Thanks Carroll - Sonny on Apr 4, 2017, 4:38 PM
          1. intervals - Carroll on Apr 7, 2017, 5:53 AM
            1. Radiographs - Duncan on Apr 7, 2017, 1:22 PM
              1. Thanks - Sonny on Apr 7, 2017, 4:05 PM
            2. No link - Waid on Apr 7, 2017, 6:32 PM
     
  50. Day 1--Rituximab and Cladribine Digest - Kat on Mar 30, 2017, 7:51 AM
    1. Great News - Hang in There - Timothy Clune on Mar 30, 2017, 8:35 AM
      1. up to 100 - Kat on Mar 30, 2017, 9:15 AM
        1. done with rutuximab - Kat on Mar 30, 2017, 10:50 AM
          1. Wow! Good job Kat! - Timothy Clune on Mar 30, 2017, 11:18 AM
            1. Fever made a strong appearance - Kat on Mar 30, 2017, 1:51 PM
              1. Stay Hydrated - Timothy Clune on Mar 30, 2017, 2:34 PM
                1. Thanks for the heads up! - Kat on Mar 30, 2017, 4:34 PM
    2. When I'm at Scripps--anywhere on site... - Rob on Mar 30, 2017, 5:06 PM
      1. Feeling surprisingly good - Kat on Mar 30, 2017, 6:47 PM
        1. Great start Kat ! - Sonny on Mar 30, 2017, 8:39 PM
          1. Hemoglobin taking a dive - Kat on Mar 31, 2017, 10:24 AM
    3. Kat & Tim...... - Helen on Mar 31, 2017, 11:25 AM
      1. Blood counts Day 1 v. Day 2 - Kat on Mar 31, 2017, 6:22 PM
        1. Hang in there - Sonny on Mar 31, 2017, 7:32 PM
          1. work - Kat on Apr 1, 2017, 5:59 PM
        2. Cladribine starts really wiping things out at 4+ days - Timothy Clune on Mar 31, 2017, 7:43 PM
          1. Anti-nausea - Sonny on Mar 31, 2017, 7:48 PM
        3. Feeling yucky, but numbers seem to be improving - Kat on Apr 1, 2017, 4:07 PM
          1. I'm better... Kat you still have a little ways until your WBC hits the wall - Timothy Clune on Apr 1, 2017, 5:51 PM
            1. Thx for warning - Kat on Apr 1, 2017, 6:05 PM
          2. Feeling slightly worse - Kat on Apr 2, 2017, 4:56 PM
            1. Looking good - Timothy Clune on Apr 2, 2017, 8:12 PM
              1. Feeling better! - Kat on Apr 3, 2017, 6:59 PM
                1. Keep rocking - Sonny on Apr 3, 2017, 8:13 PM
            2. I'm with you on the feeling worse part - Timothy Clune on Apr 3, 2017, 11:42 AM
              1. IV FLUIDS - Kat on Apr 3, 2017, 7:03 PM
                1. IV Fluids make a big difference - Timothy Clune on Apr 3, 2017, 7:42 PM
                  1. How many more infusions? - Sonny on Apr 3, 2017, 8:16 PM
                    1. I have done 3 infusions out of 12-14 - Timothy Clune on Apr 3, 2017, 8:49 PM
              2. upbeat - Carroll on Apr 4, 2017, 3:26 PM
    4. Thanks for the play by play..... - George on Apr 1, 2017, 7:34 PM
      1. Hi George - Kat on Apr 2, 2017, 5:02 PM
        1. Was today Day 1 ? - Sonny on Apr 3, 2017, 8:17 PM
          1. I'll answer for Kat since I have been following so close - Timothy Clune on Apr 3, 2017, 8:54 PM
            1. Was Monday Day 1 for George? - Sonny on Apr 4, 2017, 9:18 AM
              1. Started a Monday, yes - George on Apr 4, 2017, 7:47 PM
    5. Kat's Day 6 Report - Kat on Apr 4, 2017, 12:57 PM
      1. Nice - Timothy Clune on Apr 4, 2017, 1:42 PM
      2. hoping for up very soon - Carroll on Apr 4, 2017, 3:24 PM
      3. Hi KAT - George on Apr 4, 2017, 7:52 PM
    6. Kat's Day 7 Update - Kat on Apr 5, 2017, 9:12 PM
      1. Your doing great! - Timothy Clune on Apr 6, 2017, 7:21 AM
      2. Keep at it Kat - George on Apr 6, 2017, 12:55 PM
    7. Following your progress - Pat on Apr 5, 2017, 11:45 PM
    8. Day 8--ANC .16 and hospitalized - Kat on Apr 6, 2017, 6:58 PM
      1. Sorry to hear... - Timothy Clune on Apr 6, 2017, 7:03 PM
      2. Hey Kat - George on Apr 6, 2017, 8:29 PM
      3. Sending good vibes! - Anna on Apr 6, 2017, 10:38 PM
      4. hospital - Carroll on Apr 7, 2017, 5:32 AM
      5. Hi Kat - stay encouraged - Pat on Apr 8, 2017, 7:30 PM
    9. Day 9 --in hospital and definitely not lonely - Kat on Apr 7, 2017, 9:04 AM
      1. "Hairy Fever" - Timothy Clune on Apr 7, 2017, 12:25 PM
      2. Sorry it's been a rough couple of days.... - Helen on Apr 7, 2017, 1:22 PM
      3. Katness - George on Apr 7, 2017, 4:02 PM
    10. Day 10--my first blood transfusions - Kat on Apr 8, 2017, 7:03 PM
      1. Got to love that transfusion high :-) - Timothy Clune on Apr 8, 2017, 7:33 PM
    11. Day 11--Numbers rebounding - Kat on Apr 9, 2017, 6:49 AM
      1. Good to hear Kat! - Timothy Clune on Apr 9, 2017, 8:31 AM
        1. Thanks so much Tim - Kat on Apr 9, 2017, 11:10 AM
      2. Great news - Sonny on Apr 9, 2017, 9:04 AM
        1. Chest X-ray and CT scan - Kat on Apr 9, 2017, 11:19 AM
    12. Infectious disease team not giving up! - Kat on Apr 9, 2017, 11:02 AM
      1. Work Plan B - Sonny on Apr 9, 2017, 3:53 PM
        1. Need ANC bounce and fever free night to get out of jail - Kat on Apr 9, 2017, 6:41 PM
      2. Sounds familiar - Lou DiFinizio on Apr 10, 2017, 3:07 PM
    13. Day 12-- ANC dropped and I succumbed again to hairy fever - Kat on Apr 10, 2017, 5:17 PM
      1. Hang in there Kat - Sonny on Apr 10, 2017, 6:22 PM
        1. The best is yet to be - Kat on Apr 10, 2017, 8:15 PM
          1. Your getting there... - Timothy Clune on Apr 10, 2017, 8:29 PM
            1. Kat - how are you doing this morning? - Sonny on Apr 11, 2017, 5:53 AM
          2. They want to suck your blood! - George on Apr 11, 2017, 4:19 PM
      2. The best IS yet to come.... - Helen on Apr 11, 2017, 5:56 AM
    14. Day 13--Footloose and fever free - Kat on Apr 11, 2017, 6:40 PM
      1. Your marrow is the key - Timothy Clune on Apr 11, 2017, 10:11 PM
        1. Ok I'm worried about my lymphocytes now - Kat on Apr 12, 2017, 5:23 AM
          1. You should see another significant hit to those lymphocytes - Timothy Clune on Apr 12, 2017, 6:00 AM
    15. Day 14--ANC .5, Platelets 222 - Kat on Apr 12, 2017, 9:28 AM
      1. Round 3 - Sonny on Apr 12, 2017, 1:29 PM
        1. Sonny - Kat on Apr 14, 2017, 1:26 PM
          1. NIH on April 12 - Sonny on Apr 14, 2017, 1:49 PM
            1. Your numbers - Kat on Apr 15, 2017, 4:44 PM
              1. Stay Healthy - Sonny on Apr 16, 2017, 3:56 PM
                1. Diet Coke - Kat on Apr 16, 2017, 7:32 PM
                  1. I wonder - Sonny on Apr 17, 2017, 8:38 AM
                    1. Yes, back in the office - Kat on Apr 17, 2017, 11:57 AM
                      1. Agreed on all fronts - Sonny on Apr 17, 2017, 5:17 PM
    16. Day 15--finished round 3 in 2.5 hours with no reactions. - Kat on Apr 13, 2017, 9:21 AM
      1. Iron infusion cancelled - Kat on Apr 13, 2017, 12:34 PM
      2. Trooper - Anna-03 on Apr 13, 2017, 9:34 PM
        1. Thanks Anna - Kat on Apr 14, 2017, 11:37 AM
    17. Day 16--ANC 2.48 and back to Big Apple - Kat on Apr 14, 2017, 11:10 AM
      1. Congrats ! - Sonny on Apr 14, 2017, 1:39 PM
      2. Yeah! - Carroll on Apr 14, 2017, 3:15 PM
      3. Nice! - BB on Apr 14, 2017, 3:39 PM
    18. Day 17--thinking about next steps - Kat on Apr 15, 2017, 5:37 PM
      1. Hemoglobin - Waid on Apr 25, 2017, 10:23 PM
        1. Just saw this post, thanks Waid - Kat on May 8, 2017, 6:37 PM
    19. Round 4 of Rituximab - Kat on Apr 20, 2017, 7:45 AM
      1. Rituxan routine - Anna-03 on Apr 20, 2017, 12:01 PM
        1. BMB - Kat on Apr 20, 2017, 5:31 PM
          1. Safe Travels! - Anna on Apr 23, 2017, 10:54 AM
      2. ANC dropped back to earth. - Kat on Apr 20, 2017, 6:03 PM
        1. Explanation for Suddenly High Platelets--Shrinking Spleen - Kat on Apr 21, 2017, 4:53 PM
     
  51. Alive & Kicking Digest - Alan on Mar 29, 2017, 12:33 PM
    1. Alan! strangely??? - Rob on Mar 29, 2017, 1:07 PM
    2. Keep up the Hairy Free Survival - Timothy Clune on Mar 29, 2017, 3:36 PM
    3. Wonderful - Carroll on Mar 29, 2017, 4:11 PM
    4. Leiden? - George on Mar 29, 2017, 5:38 PM
      1. Leiden - Waid on Apr 6, 2017, 9:01 AM
        1. Interesting - George on Apr 6, 2017, 12:57 PM
    5. Hi Alan - nicky clarke on Mar 30, 2017, 3:15 AM
    6. Hi Alan - Pat on Apr 5, 2017, 11:59 PM
    7. Congrats, Alan - Waid on Apr 6, 2017, 8:59 AM
    8. hi alan - Anonymous on Apr 25, 2017, 10:36 AM
    9. hi alan - Richard medhurst on Apr 25, 2017, 12:58 PM
     
  52. Checking in Digest - Ali on Mar 28, 2017, 10:47 PM
    1. Hi Ali - Carroll on Mar 29, 2017, 7:34 PM
     
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