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Anna and HCL -- Episodes

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  1. This post will remain on top for awhile... sticky Digest - Rob on Mar 24, 2017, 7:46 AM
  2.  
  3. New guy....starting treatment next week Digest - George on Mar 23, 2017, 6:31 PM
    1. Hi George - Jeff on Mar 24, 2017, 7:18 AM
    2. Glad you posted here. - Rob on Mar 24, 2017, 7:32 AM
     
  4. Todays Lab Results - No Treatment due to low ANC Digest - Timothy Clune on Mar 21, 2017, 1:22 PM
    1. Today's lab results - Mel on Mar 21, 2017, 2:29 PM
      1. Thanks - Timothy Clune on Mar 22, 2017, 7:10 AM
    2. Plts going up... - Rob on Mar 21, 2017, 5:55 PM
      1. Oh Yeh... them hairy's are a dyin' - Timothy Clune on Mar 22, 2017, 7:09 AM
    3. Re: Todays Lab Results - No Treatment due to low ANC - simone on Mar 22, 2017, 3:50 AM
      1. Probably should have started them 2 weeks ago... - Timothy Clune on Mar 22, 2017, 6:12 AM
    4. thoughts with you - Carroll on Mar 22, 2017, 6:12 AM
      1. Feeling ok... think my low HGB is the one thing I feel the most - Timothy Clune on Mar 22, 2017, 6:16 AM
        1. remember - Carroll on Mar 22, 2017, 4:56 PM
    5. Thinking of you... - Helen on Mar 22, 2017, 2:00 PM
      1. Thanks! - Timothy Clune on Mar 22, 2017, 5:04 PM
    6. ANC - Kat on Mar 22, 2017, 7:00 PM
      1. Difference between trial and treatment in a normal setting - Timothy Clune on Mar 22, 2017, 8:29 PM
        1. Advantages of Pento - Todd on Mar 23, 2017, 7:07 AM
          1. Good info... Thanks! - Timothy Clune on Mar 23, 2017, 7:29 AM
            1. CD4 and CD8 - Sonny on Mar 23, 2017, 11:40 AM
              1. CD4 Count - Timothy Clune on Mar 23, 2017, 11:58 AM
     
  5. Another Thought Digest - Butterfly on Mar 20, 2017, 1:06 PM
    1. Me too - Rob on Mar 21, 2017, 2:42 PM
    2. Thanks Butterfly! - Kat on Mar 22, 2017, 7:11 PM
     
  6. Just diagnosed Friday, starting Cladribine Monday Digest - Katherine on Mar 8, 2017, 7:47 PM
    1. My Story - Todd on Mar 8, 2017, 8:23 PM
      1. Very helpful - Katherine on Mar 9, 2017, 10:08 AM
    2. Re: Just diagnosed Friday, starting Cladribine Monday - Tim Clune on Mar 9, 2017, 4:31 PM
      1. Thank you! - Katherine on Mar 9, 2017, 5:53 PM
        1. Rituxan not really toxic... more like an allergic reaction - Timothy Clune on Mar 9, 2017, 6:01 PM
          1. Good to know - Katherine on Mar 9, 2017, 8:05 PM
        2. NIH Trial - Sonny on Mar 9, 2017, 6:59 PM
          1. Trial - Katherine on Mar 9, 2017, 8:22 PM
            1. Not really a Guinea pig on the Cladribine/Rituxan Trial - Timothy Clune on Mar 9, 2017, 8:50 PM
              1. Re: Not really a Guinea pig on the Cladribine/Rituxan Trial - Dot Shaw on Mar 13, 2017, 2:09 PM
                1. Trial for me, too - DavidFL on Mar 14, 2017, 7:38 AM
    3. My Story.... - Helen on Mar 9, 2017, 7:32 PM
      1. Hugs - Katherine on Mar 9, 2017, 8:40 PM
        1. Support & Guidance - Helen on Mar 10, 2017, 7:28 AM
    4. NIH Trial - Anna on Mar 10, 2017, 12:25 AM
      1. Thanks for the great info..... - Helen on Mar 10, 2017, 7:53 AM
    5. Consensus Guidelines for the Diagnosis and Management of Patients with Classic Hairy Cell - Todd on Mar 10, 2017, 10:11 AM
      1. spoke to my own doctor - Katherine on Mar 10, 2017, 9:13 PM
        1. The first doctor's rebuttal - Katherine on Mar 11, 2017, 1:17 PM
          1. I would run some of this by Dr. Kreitman - Timothy Clune on Mar 11, 2017, 4:20 PM
            1. Ok I've been convinced - Katherine on Mar 12, 2017, 6:41 AM
              1. Your ANC says treat ASAP - Timothy Clune on Mar 12, 2017, 9:08 AM
                1. Got it, thanks - Kat on Mar 12, 2017, 11:12 AM
                  1. You might be able to travel a month after treatment - Timothy Clune on Mar 12, 2017, 11:48 AM
                    1. travel - Kat on Mar 12, 2017, 1:34 PM
                      1. Travel tips - Sonny on Mar 12, 2017, 8:22 PM
    6. Re: Just diagnosed Friday, starting Cladribine Monday - Anonymous on Mar 13, 2017, 10:00 PM
      1. Whirlwind Post - Rob on Mar 14, 2017, 6:07 AM
      2. Thanks for your story - Kat on Mar 16, 2017, 8:03 PM
    7. Spoke to NIH - Kat on Mar 16, 2017, 8:08 PM
      1. NIH and options - Timothy Clune on Mar 17, 2017, 5:46 AM
        1. They are moving up schedule - Kat on Mar 17, 2017, 6:00 AM
          1. Good to Hear! - Timothy Clune on Mar 17, 2017, 6:33 AM
          2. Great - Anna on Mar 17, 2017, 7:10 PM
            1. Welcome and best of luck - Carroll on Mar 22, 2017, 6:00 AM
    8. Hi Katherine - Welcome! - Pat on Mar 21, 2017, 12:10 PM
    9. NIH--Wow - Kat on Mar 22, 2017, 6:42 PM
      1. 2015 blood test results - Kat on Mar 22, 2017, 6:49 PM
      2. Rituxan/Cladribine combo not more immuno-suppressive? - Kat on Mar 22, 2017, 7:17 PM
        1. Theoretically the 2 together could really hit your ANC hard - Timothy Clune on Mar 22, 2017, 8:54 PM
      3. Bone Marrow Biopsy - Timothy Clune on Mar 22, 2017, 8:33 PM
      4. BMB - Anna on Mar 22, 2017, 8:51 PM
        1. George Rules - Timothy Clune on Mar 22, 2017, 9:00 PM
          1. I got George! - Kat on Mar 23, 2017, 1:19 PM
            1. Good deal - just go into the BMBX expecting the best... - Timothy Clune on Mar 23, 2017, 5:23 PM
     
  7. 2nd treatment of Pentostatin... and CBC Results Digest - Tim Clune on Mar 7, 2017, 11:53 AM
    1. So good to hear from you..... - Helen on Mar 7, 2017, 1:38 PM
    2. Thanks - Waid on Mar 7, 2017, 2:52 PM
    3. Tim, - Rob on Mar 8, 2017, 8:43 AM
      1. ANC is pretty low... - Tim Clune on Mar 8, 2017, 8:52 AM
        1. Hi Tim - Rob on Mar 8, 2017, 4:22 PM
    4. Re: 2nd treatment of Pentostatin... and CBC Results - simone on Mar 9, 2017, 6:47 AM
      1. Thanks Simone! - Timothy Clune on Mar 9, 2017, 8:11 AM
        1. Re: Thanks Simone! - simone on Mar 10, 2017, 3:14 AM
        2. How are you feeling? - Kat on Mar 12, 2017, 1:26 PM
          1. Not to bad right now - Timothy Clune on Mar 12, 2017, 4:07 PM
            1. Glad you're feeling better - Kat on Mar 12, 2017, 8:24 PM
            2. Thank God for answered prayers on your behalf and these helps - Pat on Mar 21, 2017, 12:03 PM
     
  8. children Digest - simone on Mar 6, 2017, 6:39 AM
    1. Yes - Waid on Mar 6, 2017, 3:28 PM
    2. Here is what the experts say - Todd on Mar 8, 2017, 6:24 PM
     
  9. 6 monthly blood test results Digest - Richard medhurst on Mar 1, 2017, 3:38 AM
    1. Looking Good - Timothy Clune on Mar 1, 2017, 7:05 AM
    2. Re: 6 monthly blood test results - simone on Mar 1, 2017, 7:18 AM
    3. Congrats, Richard - Waid on Mar 1, 2017, 2:47 PM
     
  10. Just checking in.... Digest - Helen on Feb 24, 2017, 1:24 PM
    1. Hi Helen - carroll on Feb 27, 2017, 4:28 PM
    2. Hi Helen! - Pat on Mar 21, 2017, 11:56 AM
     
  11. Pat how are you, any updates? Digest - Carroll on Feb 24, 2017, 7:16 AM
    1. Hi Carroll - Pat on Mar 21, 2017, 11:54 AM
      1. Goodness - Carroll on Mar 22, 2017, 6:07 AM
     
  12. Just lost my Dr Digest - Mike on Feb 23, 2017, 8:33 PM
    1. Re: Just lost my Dr - Waid on Feb 23, 2017, 9:06 PM
    2. good luck - Carroll on Feb 24, 2017, 7:22 AM
    3. Doctor - Brad56yrsNY on Feb 26, 2017, 7:44 PM
     
  13. Relapse Digest - Kyle on Feb 22, 2017, 11:29 AM
    1. Good Luck - Timothy Clune on Feb 22, 2017, 1:56 PM
      1. First and foremost..... - Kyle on Feb 22, 2017, 5:02 PM
        1. Platelets - Tim Clune on Feb 22, 2017, 5:20 PM
          1. Rituxan - Kyle on Feb 22, 2017, 5:52 PM
            1. Rituxan - Timothy Clune on Feb 22, 2017, 7:34 PM
              1. Re: Rituxan - simone on Feb 24, 2017, 1:09 AM
                1. BMB - Kyle on Feb 25, 2017, 5:03 AM
    2. thoughts with you - Carroll on Feb 24, 2017, 7:09 AM
      1. Outpatient - Question for WAID - Kyle on Feb 25, 2017, 5:20 AM
        1. Second rounds - Waid on Feb 25, 2017, 6:26 PM
          1. Counts - Kyle on Feb 27, 2017, 4:22 PM
            1. Re: Counts - Waid on Feb 28, 2017, 3:14 PM
    3. Wait and watch - Sonny on Feb 24, 2017, 9:38 AM
      1. Wait and Watch - Kyle on Feb 25, 2017, 5:26 AM
    4. Hi Kyle - Pat on Mar 21, 2017, 11:46 AM
     
  14. Started treatment Digest - Tim Clune on Feb 21, 2017, 12:41 PM
    1. Thoughts are with you! - Anna on Feb 21, 2017, 1:05 PM
      1. All outpatient for me... - Tim Clune on Feb 21, 2017, 1:13 PM
    2. Hang in there! - Linda on Feb 21, 2017, 5:29 PM
    3. Good luck!! - sam1224 on Feb 21, 2017, 6:39 PM
    4. Hi Tim - Rob on Feb 22, 2017, 7:49 AM
      1. Not sure yet on the Rituxan timing - yep, large room, probably 25 chairs - Timothy Clune on Feb 22, 2017, 8:34 AM
        1. Yeah - Rob on Feb 22, 2017, 11:49 AM
    5. Started treatment - Mel on Feb 22, 2017, 11:39 AM
    6. good thoughts - Paula on Feb 23, 2017, 6:21 PM
    7. Re: Started treatment - Waid on Feb 23, 2017, 9:01 PM
    8. Re: Started treatment - simone on Feb 24, 2017, 1:09 AM
      1. Re: Started treatment - simone on Feb 24, 2017, 1:11 AM
    9. hoping for a long, long remission for you - Carroll on Feb 24, 2017, 7:14 AM
    10. Ditto Carroll's message to you..... - Helen on Feb 24, 2017, 1:14 PM
    11. Thinking of you.... - Helen on Mar 4, 2017, 8:07 AM
    12. Tim, how are you doing? - Sonny on Mar 6, 2017, 7:58 PM
    13. Thanks for all the support! - Tim Clune on Mar 7, 2017, 12:14 PM
    14. Gods richest blessing on this treatment - Pat on Mar 21, 2017, 11:38 AM
     
  15. medical alert bracelets etc Digest - Carroll on Feb 6, 2017, 9:06 AM
    1. Re: medical alert bracelets etc - Waid on Feb 10, 2017, 9:41 AM
      1. thanks - Carroll on Feb 13, 2017, 6:58 AM
     
  16. Skin cancer & itching - connection to HCL? Digest - Helen on Feb 2, 2017, 10:08 AM
    1. Itching + Rashes - Anna on Feb 2, 2017, 1:15 PM
      1. Have the rashes subsided? - Helen on Feb 2, 2017, 5:31 PM
        1. For the most part - Anna on Feb 2, 2017, 6:21 PM
          1. Just wondering - Helen on Feb 2, 2017, 8:21 PM
            1. Herbal Supplements - Anna on Feb 2, 2017, 9:12 PM
    2. Thinking - Waid on Feb 2, 2017, 7:20 PM
      1. Immune System Post-Treatment - Helen on Feb 2, 2017, 8:09 PM
        1. Re: Immune System Post-Treatment - Waid on Feb 3, 2017, 9:07 AM
    3. BRAF - Carroll on Feb 6, 2017, 9:12 AM
      1. BRAF negative??? - Rob on Feb 7, 2017, 6:21 AM
        1. BRAF Mutation - Helen on Feb 7, 2017, 1:40 PM
          1. BRAFness - Rob on Feb 7, 2017, 6:00 PM
          2. I don't think - Waid on Feb 8, 2017, 4:48 PM
     
  17. Carroll - how are you doing? Digest - Sonny on Feb 1, 2017, 7:51 AM
    1. Yes, how are you doing? - Pat on Feb 1, 2017, 10:51 PM
      1. Hello Sonny/Pat everyone - Carroll on Feb 2, 2017, 6:24 AM
        1. Still watchful waiting - Sonny on Feb 2, 2017, 9:58 AM
          1. Way to go Sonny and Carrol - Pat on Feb 4, 2017, 5:24 PM
            1. thinking of you - Carroll on Feb 6, 2017, 8:55 AM
          2. thumbs up - Carroll on Feb 6, 2017, 8:59 AM
            1. Will wait it out - Sonny on Feb 7, 2017, 9:38 AM
     
  18. Another Cytometry Digest - Helen on Jan 30, 2017, 9:26 AM
    1. Hellen tell us about your gym workout. - Rob on Jan 30, 2017, 3:06 PM
      1. My Workout.... - Helen on Jan 30, 2017, 3:23 PM
        1. Hi Hellen - Rob on Feb 1, 2017, 2:13 PM
          1. Can I? - Pat on Feb 1, 2017, 10:53 PM
            1. In always wonder which comes first.... - Rob on Feb 2, 2017, 8:13 AM
              1. I don't think they're connected.... - Helen on Feb 2, 2017, 9:58 AM
    2. My Cytometry Results - Helen on Feb 5, 2017, 5:46 PM
      1. Sounds like a plan! - Timothy Clune on Feb 6, 2017, 1:38 PM
        1. Thanks! - Helen on Feb 6, 2017, 1:59 PM
     
  19. TO EVERY ONE Digest - SIMONE on Jan 26, 2017, 6:49 AM
    1. I asked in 2003 - Timothy Clune on Jan 26, 2017, 7:03 AM
    2. The problem is... - Rob on Jan 26, 2017, 8:05 AM
    3. Re: TO EVERY ONE - Tokyo HCL on Jan 27, 2017, 1:01 AM
    4. Me - Pat on Feb 1, 2017, 10:36 PM
     
  20. New to the Forum Digest - Stay Positive on Jan 25, 2017, 9:54 AM
    1. Glad the site is helpful - Rob on Jan 25, 2017, 3:49 PM
    2. Welcome - Waid on Jan 25, 2017, 10:16 PM
    3. Greetings! Fellow HCLer - Pat on Feb 1, 2017, 10:18 PM
     
  21. Absolute Neutrophil Count Digest - Helen on Jan 23, 2017, 5:43 PM
    1. What is the percentage of WBC - Timothy Clune on Jan 23, 2017, 6:12 PM
      1. ANC - Helen on Jan 24, 2017, 2:01 PM
        1. Hi Hellen - Rob on Jan 24, 2017, 2:15 PM
          1. ANC - Helen on Jan 24, 2017, 3:40 PM
            1. ANC - Rob on Jan 25, 2017, 3:04 PM
        2. Your counts look to be on track - Timothy Clune on Jan 24, 2017, 6:47 PM
    2. How are your other counts? - Todd on Jan 24, 2017, 6:47 PM
      1. ANC - Helen99 on Jan 25, 2017, 7:25 AM
        1. It sounds like you're in good hands - Waid on Jan 25, 2017, 10:13 PM
          1. Another Flow Cytometry - Helen on Jan 30, 2017, 9:01 AM
          2. Another Flow Cytometry - Helen on Jan 30, 2017, 9:02 AM
            1. Hang in there - Timothy Clune on Jan 30, 2017, 10:14 AM
              1. Thanks! - Helen on Jan 30, 2017, 1:56 PM
                1. Hellen tell us about your gym workout. - Rob on Jan 30, 2017, 3:04 PM
    3. Yes - what a roller coaster life this is - Pat on Feb 1, 2017, 10:04 PM
      1. My thoughts - Todd on Feb 2, 2017, 9:32 AM
    4. Latest Counts.... - Helen on Mar 7, 2017, 6:31 AM
      1. Maybe - Waid on Mar 7, 2017, 2:50 PM
        1. Interesting but worrisome comment... - Helen on Mar 7, 2017, 8:07 PM
          1. ANC to ALC - Sonny on Mar 8, 2017, 6:45 PM
          2. Trend - Waid on Mar 14, 2017, 9:51 PM
            1. Trending the Numbers - Sonny on Mar 15, 2017, 5:42 PM
     
  22. Hahaha Digest - Rob on Jan 22, 2017, 8:04 AM
    1. Haaaa - Pat on Jan 22, 2017, 12:35 PM
    2. Nice - Timothy Clune on Jan 22, 2017, 12:46 PM
      1. I had a battalion commander in 5th Marines... - Rob on Jan 22, 2017, 7:08 PM
     
  23. Pentostatin (DCF) with a side of Rituxan Digest - Timothy Clune on Jan 20, 2017, 11:13 AM
    1. Sounds like a plan - Rob on Jan 20, 2017, 5:57 PM
      1. 24+ weeks - Timothy Clune on Jan 20, 2017, 6:40 PM
        1. clinical trials are free... - rob on Jan 20, 2017, 8:26 PM
          1. Not free - Timothy Clune on Jan 21, 2017, 6:10 AM
            1. True enough - Rob on Jan 21, 2017, 1:33 PM
    2. Been praying everything is good for tx - finances too - Pat on Jan 22, 2017, 12:34 PM
      1. Thanks! - Timothy Clune on Jan 22, 2017, 12:44 PM
        1. Re: Thanks! - SIMONE on Jan 24, 2017, 9:17 AM
          1. Thanks... me too! - Timothy Clune on Jan 24, 2017, 11:08 AM
     
  24. Food for though: high-fat diet accelerates BRAF V600E mutations? Digest - Jeff on Jan 18, 2017, 5:57 AM
    1. they better hurry up before ... - Rob on Jan 18, 2017, 12:57 PM
    2. An interesting point for researchers - Waid on Jan 18, 2017, 2:02 PM
     
  25. BIOPSYE Digest - simone on Jan 12, 2017, 6:31 AM
    1. May you have a long remission! - Timothy Clune on Jan 12, 2017, 7:07 AM
    2. Congratulations, Simone - Waid on Jan 12, 2017, 11:10 AM
    3. Great news! - Anna on Jan 12, 2017, 12:13 PM
    4. Looks good - Rob on Jan 12, 2017, 6:49 PM
    5. Biopsy - Mel on Jan 13, 2017, 4:56 AM
      1. thank you - simone on Jan 13, 2017, 5:03 AM
    6. Re: BIOPSYE - Anonymous on Jan 14, 2017, 2:22 PM
    7. WOW, Simone - that is Fantastic! - Pat on Jan 22, 2017, 12:26 PM
     
  26. 29 year survivor Digest - Mary Gunter on Jan 11, 2017, 3:35 PM
    1. Good Luck! - Timothy Clune on Jan 11, 2017, 3:50 PM
      1. My Past Treatments - Timothy Clune on Jan 11, 2017, 3:53 PM
        1. Re: My Past Treatments - Mary Gunter on Jan 11, 2017, 4:07 PM
          1. Re: My Past Treatments - Mary Gunter on Jan 11, 2017, 4:22 PM
            1. Thanks Mary - Timothy Clune on Jan 11, 2017, 7:09 PM
    2. Welcome, Mary - Waid on Jan 11, 2017, 4:38 PM
      1. Re: Welcome, Mary - Anonymous on Jan 11, 2017, 5:06 PM
    3. Re: 29 year survivor - simone on Jan 12, 2017, 6:25 AM
    4. Hi Mary, Welcome. And Congratulations on 29 years WOW - Pat on Jan 22, 2017, 12:24 PM
    5. BLESS YOU - Stay Positive on Jan 25, 2017, 9:57 AM
    6. Good luck - Linda on Feb 21, 2017, 5:20 PM
     
  27. Bone Marrow went well - Today's CBC results Digest - Timothy Clune on Jan 9, 2017, 12:06 PM
    1. Glad the BMB-thing went well but you make me feel guilty - Rob on Jan 9, 2017, 2:51 PM
      1. So glad you are getting a good bounce back up! - Timothy Clune on Jan 9, 2017, 3:04 PM
    2. Kreitman and Saven are good people... - Rob on Jan 9, 2017, 3:10 PM
    3. Bone is a bit tender today... - Timothy Clune on Jan 10, 2017, 10:17 AM
      1. Yeah I know wachumean - Rob on Jan 10, 2017, 7:09 PM
        1. Re: Yeah I know wachumean - simone on Jan 11, 2017, 7:13 AM
          1. Sedation - Timothy Clune on Jan 11, 2017, 7:26 AM
            1. Re: Sedation - simone on Jan 12, 2017, 6:26 AM
          2. Good luck Simone - Rob on Jan 11, 2017, 8:00 AM
      2. Which came first? - Waid on Jan 11, 2017, 4:39 PM
        1. I got the room all done / painted before the machines showed up - Timothy Clune on Jan 11, 2017, 7:07 PM
          1. Internet of things - Waid on Jan 12, 2017, 11:16 AM
        2. Re: Which came first? - simone on Jan 12, 2017, 6:27 AM
    4. Praying for everyone - Pat on Jan 22, 2017, 12:18 PM
     
  28. I want to wish everyone a.... Digest - Rob on Dec 30, 2016, 8:02 AM
    1. Thanks Rob... - Timothy Clune on Dec 30, 2016, 9:52 AM
    2. Happy New Year - Waid on Dec 30, 2016, 9:52 AM
      1. Thank you - Rob on Dec 31, 2016, 8:56 AM
     
  29. Enjoy holidays Digest - Mel on Dec 24, 2016, 6:17 AM
  30.  
  31. merry christmas Digest - simone on Dec 22, 2016, 7:04 AM
    1. Merry Christmas Simone - Rob on Dec 22, 2016, 9:03 AM
    2. Right back at you :-) - Timothy Clune on Dec 22, 2016, 9:38 AM
    3. Wishing you the best! - Anna on Dec 22, 2016, 5:09 PM
    4. Not to worry Simone - Pat on Dec 23, 2016, 1:33 PM
     
  32. How yang doin Digest - Mel on Dec 21, 2016, 5:02 AM
    1. Mel I'm doing very fine with a glass of... - Rob on Dec 21, 2016, 12:47 PM
      1. Enjoy - Sonny on Dec 22, 2016, 7:10 PM
     
  33. Todays Lab Results and Consult with my Doctor... Digest - Timothy Clune on Dec 20, 2016, 11:12 AM
    1. Tim? - Rob on Dec 20, 2016, 5:35 PM
      1. Tricare Prime for Retirees - Timothy Clune on Dec 21, 2016, 5:33 AM
    2. You are on my prayer list - Pat on Dec 21, 2016, 5:39 PM
      1. Thanks Pat - Timothy Clune on Dec 22, 2016, 6:34 AM
        1. Wow, energy level is still pretty high - Pat on Dec 23, 2016, 1:30 PM
          1. Yep, HGB is still up, so my energy is good - Yep, fancy LG washer/dryer coming - Timothy Clune on Dec 23, 2016, 3:49 PM
    3. Ibrutinib off trial - Todd on Dec 23, 2016, 2:49 PM
      1. Thanks - Timothy Clune on Dec 23, 2016, 3:40 PM
    4. Since you had - Waid on Dec 26, 2016, 10:07 AM
      1. Risk of Hypogammaglobulinemia - Timothy Clune on Dec 26, 2016, 1:59 PM
        1. Re: Risk of Hypogammaglobulinemia - Waid on Dec 27, 2016, 9:52 AM
          1. Re: Likely True with any MAB - Timothy Clune on Dec 27, 2016, 11:10 AM
    5. New Year Blessings - Paula on Dec 29, 2016, 4:48 PM
      1. Thanks Paula! - Timothy Clune on Dec 29, 2016, 7:45 PM
    6. Good luck - Linda on Dec 30, 2016, 11:07 AM
     
  34. How ya doin Digest - Mel on Dec 19, 2016, 11:38 AM
    1. Mel! - Rob on Dec 20, 2016, 8:53 AM
      1. Good Deal - Timothy Clune on Dec 20, 2016, 11:01 AM
        1. Hi Tim - Rob on Dec 20, 2016, 5:28 PM
    2. Mel Tim n Rob - Pat on Dec 21, 2016, 5:24 PM
     
  35. Newly Diagnosed Digest - Lisa on Dec 4, 2016, 8:19 PM
    1. Hi Lisa - Paula on Dec 5, 2016, 9:18 AM
      1. Thank you Paula - Anonymous on Dec 5, 2016, 11:36 AM
    2. Re: Newly Diagnosed - Anonymous on Dec 6, 2016, 4:39 PM
    3. Welcome, Lisa - Waid on Dec 8, 2016, 7:54 AM
      1. Sounds encouraging - Lisa on Dec 8, 2016, 6:11 PM
    4. Hi Lisa - Pat on Dec 21, 2016, 5:18 PM
     
  36. Carroll have you been checked out for this? Digest - Rob on Nov 28, 2016, 11:45 AM
    1. Not sure - Carroll on Nov 30, 2016, 6:39 PM
      1. This one won't be painful. - Rob on Dec 1, 2016, 11:09 AM
     
  37. Thanks for the gift! Digest - Anna on Nov 24, 2016, 10:34 AM
    1. Love it - Pat on Nov 26, 2016, 5:58 PM
     
  38. Carroll, how is your energy level? Digest - Sonny on Nov 23, 2016, 10:31 AM
    1. Latest - Carroll on Nov 25, 2016, 8:02 PM
      1. Re: Latest - Anna on Nov 25, 2016, 8:45 PM
      2. Internist - Sonny on Nov 26, 2016, 4:45 AM
        1. Yes - Carroll on Nov 30, 2016, 6:47 PM
          1. Best wishes - Sonny on Dec 1, 2016, 4:58 AM
      3. WooHoo, no Hairies for you - Pat on Nov 26, 2016, 6:03 PM
        1. OK start working on that switch - Carroll on Nov 30, 2016, 6:52 PM
      4. Hang in there - Waid on Dec 7, 2016, 11:15 PM
     
  39. Anna, how are your doing ? Digest - Sonny on Nov 23, 2016, 10:28 AM
    1. Complete Remission! - Anna on Nov 24, 2016, 10:27 AM
      1. Congrats !!! - Sonny on Nov 24, 2016, 11:24 AM
      2. WooHoo!!! - Carroll on Nov 25, 2016, 7:56 PM
      3. Congrats, Anna - Waid on Dec 7, 2016, 10:32 PM
      4. Great news! - Linda on Dec 16, 2016, 8:55 AM
     
  40. Thanks Giving Digest - Mel on Nov 23, 2016, 4:14 AM
    1. Right back at you! - Tim Clune on Nov 23, 2016, 1:52 PM
     
  41. For the Wait and Watchers Digest - Sonny on Nov 16, 2016, 7:21 AM
    1. Sonny - Pat on Nov 26, 2016, 6:07 PM
    2. Ratios - Waid on Dec 7, 2016, 10:40 PM
     
  42. CD4 Digest - simone on Nov 16, 2016, 2:08 AM
    1. CD4 Recovery - Tim Clune on Nov 16, 2016, 6:01 AM
      1. Re: CD4 Recovery - simone on Nov 16, 2016, 6:03 AM
        1. CD4 count - Tim Clune on Nov 16, 2016, 6:13 AM
          1. Re: CD4 count - simone on Nov 16, 2016, 6:15 AM
     
  43. Tim: Vemurafenib/Rituxan Digest - Sheepdawg on Nov 15, 2016, 1:26 PM
    1. Thanks Sheep - Tim Clune on Nov 15, 2016, 1:37 PM
    2. Do you have a link to that article? - Todd on Nov 15, 2016, 2:12 PM
      1. Re: Do you have a link to that article? - smone on Nov 15, 2016, 11:09 PM
      2. Here is a link to a summary of vemurafenib/rituximab combo trial - Jeff on Nov 16, 2016, 3:05 AM
        1. Thanks - Todd on Nov 17, 2016, 8:41 AM
    3. Sheep, how are you doing these days? - Pat on Nov 26, 2016, 6:14 PM
     
  44. Pentostatin - who has done it after Cladribine? Digest - Tim Clune on Nov 15, 2016, 9:50 AM
    1. pentostatin - Mel on Nov 15, 2016, 11:14 AM
      1. Thanks Mel - Tim Clune on Nov 15, 2016, 12:16 PM
      2. Re: pentostatin - simone on Nov 15, 2016, 11:14 PM
        1. pentostatin - Mel on Nov 16, 2016, 5:54 AM
          1. pentostatin - Mel on Nov 16, 2016, 5:58 AM
            1. Re: pentostatin - simone on Nov 16, 2016, 6:13 AM
            2. Re: pentostatin - simone on Nov 18, 2016, 2:21 AM
              1. pentostatin - Mel on Nov 18, 2016, 4:50 AM
                1. Re: pentostatin - simone on Nov 18, 2016, 6:44 AM
                  1. pentostatin - Mel on Nov 18, 2016, 7:31 AM
                    1. Re: pentostatin - simone on Nov 18, 2016, 8:34 AM
                      1. pentostatin - Mel on Nov 18, 2016, 1:02 PM
          2. pentostatine - simone on Nov 16, 2016, 6:07 AM
            1. Pentostatin Question - Todd on Nov 16, 2016, 3:25 PM
              1. Re: Pentostatin Question - simone on Nov 17, 2016, 6:11 AM
                1. That's Fast - Tim Clune on Nov 17, 2016, 8:18 AM
                2. Thanks - Todd on Nov 17, 2016, 8:40 AM
    2. For Mel and Tim - Pat on Nov 26, 2016, 6:21 PM
     
  45. Tim, did you see your doc? Digest - Waid on Nov 14, 2016, 11:22 PM
    1. Hey Waid, yep I saw him... maybe another trial is in my future... - Tim Clune on Nov 15, 2016, 5:55 AM
      1. Change 1 - That clinical trial is out - Not accepting HCL patients - Tim Clune on Nov 15, 2016, 8:41 AM
    2. Re: Tim, did you see your doc? - simone on Nov 15, 2016, 8:58 AM
      1. My past... - Tim Clune on Nov 15, 2016, 9:16 AM
        1. Re: My past... - smone on Nov 15, 2016, 11:11 PM
          1. 3/28/2016 Flow Results - Bright CD25 markers - Tim Clune on Nov 16, 2016, 6:09 AM
            1. Re: 3/28/2016 Flow Results - Bright CD25 markers - simone on Nov 16, 2016, 7:43 AM
              1. CD25 negative is Hairy Cell Variant - Waid on Dec 7, 2016, 10:30 PM
    3. See my doctor again Dec 20th - Tim Clune on Nov 21, 2016, 4:50 PM
      1. How are your numbers? - Sonny on Nov 22, 2016, 8:43 AM
        1. 10 Nov 16 Numbers - Tim Clune on Nov 22, 2016, 8:58 AM
          1. Numbers - Sonny on Nov 22, 2016, 3:28 PM
            1. Feel Fine - Tim Clune on Nov 22, 2016, 5:02 PM
              1. No Treatment - Sonny on Nov 22, 2016, 7:31 PM
                1. Sorry - Tim Clune on Nov 22, 2016, 8:40 PM
                  1. No worries - Sonny on Nov 23, 2016, 10:27 AM
     
  46. pentostatine treatment Digest - simone on Nov 11, 2016, 6:49 AM
    1. Glad you are doing so well! - Tim Clune on Nov 11, 2016, 7:06 AM
      1. Re: Glad you are doing so well! - Tim on Nov 15, 2016, 1:00 AM
        1. We'll see - Tim Clune on Nov 15, 2016, 6:04 AM
          1. Re: We'll see - simone on Nov 15, 2016, 7:38 AM
            1. Ibrutinib - Tim Clune on Nov 15, 2016, 9:07 AM
              1. Re: Ibrutinib - simone on Nov 15, 2016, 11:18 PM
                1. I was 36 when I started - Tim Clune on Nov 16, 2016, 5:57 AM
                  1. Re: I was 36 when I started - simone on Nov 16, 2016, 6:10 AM
    2. Hi Simone! - Rob on Nov 11, 2016, 4:55 PM
     
  47. Anna I put the link up above Digest - Rob on Nov 8, 2016, 4:54 AM
    1. Awesome! - Anna on Nov 8, 2016, 8:29 AM
      1. Glad you like it - Rob on Nov 9, 2016, 7:45 AM
        1. Rob, how are you feeling? - Sam1224 on Nov 9, 2016, 9:59 AM
          1. Hi Sam - Rob on Nov 10, 2016, 4:30 AM
     
  48. Welcome to DC Digest - Anna on Nov 7, 2016, 11:37 AM
    1. Thanks Anna - Sonny on Nov 7, 2016, 11:39 AM
      1. Doing well - Anna on Nov 7, 2016, 11:44 AM
        1. Great news - Sonny on Nov 7, 2016, 12:06 PM
     
  49. Anna - how are you doing? Digest - Sonny on Oct 31, 2016, 5:16 PM
    1. Pretty well - Anna on Nov 2, 2016, 8:49 AM
      1. The best is yet to come - Sonny on Nov 2, 2016, 6:56 PM
        1. Thanks! - Anna on Nov 2, 2016, 7:56 PM
     
  50. Hi everyone Digest - richard on Oct 23, 2016, 7:53 AM
    1. Hi Richard - Paula on Oct 23, 2016, 9:49 AM
      1. Thanks - richard on Oct 23, 2016, 12:02 PM
        1. Hi Richard and Paula - Pat on Oct 28, 2016, 1:14 PM
          1. Thanks Pat - Anonymous on Oct 30, 2016, 1:25 PM
          2. Hi Pat - Paula on Nov 3, 2016, 10:55 AM
            1. That's Awesome - Pat on Nov 26, 2016, 5:54 PM
     
  51. Carroll - how is your energy level Digest - Anonymous on Oct 19, 2016, 6:58 AM
    1. Forgot to add my name to last post - Sonny on Oct 19, 2016, 6:59 AM
      1. fatigue - Carroll on Oct 19, 2016, 6:07 PM
        1. Hmm - Sonny on Oct 19, 2016, 6:22 PM
          1. So true, Sonny - Pat on Oct 19, 2016, 8:15 PM
        2. Age??? - Rob on Oct 20, 2016, 5:03 AM
          1. Age - Carroll on Oct 20, 2016, 10:03 AM
            1. New normal - Rob on Oct 21, 2016, 8:31 AM
              1. Energy level - puzzling - Pa on Oct 28, 2016, 1:07 PM
     
  52. Anna and the Hairy Cells Digest - Anna on Oct 17, 2016, 8:27 PM
    1. Thanks - Sonny on Oct 17, 2016, 9:23 PM
      1. Re: Thanks - Anna on Oct 22, 2016, 9:33 AM
    2. re your podcast - Pat on Oct 19, 2016, 8:11 PM
      1. Re: re your podcast - Anna on Oct 22, 2016, 9:32 AM
    3. Nice work - Tokyo HCL on Oct 20, 2016, 10:40 PM
      1. Re: Nice work - Anna on Oct 22, 2016, 9:31 AM
    4. Airbnb - Todd on Oct 25, 2016, 6:47 PM
      1. Re: Airbnb - Anna on Oct 25, 2016, 8:16 PM
        1. Thanks - Todd on Oct 26, 2016, 3:29 PM
          1. NIH Transportation - Sam1224 on Oct 28, 2016, 9:00 AM
    5. Lodging - Linda on Oct 28, 2016, 9:21 AM
      1. Re: Lodging - Anna on Oct 28, 2016, 10:22 AM
        1. Lodging - Linda on Nov 3, 2016, 8:19 PM
          1. Thanks! - Anna on Nov 24, 2016, 10:43 AM
    6. Podcast - Linda on Nov 3, 2016, 8:54 PM
      1. Re: Podcast - Anna on Nov 24, 2016, 10:47 AM
        1. Braf/ mek - Linda on Dec 16, 2016, 8:28 AM
     
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