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Anna and HCL -- Episodes

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  1. Newly Diagnosed Digest - Lisa on Dec 4, 2016, 8:19 PM
    1. Hi Lisa - Paula on Dec 5, 2016, 9:18 AM
      1. Thank you Paula - Anonymous on Dec 5, 2016, 11:36 AM
     
  2. Carroll have you been checked out for this? Digest - Rob on Nov 28, 2016, 11:45 AM
    1. Not sure - Carroll on Nov 30, 2016, 6:39 PM
      1. This one won't be painful. - Rob on Dec 1, 2016, 11:09 AM
     
  3. Thanks for the gift! Digest - Anna on Nov 24, 2016, 10:34 AM
    1. Love it - Pat on Nov 26, 2016, 5:58 PM
     
  4. Carroll, how is your energy level? Digest - Sonny on Nov 23, 2016, 10:31 AM
    1. Latest - Carroll on Nov 25, 2016, 8:02 PM
      1. Re: Latest - Anna on Nov 25, 2016, 8:45 PM
      2. Internist - Sonny on Nov 26, 2016, 4:45 AM
        1. Yes - Carroll on Nov 30, 2016, 6:47 PM
          1. Best wishes - Sonny on Dec 1, 2016, 4:58 AM
      3. WooHoo, no Hairies for you - Pat on Nov 26, 2016, 6:03 PM
        1. OK start working on that switch - Carroll on Nov 30, 2016, 6:52 PM
     
  5. Anna, how are your doing ? Digest - Sonny on Nov 23, 2016, 10:28 AM
    1. Complete Remission! - Anna on Nov 24, 2016, 10:27 AM
      1. Congrats !!! - Sonny on Nov 24, 2016, 11:24 AM
      2. WooHoo!!! - Carroll on Nov 25, 2016, 7:56 PM
     
  6. Thanks Giving Digest - Mel on Nov 23, 2016, 4:14 AM
    1. Right back at you! - Tim Clune on Nov 23, 2016, 1:52 PM
     
  7. For the Wait and Watchers Digest - Sonny on Nov 16, 2016, 7:21 AM
    1. Sonny - Pat on Nov 26, 2016, 6:07 PM
     
  8. CD4 Digest - simone on Nov 16, 2016, 2:08 AM
    1. CD4 Recovery - Tim Clune on Nov 16, 2016, 6:01 AM
      1. Re: CD4 Recovery - simone on Nov 16, 2016, 6:03 AM
        1. CD4 count - Tim Clune on Nov 16, 2016, 6:13 AM
          1. Re: CD4 count - simone on Nov 16, 2016, 6:15 AM
     
  9. Tim: Vemurafenib/Rituxan Digest - Sheepdawg on Nov 15, 2016, 1:26 PM
    1. Thanks Sheep - Tim Clune on Nov 15, 2016, 1:37 PM
    2. Do you have a link to that article? - Todd on Nov 15, 2016, 2:12 PM
      1. Re: Do you have a link to that article? - smone on Nov 15, 2016, 11:09 PM
      2. Here is a link to a summary of vemurafenib/rituximab combo trial - Jeff on Nov 16, 2016, 3:05 AM
        1. Thanks - Todd on Nov 17, 2016, 8:41 AM
    3. Sheep, how are you doing these days? - Pat on Nov 26, 2016, 6:14 PM
     
  10. Pentostatin - who has done it after Cladribine? Digest - Tim Clune on Nov 15, 2016, 9:50 AM
    1. pentostatin - Mel on Nov 15, 2016, 11:14 AM
      1. Thanks Mel - Tim Clune on Nov 15, 2016, 12:16 PM
      2. Re: pentostatin - simone on Nov 15, 2016, 11:14 PM
        1. pentostatin - Mel on Nov 16, 2016, 5:54 AM
          1. pentostatin - Mel on Nov 16, 2016, 5:58 AM
            1. Re: pentostatin - simone on Nov 16, 2016, 6:13 AM
            2. Re: pentostatin - simone on Nov 18, 2016, 2:21 AM
              1. pentostatin - Mel on Nov 18, 2016, 4:50 AM
                1. Re: pentostatin - simone on Nov 18, 2016, 6:44 AM
                  1. pentostatin - Mel on Nov 18, 2016, 7:31 AM
                    1. Re: pentostatin - simone on Nov 18, 2016, 8:34 AM
                      1. pentostatin - Mel on Nov 18, 2016, 1:02 PM
          2. pentostatine - simone on Nov 16, 2016, 6:07 AM
            1. Pentostatin Question - Todd on Nov 16, 2016, 3:25 PM
              1. Re: Pentostatin Question - simone on Nov 17, 2016, 6:11 AM
                1. That's Fast - Tim Clune on Nov 17, 2016, 8:18 AM
                2. Thanks - Todd on Nov 17, 2016, 8:40 AM
    2. For Mel and Tim - Pat on Nov 26, 2016, 6:21 PM
     
  11. Tim, did you see your doc? Digest - Waid on Nov 14, 2016, 11:22 PM
    1. Hey Waid, yep I saw him... maybe another trial is in my future... - Tim Clune on Nov 15, 2016, 5:55 AM
      1. Change 1 - That clinical trial is out - Not accepting HCL patients - Tim Clune on Nov 15, 2016, 8:41 AM
    2. Re: Tim, did you see your doc? - simone on Nov 15, 2016, 8:58 AM
      1. My past... - Tim Clune on Nov 15, 2016, 9:16 AM
        1. Re: My past... - smone on Nov 15, 2016, 11:11 PM
          1. 3/28/2016 Flow Results - Bright CD25 markers - Tim Clune on Nov 16, 2016, 6:09 AM
            1. Re: 3/28/2016 Flow Results - Bright CD25 markers - simone on Nov 16, 2016, 7:43 AM
    3. See my doctor again Dec 20th - Tim Clune on Nov 21, 2016, 4:50 PM
      1. How are your numbers? - Sonny on Nov 22, 2016, 8:43 AM
        1. 10 Nov 16 Numbers - Tim Clune on Nov 22, 2016, 8:58 AM
          1. Numbers - Sonny on Nov 22, 2016, 3:28 PM
            1. Feel Fine - Tim Clune on Nov 22, 2016, 5:02 PM
              1. No Treatment - Sonny on Nov 22, 2016, 7:31 PM
                1. Sorry - Tim Clune on Nov 22, 2016, 8:40 PM
                  1. No worries - Sonny on Nov 23, 2016, 10:27 AM
     
  12. pentostatine treatment Digest - simone on Nov 11, 2016, 6:49 AM
    1. Glad you are doing so well! - Tim Clune on Nov 11, 2016, 7:06 AM
      1. Re: Glad you are doing so well! - Tim on Nov 15, 2016, 1:00 AM
        1. We'll see - Tim Clune on Nov 15, 2016, 6:04 AM
          1. Re: We'll see - simone on Nov 15, 2016, 7:38 AM
            1. Ibrutinib - Tim Clune on Nov 15, 2016, 9:07 AM
              1. Re: Ibrutinib - simone on Nov 15, 2016, 11:18 PM
                1. I was 36 when I started - Tim Clune on Nov 16, 2016, 5:57 AM
                  1. Re: I was 36 when I started - simone on Nov 16, 2016, 6:10 AM
    2. Hi Simone! - Rob on Nov 11, 2016, 4:55 PM
     
  13. Anna I put the link up above Digest - Rob on Nov 8, 2016, 4:54 AM
    1. Awesome! - Anna on Nov 8, 2016, 8:29 AM
      1. Glad you like it - Rob on Nov 9, 2016, 7:45 AM
        1. Rob, how are you feeling? - Sam1224 on Nov 9, 2016, 9:59 AM
          1. Hi Sam - Rob on Nov 10, 2016, 4:30 AM
     
  14. Welcome to DC Digest - Anna on Nov 7, 2016, 11:37 AM
    1. Thanks Anna - Sonny on Nov 7, 2016, 11:39 AM
      1. Doing well - Anna on Nov 7, 2016, 11:44 AM
        1. Great news - Sonny on Nov 7, 2016, 12:06 PM
     
  15. Anna - how are you doing? Digest - Sonny on Oct 31, 2016, 5:16 PM
    1. Pretty well - Anna on Nov 2, 2016, 8:49 AM
      1. The best is yet to come - Sonny on Nov 2, 2016, 6:56 PM
        1. Thanks! - Anna on Nov 2, 2016, 7:56 PM
     
  16. Hi everyone Digest - richard on Oct 23, 2016, 7:53 AM
    1. Hi Richard - Paula on Oct 23, 2016, 9:49 AM
      1. Thanks - richard on Oct 23, 2016, 12:02 PM
        1. Hi Richard and Paula - Pat on Oct 28, 2016, 1:14 PM
          1. Thanks Pat - Anonymous on Oct 30, 2016, 1:25 PM
          2. Hi Pat - Paula on Nov 3, 2016, 10:55 AM
            1. That's Awesome - Pat on Nov 26, 2016, 5:54 PM
     
  17. Carroll - how is your energy level Digest - Anonymous on Oct 19, 2016, 6:58 AM
    1. Forgot to add my name to last post - Sonny on Oct 19, 2016, 6:59 AM
      1. fatigue - Carroll on Oct 19, 2016, 6:07 PM
        1. Hmm - Sonny on Oct 19, 2016, 6:22 PM
          1. So true, Sonny - Pat on Oct 19, 2016, 8:15 PM
        2. Age??? - Rob on Oct 20, 2016, 5:03 AM
          1. Age - Carroll on Oct 20, 2016, 10:03 AM
            1. New normal - Rob on Oct 21, 2016, 8:31 AM
              1. Energy level - puzzling - Pa on Oct 28, 2016, 1:07 PM
     
  18. Anna and the Hairy Cells Digest - Anna on Oct 17, 2016, 8:27 PM
    1. Thanks - Sonny on Oct 17, 2016, 9:23 PM
      1. Re: Thanks - Anna on Oct 22, 2016, 9:33 AM
    2. re your podcast - Pat on Oct 19, 2016, 8:11 PM
      1. Re: re your podcast - Anna on Oct 22, 2016, 9:32 AM
    3. Nice work - Tokyo HCL on Oct 20, 2016, 10:40 PM
      1. Re: Nice work - Anna on Oct 22, 2016, 9:31 AM
    4. Airbnb - Todd on Oct 25, 2016, 6:47 PM
      1. Re: Airbnb - Anna on Oct 25, 2016, 8:16 PM
        1. Thanks - Todd on Oct 26, 2016, 3:29 PM
          1. NIH Transportation - Sam1224 on Oct 28, 2016, 9:00 AM
    5. Lodging - Linda on Oct 28, 2016, 9:21 AM
      1. Re: Lodging - Anna on Oct 28, 2016, 10:22 AM
        1. Lodging - Linda on Nov 3, 2016, 8:19 PM
          1. Thanks! - Anna on Nov 24, 2016, 10:43 AM
    6. Podcast - Linda on Nov 3, 2016, 8:54 PM
      1. Re: Podcast - Anna on Nov 24, 2016, 10:47 AM
     
  19. Anna - how is treatment going? Digest - Sonny on Oct 16, 2016, 8:18 AM
    1. Re: Anna - how is treatment going? - Anna on Oct 17, 2016, 8:18 PM
      1. Hoping you have a good week - Sonny on Oct 17, 2016, 8:49 PM
      2. Hi Anna - stay positive - Pat on Oct 19, 2016, 8:08 PM
        1. Re: Hi Anna - stay positive - Anna on Oct 22, 2016, 9:29 AM
          1. Depeding on your doc's advice and your ANC level... - Rob on Oct 22, 2016, 4:46 PM
          2. Rituxan - Sonny on Oct 22, 2016, 5:30 PM
            1. Re: Rituxan - Anna on Oct 22, 2016, 5:40 PM
              1. Glad to hear - Sonny on Oct 22, 2016, 5:46 PM
     
  20. Blood work Dr visit. 10.13.16 Digest - Jim weathers on Oct 13, 2016, 5:30 PM
    1. Good Deal - Tim Clune on Oct 13, 2016, 5:52 PM
    2. 1990? - Anonymous on Oct 13, 2016, 9:14 PM
      1. Re: 1990? - Jim weathers on Oct 14, 2016, 11:21 AM
        1. Hi Jim - Rob on Oct 14, 2016, 2:27 PM
          1. Re: Hi Jim - Jim weathers on Oct 15, 2016, 3:27 PM
    3. Way to go Jim - Pat on Oct 19, 2016, 7:58 PM
     
  21. My Downward Trend Continues Digest - Tim Clune on Oct 12, 2016, 4:45 PM
    1. How are you feeling? - Rob on Oct 12, 2016, 5:00 PM
      1. Hey Rob - Tim Clune on Oct 12, 2016, 5:29 PM
        1. Love the hemo... - Rob on Oct 13, 2016, 3:17 PM
          1. Ibrutinib Trial, Tricare, etc... - Tim Clune on Oct 13, 2016, 5:50 PM
            1. Wow a lot to consider. - Rob on Oct 14, 2016, 2:25 PM
              1. Tim and Rob - Pat on Oct 19, 2016, 7:51 PM
                1. Thanks Pat - Rob on Oct 20, 2016, 5:12 AM
                2. Hey Pat and Rob - Tim Clune on Oct 20, 2016, 7:57 AM
                  1. Ft Huachuka - Rob on Oct 21, 2016, 8:41 AM
    2. no fatigue - Carroll on Oct 19, 2016, 7:51 PM
      1. Amen - Pat on Oct 19, 2016, 7:53 PM
      2. Yep, Classic HCL - Tim Clune on Oct 20, 2016, 8:05 AM
    3. Good luck Tim - Linda on Oct 28, 2016, 9:08 AM
      1. Hey Linda - Tim Clune on Oct 28, 2016, 1:45 PM
     
  22. Back from Saven (7oct16)--Hi Simone and Carroll and everyone Digest - Rob on Oct 7, 2016, 4:26 PM
    1. Yeah - Carroll on Oct 7, 2016, 6:23 PM
      1. No live vaccines - Todd on Oct 7, 2016, 7:30 PM
        1. Re: No live vaccines - simone on Oct 9, 2016, 11:36 PM
          1. Briefly... - Rob on Oct 11, 2016, 6:30 AM
            1. Re: Briefly... - SIMONE on Oct 11, 2016, 8:46 AM
          2. Seconds - Waid on Oct 17, 2016, 4:07 PM
      2. Thanks Todd and Carroll - Rob on Oct 8, 2016, 6:38 AM
    2. Yea - Paula on Oct 9, 2016, 10:25 AM
      1. Hi Paula -- how are you doing these daze....? - Rob on Oct 9, 2016, 2:26 PM
        1. Re: Hi Paula -- how are you doing these daze....? - Paula on Oct 11, 2016, 6:27 AM
          1. Out of curiosity... - Rob on Oct 11, 2016, 11:59 AM
            1. You are right - Paula on Oct 16, 2016, 2:14 PM
              1. Local color - Waid on Oct 17, 2016, 4:14 PM
                1. Waid - Paula on Oct 17, 2016, 6:27 PM
    3. Looking good, life goes on - Pat on Oct 9, 2016, 10:06 PM
      1. Hi Pat - Carroll on Oct 10, 2016, 11:24 AM
        1. Thanks Carroll - Pat on Oct 19, 2016, 7:19 PM
      2. Pat, according to Bill Gates MicroSoft will cure cancer in 10 years! - Rob on Oct 11, 2016, 6:08 AM
    4. Re: Back from Saven (7oct16)--Hi Simone and Carroll and everyone - simone on Oct 9, 2016, 11:34 PM
      1. Hi Simone - Rob on Oct 11, 2016, 6:14 AM
        1. Re: Hi Simone - SIMONE on Oct 11, 2016, 8:48 AM
     
  23. pentostatine treatment Digest - simone on Oct 7, 2016, 6:46 AM
    1. Good - Carroll on Oct 7, 2016, 8:20 AM
      1. Re: Good - simone on Oct 7, 2016, 9:15 AM
        1. Wonderful - Carroll on Oct 7, 2016, 6:28 PM
          1. Re: Wonderful - simone on Oct 9, 2016, 11:23 PM
    2. Hi Simone - Pat on Oct 9, 2016, 10:13 PM
      1. Re: Hi Simone - simone on Oct 9, 2016, 11:29 PM
        1. Yes - Waid on Oct 17, 2016, 3:59 PM
     
  24. Post virus Digest - Charles on Oct 3, 2016, 2:03 PM
    1. My family doc--back when I had pneumonia--said... - Rob on Oct 4, 2016, 10:56 AM
      1. plats - Charles on Oct 8, 2016, 4:51 AM
    2. Hi Charles - Pat on Oct 9, 2016, 10:18 PM
      1. Thanks - Charles on Oct 26, 2016, 11:43 AM
     
  25. Hi everyone Digest - Erin on Oct 3, 2016, 1:58 PM
    1. Welcome Erin - Carroll on Oct 3, 2016, 7:05 PM
      1. Thanks - Erin on Oct 4, 2016, 7:12 AM
        1. Hi Erin - Rob on Oct 4, 2016, 10:54 AM
        2. You are such a classic HCLer - Waid on Oct 5, 2016, 1:14 PM
          1. The only problem is... - Rob on Oct 6, 2016, 12:44 PM
        3. Vitamins - Carroll on Oct 7, 2016, 8:14 AM
    2. Welcome Erin - Pat on Oct 9, 2016, 10:27 PM
     
  26. Treatment Start Date Digest - Anna on Sep 23, 2016, 5:11 PM
    1. Well - Devo on Sep 23, 2016, 5:47 PM
    2. I did - nicky clarke on Sep 24, 2016, 6:21 AM
      1. and.... - nicky clarke on Sep 25, 2016, 4:55 AM
        1. Re: and.... - Anna on Sep 25, 2016, 11:48 AM
    3. Re: Treatment Start Date - PAULA on Sep 24, 2016, 8:34 AM
      1. Re: Treatment Start Date - Anna on Sep 25, 2016, 11:40 AM
    4. Treatment - Carroll on Sep 25, 2016, 8:00 AM
      1. Re: Treatment - Anna on Sep 25, 2016, 11:46 AM
    5. Suprise to hear NIH .... - Lou DiFinizio on Sep 25, 2016, 7:23 PM
      1. Re: Suprise to hear NIH .... - Anna on Sep 25, 2016, 7:34 PM
    6. Advice - Waid on Oct 2, 2016, 12:43 AM
      1. Re: Advice - Anna on Oct 2, 2016, 1:21 PM
    7. Re: Treatment Start Date - Erin on Oct 3, 2016, 1:28 PM
      1. Re: Treatment Start Date - Anna on Oct 3, 2016, 1:34 PM
    8. Hi Anna - Pat on Oct 9, 2016, 10:36 PM
      1. Re: Hi Anna - Anna on Oct 10, 2016, 7:12 PM
     
  27. 38 years old with hcl Digest - giorgia on Sep 21, 2016, 2:20 PM
    1. Giorgia--this is an "Italian" board. Do you know of... - Rob on Sep 21, 2016, 3:01 PM
      1. Re: Giorgia--this is an "Italian" board. Do you know of... - Giorgia on Sep 22, 2016, 2:52 AM
    2. Re: 38 years old with hcl - emi on Sep 22, 2016, 1:13 AM
      1. Re: 38 years old with hcl - Giorgia on Sep 22, 2016, 3:15 AM
      2. Re: 38 years old with hcl - emi on Sep 22, 2016, 5:46 AM
        1. Re: 38 years old with hcl - simone on Sep 22, 2016, 7:09 AM
          1. Re: 38 years old with hcl - Anonymous on Sep 22, 2016, 1:11 PM
    3. Praying for you and your husband, Giorgia - Pat on Oct 9, 2016, 10:39 PM
     
  28. Rob you out there ? Digest - Carroll on Sep 20, 2016, 5:12 PM
    1. Today I'm in the coffee shop writing my book. - Rob on Sep 21, 2016, 8:59 AM
      1. in the coffee shop - mel on Sep 21, 2016, 12:26 PM
        1. Tastes good too. - Rob on Sep 21, 2016, 2:50 PM
          1. Sounds like you are cruising through treatment! - Sam on Sep 21, 2016, 6:20 PM
            1. Retuxan followup? - Rob on Sep 21, 2016, 6:51 PM
      2. Glad to hear - Carroll on Sep 22, 2016, 5:38 AM
        1. heh heh heh - Rob on Sep 22, 2016, 9:30 AM
          1. You da man - Carroll on Sep 23, 2016, 1:54 PM
      3. Vegan options - Waid on Oct 2, 2016, 9:47 AM
     
  29. Blood Test Digest - Brad55yrsNY on Sep 17, 2016, 11:03 AM
    1. Hope counts look good - Carroll on Sep 17, 2016, 8:18 PM
      1. Energy level - Sonny on Sep 21, 2016, 3:18 PM
        1. Energy - Carroll on Sep 22, 2016, 5:49 AM
          1. B12 ? - Sonny on Sep 22, 2016, 5:46 PM
            1. Thanks - Carroll on Sep 23, 2016, 1:50 PM
              1. Recent Counts - Sonny on Sep 23, 2016, 3:43 PM
                1. ANC - Carroll on Sep 23, 2016, 5:23 PM
                  1. ANC over Time - Sonny on Sep 23, 2016, 7:37 PM
                    1. Conundrum - Caroll on Sep 23, 2016, 9:45 PM
                      1. BMB - Anonymous on Sep 24, 2016, 6:12 AM
                        1. BMB - not anonymous - Sonny on Sep 24, 2016, 2:41 PM
                          1. Anonymous - Waid on Oct 2, 2016, 8:48 AM
                        2. Didn't know about flow cytometry - Carroll on Sep 25, 2016, 7:47 AM
                          1. Cytometry - Sonny on Sep 30, 2016, 2:00 PM
                            1. Energy - Carroll on Sep 30, 2016, 8:47 PM
                              1. Hi Carroll - Rob on Oct 1, 2016, 3:51 AM
                                1. Hey Rob - Carroll on Oct 1, 2016, 6:44 PM
                                2. What will you do with the results? - Waid on Oct 2, 2016, 9:30 AM
                                3. My results - Carroll on Oct 2, 2016, 7:11 PM
                                4. Carroll, I'm fine! HA! - Rob on Oct 2, 2016, 12:51 PM
                                5. Less zzzzz - Carroll on Oct 2, 2016, 8:24 PM
                                6. Sometimes... - Rob on Oct 3, 2016, 4:20 AM
                        3. Translation - Waid on Oct 2, 2016, 9:19 AM
                          1. Translation - Sonny on Oct 2, 2016, 10:22 AM
    2. Results - Brad55yrs on Sep 21, 2016, 6:24 PM
      1. Home run - Sonny on Sep 21, 2016, 7:27 PM
      2. Real good counts. - Rob on Sep 22, 2016, 5:24 PM
      3. RE: Vitamin D - Riggie on Sep 22, 2016, 8:10 PM
        1. True - Brad55yrsNY on Sep 23, 2016, 7:39 AM
     
  30. Caution Digest - Brad55yrsNY on Sep 17, 2016, 7:03 AM
  31.  
  32. Forever Digest - Bob on Sep 15, 2016, 1:13 PM
    1. CD4 Recovery - Tim Clune on Sep 15, 2016, 1:47 PM
    2. Welcome back - Carroll on Sep 16, 2016, 6:34 PM
    3. Forever - Waid on Sep 17, 2016, 6:15 AM
     
  33. INFO Digest - simone on Sep 12, 2016, 6:03 AM
    1. Can you post the article--URL or refer to it online? - Rob on Sep 12, 2016, 7:28 AM
      1. irradiated blood - simone on Sep 12, 2016, 8:51 AM
        1. not true - Rob on Sep 12, 2016, 12:40 PM
          1. Re: not true - ROB on Sep 13, 2016, 7:27 AM
            1. Pretty sure it was three - Rob on Sep 13, 2016, 3:40 PM
              1. Re: Pretty sure it was three - simone on Sep 14, 2016, 12:22 AM
                1. Dr Oaken--first time... - Rob on Sep 14, 2016, 6:47 AM
                  1. Re: Dr Oaken--first time... - simone on Sep 14, 2016, 7:33 AM
                    1. I don't know. - Rob on Sep 14, 2016, 9:42 AM
    2. I did! - Sam1224 on Sep 12, 2016, 8:46 AM
      1. blood - simone on Sep 12, 2016, 8:57 AM
    3. Not me - and I have had a total of 20 units of packed red blood cells over the years - Tim Clune on Sep 12, 2016, 1:44 PM
      1. Here is what Dr. Deardan (one of the HCL experts) says... - Todd on Sep 12, 2016, 8:16 PM
    4. yes - nicky clarke on Sep 13, 2016, 2:09 AM
      1. Card - Carroll on Sep 16, 2016, 6:58 PM
    5. Yes - Waid on Sep 16, 2016, 6:14 PM
      1. Good info - Carroll on Sep 16, 2016, 6:53 PM
     
  34. Anna - are doing the NIH trial ? Digest - Sonny on Sep 10, 2016, 6:57 PM
    1. Hopefully - Anna on Sep 11, 2016, 12:25 AM
      1. NIH - Sonny on Sep 11, 2016, 9:48 AM
        1. Re: NIH - Anna on Sep 12, 2016, 12:05 PM
          1. Checking on rates - Sonny on Sep 12, 2016, 5:32 PM
      2. Thoughts - Carroll on Sep 11, 2016, 4:46 PM
        1. Im curious as to who is... - Rob on Sep 12, 2016, 7:22 AM
          1. Bureaucracy - BB on Sep 14, 2016, 6:30 AM
            1. Thanks for your insight. - Rob on Sep 14, 2016, 6:57 AM
            2. Re: Bureaucracy - Anna on Sep 14, 2016, 9:35 AM
        2. Re: Thoughts - Anna on Sep 12, 2016, 12:06 PM
    2. Discounted Rate - Sonny on Sep 20, 2016, 6:35 AM
      1. Re: Discounted Rate - Anna on Sep 20, 2016, 9:52 AM
     
  35. How are you doing Carroll? Digest - Sonny on Sep 10, 2016, 6:55 PM
    1. Latest - Carroll on Sep 11, 2016, 4:43 PM
      1. Energy - Sonny on Sep 11, 2016, 6:04 PM
        1. good idea - Carroll on Sep 11, 2016, 7:23 PM
          1. Immature granulyocytes - Waid on Sep 16, 2016, 6:02 PM
            1. Thanks another ? - Carroll on Sep 16, 2016, 6:46 PM
              1. Re: Thanks another ? - Waid on Sep 17, 2016, 6:29 AM
      2. That illusive energy-thingy - Rob on Sep 12, 2016, 7:32 AM
     
  36. Stress Digest - Brad55yrsNY on Sep 9, 2016, 10:49 AM
    1. Stress - Sonny on Sep 10, 2016, 6:54 PM
     
  37. Had a sore throat... Digest - Rob on Sep 8, 2016, 4:22 AM
    1. Wonderful - Carroll on Sep 13, 2016, 8:10 AM
      1. Hi Carroll - Rob on Sep 13, 2016, 3:53 PM
     
  38. A glass oh wine? Digest - Jeff on Sep 7, 2016, 11:42 AM
    1. Me - Rob on Sep 7, 2016, 4:12 PM
    2. Alcohol - Waid on Sep 9, 2016, 2:40 AM
     
  39. pentostatine treatment Digest - simone on Sep 7, 2016, 7:20 AM
    1. You look good / Stai bene - Rob on Sep 7, 2016, 7:43 AM
    2. Congratulations, Simone - Waid on Sep 9, 2016, 2:33 AM
    3. ottimo - emi on Sep 9, 2016, 4:34 AM
      1. Re: ottimo - simone on Sep 9, 2016, 6:43 AM
        1. Come possiamo contattare l'un l'altro? - Rob on Sep 9, 2016, 10:55 AM
        2. Re: ottimo - emi on Sep 9, 2016, 11:06 PM
     
  40. Set back.... Digest - Devo on Sep 6, 2016, 8:30 PM
    1. Dude! I did this exact thing in Feb with pneumonia - Rob on Sep 7, 2016, 7:40 AM
    2. Happens - Waid on Sep 9, 2016, 3:02 AM
     
  41. Time to post about me Digest - Mike on Sep 5, 2016, 7:55 PM
    1. what I see is.... - Rob on Sep 6, 2016, 10:04 AM
      1. Re: what I see is.... - Mike on Sep 7, 2016, 6:36 PM
        1. My list is very short - Rob on Sep 11, 2016, 1:35 PM
    2. Sounds Normal - Brad55yrsNY on Sep 7, 2016, 7:15 AM
      1. Re: Sounds Normal - Mike on Sep 7, 2016, 6:40 PM
    3. Congrats, Mike - Waid on Sep 9, 2016, 2:27 AM
     
  42. There's a girl who works in the coffee shop I go to who... Digest - Rob on Sep 4, 2016, 11:57 AM
    1. Re: There's a girl who works in the coffee shop I go to who... - simone on Sep 4, 2016, 11:35 PM
      1. Hi Simone / Ciao Simone - Rob on Sep 5, 2016, 5:08 AM
        1. Re: Hi Simone / Ciao Simone - simone on Sep 5, 2016, 5:56 AM
          1. For me I would not take those. / Per quanto mi riguarda io non prenderei quelli. - Rob on Sep 5, 2016, 12:20 PM
            1. Re: For me I would not take those. / Per quanto mi riguarda io non prenderei quelli. - simone on Sep 5, 2016, 11:46 PM
              1. There is a difference between your treatment and mine - Rob on Sep 6, 2016, 10:00 AM
          2. Medications - Waid on Sep 9, 2016, 2:31 AM
     
  43. Anna--contact info at Scripps Digest - Rob on Sep 2, 2016, 10:31 AM
    1. Thanks! - Anna on Sep 2, 2016, 10:52 AM
      1. Good luck - Rob on Sep 3, 2016, 4:03 PM
     
  44. Well Rob, looks like I am not too far behind you... Digest - Tim Clune on Aug 31, 2016, 4:22 PM
    1. So sorry to hear... - Anna on Aug 31, 2016, 4:43 PM
      1. Thanks - Tim Clune on Aug 31, 2016, 4:54 PM
    2. Dang - Carroll on Aug 31, 2016, 7:13 PM
      1. Thanks, with I didn't have the experience :-) - Tim Clune on Sep 1, 2016, 9:15 AM
    3. Re: Well Rob, looks like I am not too far behind you... - Sue on Aug 31, 2016, 7:23 PM
      1. Thanks - Tim Clune on Sep 1, 2016, 9:05 AM
    4. well rob looks like I am not too far behind you - Mel on Aug 31, 2016, 8:40 PM
      1. Thanks - Tim Clune on Sep 1, 2016, 9:02 AM
        1. Tim - Mel on Sep 1, 2016, 1:23 PM
    5. HGB! - Rob on Sep 1, 2016, 5:58 AM
      1. One more thing I don't understand... - Rob on Sep 1, 2016, 6:36 AM
        1. Not sure this time around - splenectomy, etc... - Tim Clune on Sep 1, 2016, 9:01 AM
    6. Crap - Paujla on Sep 1, 2016, 5:52 PM
      1. :-) - Tim Clune on Sep 5, 2016, 6:59 PM
    7. Tim - Waid on Sep 3, 2016, 7:50 AM
      1. Hey Waid! :-) - Tim Clune on Sep 5, 2016, 7:08 PM
     
  45. Sorry Rob Digest - Sue on Aug 30, 2016, 12:42 PM
    1. Sue! Thank you. - Rob on Aug 30, 2016, 4:16 PM
      1. Re: Sue! Thank you. - suelower on Aug 31, 2016, 8:26 AM
     
  46. Simone, up here? Digest - Rob on Aug 29, 2016, 2:44 PM
    1. Re: Simone, up here? - simone on Aug 29, 2016, 11:28 PM
     
  47. Back from Saven (29aug16) Digest - Rob on Aug 29, 2016, 2:29 PM
    1. Looking Good - Tim Clune on Aug 29, 2016, 3:01 PM
    2. Looks Good and a few questions - Todd on Aug 29, 2016, 3:03 PM
      1. Those are great questions... Anna if you're here... - Rob on Aug 30, 2016, 7:13 AM
        1. Thanks!! - Todd on Aug 30, 2016, 8:30 AM
          1. "This board is still the best source of HCL info..." - Rob on Aug 30, 2016, 4:33 PM
        2. Good info! - Anna on Aug 30, 2016, 11:20 AM
          1. There's another person at Scripps... - Rob on Aug 30, 2016, 5:00 PM
      2. MRDs - Waid on Sep 3, 2016, 1:41 AM
        1. Re: MRDs - Anna on Sep 3, 2016, 10:49 AM
    3. Great news - Paula on Aug 30, 2016, 6:56 AM
      1. Life plans... - Rob on Aug 30, 2016, 7:24 AM
    4. Wow!!! - Carroll on Aug 30, 2016, 1:10 PM
      1. continued recovery - Rob on Aug 30, 2016, 5:03 PM
        1. Wouldn't be too bad - Carroll on Aug 31, 2016, 7:18 PM
      2. As Rob rocks it, how is your energy Carroll? - Sonny on Aug 30, 2016, 7:53 PM
        1. Hi Sonny - Carroll on Aug 31, 2016, 10:34 AM
          1. Good quote - stay positive - Sonny on Aug 31, 2016, 11:26 AM
     
  48. Treatment Done!!! Digest - Devo on Aug 29, 2016, 8:16 AM
    1. Congrats ! - Sonny on Aug 29, 2016, 9:42 AM
      1. Side Effects - Devo on Aug 30, 2016, 7:03 AM
        1. Rash and PICC - Sonny on Aug 30, 2016, 7:58 PM
          1. PICC - Devo on Sep 2, 2016, 4:53 AM
    2. To bad we can't swap and trade counts. - Rob on Aug 29, 2016, 2:33 PM
    3. Yea - Paula on Aug 30, 2016, 6:57 AM
    4. Nice - Carroll on Aug 30, 2016, 1:20 PM
    5. Congrats, Devo - Waid on Sep 3, 2016, 1:30 AM
     
  49. PENTOSTATINE Digest - SIMONE on Aug 29, 2016, 12:47 AM
    1. If they all went down I'd be concerned. - Rob on Aug 30, 2016, 7:28 AM
     
  50. Oncologist Digest - Brad55yrsNY on Aug 25, 2016, 9:24 PM
    1. twice - nicky clarke on Aug 26, 2016, 6:41 AM
    2. The best I have gotten to is 6 months - Tim Clune on Aug 26, 2016, 9:24 AM
    3. but you do go to a doctor... - Rob on Aug 26, 2016, 1:25 PM
    4. 5 years - Paula on Aug 26, 2016, 1:26 PM
      1. Great to Hear - Tim Clune on Aug 26, 2016, 1:36 PM
    5. Not me - Waid on Aug 28, 2016, 12:28 PM
     
  51. CBC + Update Digest - Anna on Aug 24, 2016, 4:57 PM
    1. NIH - Sonny on Aug 25, 2016, 7:32 PM
      1. Re: NIH - Anna on Aug 25, 2016, 9:51 PM
        1. NIH - Sonny on Aug 26, 2016, 5:51 AM
          1. Other Trial Option for Cladribine/Rituximab - Todd on Aug 26, 2016, 8:27 AM
            1. RE: Cladribine and Rituxan are FDA approved to treat HCL - Tim Clune on Aug 26, 2016, 9:22 AM
              1. Re: RE: Cladribine and Rituxan are FDA approved to treat HCL - Anna on Aug 26, 2016, 11:15 AM
                1. Up to you... I think you will do well at either place... - Tim Clune on Aug 26, 2016, 1:34 PM
                  1. Re: Up to you... I think you will do well at either place... - Anna on Aug 26, 2016, 8:57 PM
                  2. Detail - Waid on Aug 28, 2016, 12:15 PM
            2. Re: Other Trial Option for Cladribine/Rituximab - Anna on Aug 26, 2016, 11:00 AM
            3. To treat or not to treat - Sonny on Aug 26, 2016, 1:15 PM
              1. Waiting too long - Waid on Aug 28, 2016, 12:23 PM
                1. Thanks - Sonny on Aug 29, 2016, 9:48 AM
              2. Watch and Wait - Paula on Aug 30, 2016, 6:38 AM
                1. Watch and Wait 2 - Sonny on Aug 30, 2016, 7:25 PM
          2. Re: NIH - Anna on Aug 26, 2016, 10:39 AM
            1. Locations near Bethesda - Sonny on Aug 26, 2016, 1:23 PM
              1. NIH Rates - Tim Clune on Aug 26, 2016, 1:48 PM
            2. NIH, Hotels, and Scripps - Todd on Aug 26, 2016, 1:51 PM
            3. I was wondering why you didn't go to Scripps - Rob on Aug 26, 2016, 6:02 PM
              1. Re: I was wondering why you didn't go to Scripps - Anna on Aug 26, 2016, 7:57 PM
                1. Assistance in Bethesda - Sonny on Aug 26, 2016, 8:12 PM
                  1. Re: Assistance in Bethesda - Anna on Aug 26, 2016, 8:41 PM
                    1. Bethesda - Sonny on Aug 26, 2016, 8:55 PM
     
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